posted
or any doctor who might have a clue about Lyme disease. I have been sick for 17 months, progressively, and am tired of being told I am crazy.
Neurologist i went to this month told me that igenex and other lyme disease labs are "quackery" and he does not beleive in chronic lyme. He instead wants me to accept a diagnosis of "go home and live with it" , which I am not willing to accept.
I do not remember a tick bite or rash.
My physiatrist did a basic titer for lyme just recently which was negative, but I want to get the full proper testing for lyme and Do not know how to find a doctor to do that. Only thing i have on paper right now that proves I am ill is extremely low vitamin D levels and borderline iron levels.
I have been dizzy for 6 straight months now and I can't live with it anymore. was recently treated for bronchitis and given steroid after steroid and I seriously thought they were going to kill me. I have numerous system-wide symptoms.
Anyway if anyone can help please email me.. i'm not just interested in a doctor closest to me but one who is fairly close to me AND a good compassionate doctor would be great.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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bettyg
Unregistered
posted
mina, NO MORE STEROIDS! they suppress the immune system and can make you much worse as you have experienced already.
many here have the terrible dizziness you are talking about. you can copy your story above and post in MEDICAL forum.
subect: need help; DIZZY ALL THE TIME! paste your story there
go to lower left hand corner and mark box for all replies to come to you ok! good luck! **************************************
IGENEX , CALIF. BLOOD TESTINGS ...check current $$!
* Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it's meant to be informed PRIOR to going into having various tests done and then be told what the costs will be! * Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.
* Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes
* The below tests were done for ME; you MAY NOT NEED them all ok! :
* western blot IGM & IGG, this is MANDATORY for you which costs $200 total for 2 tests done; INCREASED MAY 2008 * ******************************************************* * OPTIONAL ONES ARE:
* co-infection panel for YOUR AREA OF COUNTRY; * PCR WHOLE BLOOD...this is what my LLMD ordered!
It's PREPAY! unless you are on medicare; IGX will file the paperwork & it's FREE to you.
go to www.igenex.com and read over their info. Prices go up twice a year: MAY and NOVEMBER!!
* Also, call 1-800.832.3200 for CURRENT PRICES! * They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive! * You need to DOWNLOAD IGENEX's required form. * * MD, DO ,ND, AC, DC are all fine** must sign, date, and show DIAGNOSIS CODE on there why he's ordering the test. Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg * * When you get your results, please post them in MEDICAL; * Post ONLY the POSITIVE & IND ones .... not the negative ones! * Also, look for post by LYMETOO/TUTU on DR. C's (Missouri) explanation of the western blot IGM & IGG numbers, below! http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077
read tincup's explaination to lymeseek on IGENEX testing and the background of company! outstanding!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
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Pennington,
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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