posted
hello there! thank you for the suggestions -- does anyone know any llmds who take insurance (blue cross/blue shield) specifically?
also, can my regular physician order the blood tests that everyone suggests -- or are they off limits? i feel like i need help with the language to get through to the docs.
thanks in advance,
lara
Posts: 3 | From Tabernacle, NJ | Registered: May 2009
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bettyg
Unregistered
posted
lara,
YES, your dr. can order the western blot igm and igg blood tests be drawn and sent only to IGENEX LAB, CALIF.
i'll post more info on this now; will copy/paste ..
IGENEX , CALIF. BLOOD TESTINGS ...check current $$!
* Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it's meant to be informed PRIOR to going into having various tests done and then be told what the costs will be!
* Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.
* Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes
* The below tests were done for ME; you MAY NOT NEED them all ok! :
* western blot IGM & IGG, this is MANDATORY for you which costs $200 total for 2 tests done; INCREASED MAY 2008 * *******************************************************
* OPTIONAL ONES ARE:
* co-infection panel for YOUR AREA OF COUNTRY; * PCR WHOLE BLOOD...this is what my LLMD ordered!
It's PREPAY! unless you are on medicare; IGX will file the paperwork & it's FREE to you.
go to www.igenex.com and read over their info. Prices go up twice a year: MAY and NOVEMBER!!
* Also, call 1-800.832.3200 for CURRENT PRICES!
* They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive!
* You need to DOWNLOAD IGENEX's required form. * * MD, DO ,ND, AC, DC are all fine** must sign, date, and show DIAGNOSIS CODE on there why he's ordering the test. **************************************
Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg *
* When you get your results, please post them in MEDICAL;
* Post ONLY the POSITIVE & IND ones .... not the negative ones!
* Also, look for post by LYMETOO/TUTU on DR. C's (Missouri) explanation of the western blot IGM & IGG numbers, below!
Marc G. Golightly, Ph.D. added info 4.25.09 Professor of Pathology Director and Head of Flow Cytometry and Clinical Immunology, Dept of Pathology School of Medicine Stony Brook University
5. FRY LABORITORY, ARIZONA to test for CO-INFECTIONS $ 400 BLOOD SMEARS cost was $295.
Anyone can download the order form for all of their tests from their website. The kit costs $15 but a doctor's office can order for free.
6. Clongen Laboratories, LLC ADDED 3.11.09
Dr Kilani -- the director of Clongen Lab 1232 Middlebrook Road, Suite 120 Germantown, MD 20874 Phone: (301) 916-0173 Fax: (301) 916-0175 Email: [email protected] Customer Support [email protected] Web Master [email protected]
FROM DR. JAMES SCHALLER'S NEW BARTONELLA BOOK 5-08:
If you order this FRY CLINICAL LAB TEST, you must ask EXPLICABLY ask and VERY CLEARLY asked to be shown these specific forms; such as PROZOA RING forms or they may NOT send you these specific forms!
* They will also avoid calling something inside the RED blood cell BABESIA unless it matches a text book example.
* Textbook slide diagnosis is well known to not fit real medicine since often infection images, like patients, do not fit the books.
* This is particularly challenging when 2 emerging and new infections of BARTONELLA AND BABSESIA both enter red blood cells. *******************************************
check your profile above for my pm to you on NJ llmds; you'll have to check about insurances in info i'm sending
*********************
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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