posted
I am trying to find a great Chronic Lyme specialist in the Tampa or South Central Florida area. I have been up many wrong roads so far, with doctors who claim to treat Lyme but are clueless. Thanks for any help to find the real deal!
Posts: 2 | From Sarasota, FL | Registered: Apr 2009
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bettyg
Unregistered
posted
welcome lynne,
check your profile above for florida llmds
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
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we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
It is my understanding that there are no great lyme doctors in Florida.
Two friends of mine who live in West Palm Beach checked it out pretty thoroughly the summer of 2008, including one visit with a real rip-off artist.
They decided to go out of state for their lyme treatment. The doc they see sees them every month. After so many months, every other appointment is over the phone. So, that saves air fare and time.
You can write to me privately if you want to know more.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I am in Melbourne Fl. the closed Doc that showed up on the National list was in Lake Mary, quite a hike (Florida is a very big state), most certainly will not be covered by my HMO does anyone know of any others and has anyone seen this particular doc??
Posts: 8 | From USA, Melbourne Beach Fl | Registered: May 2009
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bettyg
Unregistered
posted
welcome sealady!
check your profile above for my pm to you of florida llmds
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
********************************
ALL NEWBIES!!
start your OWN post here; look for small black/white box NEW POST
show the largest city/state in SUBJECT llmd needed
tell us your story; have you been clinically diagnosed with lyme or a co-infection/other diseases ticks carry.
did you have a western blot igm and igg blood test done by IGENEX LAB, CALIF?
if yes, please post POSITIVE/IND NUMBERS ONLY; not the negative nos. ok.
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you'll get answers within 24 hrs. if not way before then! thanks for helping us out!!
when we see a post with many replies, we just skip past it!! we know we have ANSWERED the person who started the post. bettyg
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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