-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Some here may not be comfortable replying to an email - so as to maintain privacy. Lyme patients can be cautious regarding being "found out" -
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Lyme is not allowed in Oregon, according to the Medical board here.
Last summer two little girls went to their pediatrician after a camping trip. they both had the classic bulls-eye rash and the doctor said "There is no lyme in Oregon."
I presented with positive Western Blots for 3 tick borne infections and my GP (at that time) said "There is no lyme in Oregon." She said my seizures and severe fatigue were psychological.
Once in a while a TV station may do a report on a very ill lyme patient but always end with the local IDSA ID doc saying "no way!" Some doctors who have treated patients have lost their licenses and had to leave the state.
Oregon one of the very worst states. The behavior here is truly criminal negligence but there is no way to fight it.
ER doctors are not only unaware but down right insulting - even a patient is there for something unrelated but somehow the mention of lyme pops up.
Seriously, I would strongly discourage your daughter from moving to Oregon. It is a horrible state to live it for someone with this illness. Horrible.
She may find care with the one LL ND, but she will never find a MD here. EVER. Sorry. Even for regular health support, if lyme is even whispered or on her chart it is the kiss of death regarding respect.
That said, there may be one or two doctors who fly under the radar but are only the support GP for patients who go out of state.
And, once in a while if someone presents with a bulls eye rash a doctor will give them and Rx for 9 days (yes, nine days' worth) of doxycycline and declare them to soon be fine. No assessment of co-infections, no combination treatment, etc.
So, technically, if you call the ID doctors here, they may say they treat lyme, but only in a few cases and then, for only 9 days. A few weeks at most. Neither is enough.
The LL ND visits may or may not be partially covered, but meds outside of an MD prescribing are usually out of pocket. And, as mentioned above, if any emergency care is needed, she will not be treated well at all.
Portland has one very good LL ND (naturopathic doctor). Some insurances to reimburse some for that, but I don't know if lyme would be covered - depends on the insurance.
PM me if you want the name of the LL ND or the Oregon Lyme Support Group.
If she is for sure going to move here anyway, she will need those contacts, for sure. But probably she will be traveling to either Seattle or N. Calif. for LLMD appointments.
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use " ", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ![[Smile]](smile.gif)
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