posted
okay so here is my story. this past summer i found a tick stuck to the bottom side of my leg, so i picked it off. the spot on my leg was swollen and irritated and looked as tho the tick had been there for quite sometime... a few days later i got really sick and had a fever, so i went to the doctor... i got tested for all kinds of things because i had a ton of symptoms, but they couldn't find anything wrong with my blood or urine..
after a couple of days my vision started to bother me, and i couldnt take it anymore, i researched what was wrong with me and went to the emergency room and told them i may have tick fever because my bite was infected. they took my blood and sent it off. it came back positive for lyme disease.. or lyme tartar. so they gave me doxy and i went back for a checkup and got more doxy... well now im all out of doxy, and i dont feel bad anymore but my vision is killing me.. i have double vision that comes and goes and its hard for me to focus on things sometimes... my vision just splits and i see double, but then it slowly works itself out and back to normal...
i dont know what to do... im going insane... what should i do? god help me. no one will help me...
do i need more medicine for it? what should i do?
im getting depressed...
Posts: 2 | From Ada, Oklahoma | Registered: Jun 2009
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haskell's other post ... haskell, please edit your subject line and show what state/s you want to receive since okla. has NO LLMD.
just click on pencil to right of your name at top to open up subject line to retitle it .... thanks. also, could you have shorter paragraphs too as i mentioned before in your other post.
then we'll be able to read it all vs. skipping on by...thanks.
i sent them s. missouri llmd info ... ************************************
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
you tested negatibe because it takes 6-8 weeks to make antibodies. your doc tested you too soon
Posts: 3905 | From USA | Registered: May 2007
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
you have a GOOD LLMD in the next state north and east of you. get there however it works BEST for you,,,but GET there. NO substitutes!!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
oops, just looked at a map,,,there is another to the south of you,,,but still think the other is worth the additional drive.
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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