posted
I have battled chronic Lyme disease and ignorant doctors for I don't know how long.
After years of health problems, I was finally diagnosed 4 years ago and treated with 11 months of antibiotics.
I recently found out that that didn't kill it and now, besides being in my brain and who knows where else, it's also in my eyes and the inflammation is threatening my sight.
I had Lyme disease when I was 12 years old and, knowing what I now know about Lyme disease and false negatives, I suspect that it was never actually cured.
This past weekend, my brother told me that my little 5 year old nephew (and Godson) had a bulls' eye rash and is on a three week course of amoxicillin.
I am concerned that this will not be sufficient to kill the Lyme and it breaks my heart to think that what has happened to me could happen to my nephew as well.
The problem is that my brother and sister-in-law are not very open-minded when it comes to certain medical issues.
Over my many years of health problems, I've always suspected that they just think I'm a hypochondriac, but you kinda get used to that attitude when you have chronic Lyme disease and often negative test results.
When I tried to tell my brother and sister-in-law that they should take him to someone who specializes in Lyme, they pretty much just brushed me off and said "Oh, his pediatrician says she deals with Lyme all the time and that three weeks of antibiotics is plenty."
So, I was wondering:
A) Can anyone recommend a Lyme-literate pediatrician in North-Eastern New Jersey near Ridgewood? (And any specific information I can tell my brother about these doctors so I know I am referring him to someone they will like)
and
B) Does anyone have any advice about how I should broach the subject with parents who might not be super open-minded?
I don't want to come on too strong but I want to make sure they understand that Lyme disease is not to be taken lightly and they really should get a second opinion from a pediatrician who really understands Lyme.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I have sent her the children's LLMD list and advised her who is regarded as the best children's LLMD.
She needs guidance and help regarding LLMD's and input from members with this illness about how to approach things.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
On page two. Up for feed back and help.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
This post was in medical and moved over. Given the subject line they probably thought it was in the wrong section. I advised her to post in medical for help and advice.
This woman is looking for some help. I sent her a PM and asked her to delete this post, as she already has an identical one in this section and I have sent her the LLMD list and to repost in medical with a different subject line.
So, again, this is a duplicate post. Here is the original one:
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