posted
Seeking LLMD for my nephew in NYC. Please pm me. Thanks.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
bettyg
Unregistered
posted
paulie, is he UNDER 21 or over? makes a difference. send me a pm; i'll get back to you ok hugs...
IP: Logged |
posted
Hi. I'm also looking for one in NYC. Primary symptoms fatigue and GI. Am just starting out my search, REALLY need to address symptoms but have no desire to go to a Dr. who won't consider Lyme as a possibility for the symptoms.
Posts: 1 | From New York | Registered: May 2009
| IP: Logged |
bettyg
Unregistered
posted
welcome su!
check your profile above for my pm to you of NYC llmds
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
IP: Logged |
bettyg
Unregistered
posted
any more NEWBIES,
please start YOUR OWN post; look for small black/white box on top/bottom.
show the STATE YOU NEED LLMDS and largest city nearest you in subject
tell us your story, and break it up into SHORT paragraphs and double space between each paragraph for us severe neuro patients who can't read long paragraphs and can not comprehend at all; big thanks!! betty
IP: Logged |
posted
I think my boyfriend has lyme disease. He exhibits many of the symptoms, achy, fatigue, unable to concentrate, tingling, diarrhea, joints hurt, headaches. He went to a regular md, his lyme test was negative and was neg once prior too. Should we go to an LLMD? Any suggestions? Do we have some other blood test to diagnose? Thanks. Much appreciated!
Posts: 2 | From NYC | Registered: May 2009
| IP: Logged |
bettyg
Unregistered
posted
sending tc a pm w/info! *******************************
any more NEWBIES, *************************** ****************************
please start YOUR OWN post; look for small black/white box on top/bottom.
show the STATE YOU NEED LLMDS and largest city nearest you in subject
tell us your story, and break it up into SHORT paragraphs and double space between each paragraph for us severe neuro patients who can't read long paragraphs and can not comprehend at all; big thanks!! betty
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
IP: Logged |
posted
bettyg, Thanks so much for your speedy and quite helpful reply.
I hope we can figure out what is wrong with him and figure it out once and for all if it is lyme.
I think we have let it gone on for too long. It is time to be proactive for yourself. Some doctors are unaware and will dismiss you.
But how come llmd's are so expensive?? and confidential?
Thanks again bettyg. Much appreciated!
Posts: 2 | From NYC | Registered: May 2009
| IP: Logged |
bettyg
Unregistered
posted
tc,
please read the below links that explain your questions on why they are expensive and must be CONFIDENTIAL!!
dr. charles jones, kids llmd in conn. being charged by conn. health dept. on charges from long-term antibiotics, etc. this is 1 of 2 llmd names that can be mentioned since he just started 3 yrs. of monthly hearings where they are trying to take away his medical license!
there are many more RECENT ones, but this was all that turned up using SEARCH feature at top of page.
you might look at TREEPATROL'S huge archive of learning links found in my signature line.
you/your family entered the LYME WAR CONTROVERSY, and none of us wanted to be here!!
IDSA, infectious drs, infectious disease society of america, treat from ONE pill up to 3 wks. max; don't believe in chronic lyme. they undertreat and you become CHRONIC.
our drs. are llmds, lyme literate mds, from ILADS, intl. lyme associated disease society who treat longer than 3 wks. of antibiotics up to years plus other alternative thigns.
you've got lots of reading to do ... go to ACTIVISM using FORUM HOME, upper right hand side, and start reading down thru the subjects posted..
read about HR 1179, our lyme bill in congress
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
hugs...
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
Printer-friendly view of this topic