posted
I got bit by a tick in 2006. I noticed a black spot on my side, and thought it was a mole. Then after a day or so it kept bothering me. So I looked again. There was a little tick on my side. I had a red rash all around the bite. So I worked on getting the tick out, and ensuring that the whole tick came out. I took pictures of it, and I still have them. If someone is interested in seeing them.
Shortly after my symptoms began, and I went to the doctor. He said "Oh it looks like a brown recluse bite" I told him "No it is a tick bite." Just so you know my doctor isn't the best doctor in the world, but my sister works for him. I used to do part time work there as well. I don't get charged for office visits, so I continue to go. He put me on Keflex for 10 days, and left it at that. I have moved and mentioned to other doctors I have seen, and they just put me off.
I don't have health insurance so I am going to have a hard time with this if it turns out to be that I do in fact have Lyme disease.
My initial symptoms were headache, neck pain, and generally not feeling well. Then over the past few years it seems that one thing or another is always bothering me. I have had the neck crunching, pain down my spine, headaches. Then leg cramps, night sweats, all around not feeling well. Well a couple of days ago I got up to help my 4 year old in the bathroom, and the room started spinning on me. I thought it was just because I had just woke up. So I went into my living room and every time I sit up straight to try to watch TV the room spun around and around. I started getting nauseated, and sweating pretty bad. This lasted pretty much all day. Ever since that episode I have had ringing in my ears, and my eyes are doing funny things. I also have real spacy moments. Most doctors blame my problems on my weight. I have been overweight my entire life, and never felt this bad. I used to be a very active person, now I hardly have energy to take care of my kids. Thank the good lord for my husband. Without him I would be lost.
After reading on here, I am a little concerned about my daughter. I got pregnant and had my daughter in 2007. Since she was born she has had many problems, and most are unexplainable by the doctors. I was told by my ob/gyn that it could not pass from me to her. I never breastfed her though, so hopefully there is no connection.
Posts: 7 | From kansas | Registered: Mar 2009
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please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *************************
CHILDREN'S LYME SYMPTOMS compiled by Geneal 6-07 From ``GENEAL'' June 2007
I have been doing some research regarding Lyme and signs/symptoms in small children.
I know many of you have small children that you may be concerned about. I believe my youngest child (4yrs old) may have gotten this disease from me.
For All Children
-dizziness -neck pain and stiffness in almost 90% -sore throats -swollen lymph nodes -excessive thirst, -Chest pains in at least 70%, some have palpatations -Sense of air hunger or shortness of breath, dry cough
-abdominal pain in about 50%, can mimic acute appendicitis -sometimes vomiting, heartburn -rashes that come and go, malar rashes, new psoriasis
-migratory arthralgias, joing pain in 50% to 100% -myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness
-frequent illnessses, dark circles under their eyes -intermittent red, hot pinnae of ears -sleep disturbance in over 80%
-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection *hypersensitivity of skin, scalp and hair *Hypersensitivity to noise, light, smell *Alterations of taste *poor balance and coordination *Uncharacteristic behavior outbursts, mood disturbances, depression *social withdrawal *New onset phobias *Oppositional behaviors *Obsessive compulsive disorders *Deterioration in school performance in over 90% *Difficulty with concentration and attention in school with easily distractibility as well as "brain fog" in over 80% *New onset of ADD
*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing
Less Commonly:
*Movement disorders-spaticity, ataxia, motor or vocal tics *Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis *Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness
Pre-Schoolers and toddlers
- Modd swings, sudden emotional outbursts - Irritabiity - Personality changes - Regression of motor and social skills (developmental milestones) - Changes in play behavior, tire easily, less active
- Trouble falling asleep, frequent awakenings - Nightmares, new phobias, recurrence of seperation anxiety - Diaper rash unresponsive to normal treatment - Frequent URI's, ear and throat infections, bronchitis, pneumonia
Congenital Lyme Disease
* Infants can be infected with Borrelia transpacentally in any stage of pregnancy and/or via mother's breast milk.
* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transpacentally to the developing fetus.
* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascual anomalies,
intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.
* Infants either infected congenitally or from breast milk can have
- Floppiness with poor muscle tone - Irritability - Frequent fevers and illness early in life - Joint sensitivities and body pain - Skin sensitivity - Gastro esophageal reflux - Developmental delays -Learning disabilities and psychiatric problems
* Infants bitten very early in life will have many of the same symptoms - loss and decline in developmental milestones.
I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.
Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007
posted
Thank you for your help. I am still trying to figure out a way to actually afford one of these doctors now. I thought about talking to my previous doctor about getting me started on some antibiotics, but not sure if he will or not.
Still searching for resources in my area.
Thanks again for the help
Posts: 7 | From kansas | Registered: Mar 2009
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posted
Thanks I will. I really don't think he will give me to hard of a time. I used to be his office nurse, so he knows me pretty well. It just a hassle to drive over an hour to get there, but can't beat the price.
At this point I will take what I can get. I hurt so bad most of the time. Like right now, my neck and head are killing me. I have been reading so much about this and the computer has definitely straining my eyes and head.
Sometimes I feel like I am exaggerating it. I know my husband believes me, but I think they are tired of me being tired & grumpy. It has definitely taken a tole on my kids. I don't feel like doing much of anything anymore, except sleeping.
I have gained more weight because I don't do much of anything. I know everyone here can relate to what I feel though. That helps a great deal to know I am not alone.
Thank you for your support. It means a great deal to me. --Julie
Posts: 7 | From kansas | Registered: Mar 2009
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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