posted
In 1973 I was diagnosed with viral encephalitis. I was given antibiotics, and sent home. Some time later, I was brought to the doctor to have a tick removed from behind my ear.
I went through severe headaches, fevers up to 104, body aches, nightmares, hallucinations, chills and my eyes became very sensitive to light. I remember being the only kid in kindergarten with grey streaks in my hair!
By the age of 5, I had already been to hell and back. My early childhood was filled with illness. I remember every time an illness would hit my family, I was the one who would be sick sometimes weeks longer than everyone else and often it would result in pneumonia.
As a teen, I began experiencing arthritic type pains in my hips and by 25, it had moved to my lower back.
After several years of being diagnosed as having back injuries that never occurred, I was finally able to obtain an ex-ray that showed I have sacroiliitis. During that time, I experienced several other symptoms.
I was experiencing extreme fatigue and my doctor gave me prenatal vitamins for that. I also had a swelling in the groin area and after several tests, was told it must be a swollen lymph node. I have had those before in other areas. I've had many infections including kidney infection and diverticuliitis.
I had two miscarriages before my doc discovered that I was not producing progesterone and after being put on progesterone, I was able to give birth to my youngest child in 2007. I am a 39 year old mother of 4 now.
Recently after the death of someone very close to me, I began experiencing more new symptoms.
I started having severe headaches in the back of my head, neck pain and stiffness, breathing difficulty and crushing chest pains. Sometimes my hands shake uncontrollably and sometimes they feel numb and tingly. I've completely lost my appetite along with about 25 lbs. I have severe short term memory loss, confusion and even rage.
I'm sure I've left a lot out, but like I said, my memory isn't so good lately. I've fought whatever this is for most of my life and I am so tired. I'm scared.
My doctor suggested I see a counselor. Sometimes I think if not for the constant pain, my mind would be just fine.
I read a little about Lyme disease and it all sounds so familiar...too familiar! I have checked out a couple doctors who specialize in Lyme, but unfortunately I simply can't afford it. I have medical coupons, but nobody seems to take insurance.
I live about 45 minutes north of Seattle and desperately need a doctor I can afford. Please help. If not for my kids, I honestly think I would have given up a long time ago.
(I apologize for my original post. I thought it was just me...losing my place and reading the same lines over and over...I'm still learning...hope this is better)
[ 04-11-2009, 03:26 PM: Message edited by: chrissyparks ]
Posts: 7 | From Washington | Registered: Mar 2009
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bettyg
Unregistered
posted
welcome crissy!
check your profile above for wash. state llmds; you have MANY there!! we envy your state
please see my posting guidelines below....thanks!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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