posted
I had my first appointment with my LLMD today. Based on previous western blot and symptoms i have officially been diagnosed with LD!!!!
She is running i think every test you can imagine to find out just what else i may have. Im even going for a MRI and a SPECT scan of my brain.
So, she is starting me on 400mg of doxycycline. I am so excited, scared, and overwhelmed about starting treatment. I just wonder what my body is going to do.
Im supposed to go to NY in 3 weeks and hope i wont be herxing.
Anyway, thank you for all of your support. I will search for doxy personal stories, but if anyone wants to tell me theirs i would love to read it.
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hi, I am really sorry to hear you have LD. However I am glad you are going to get help. Why are you going to new york? If you are going to participate in the Columbia University study I don't think you want to start any ABX's just yet. I was a prime candidate this year but because they were slow in their response I got on IV abx's and then I knocked myself out of the study by getting better... Anyway...I initially got on ammoxycillin and doxycillin orally as my first official lyme disease treatment...for six months....they took me off even though I still had symptoms (only) three days a month. IN one month and a half I was worse than I was before the diagnosis. So be careful not to come off if you still have symptoms...even if your doc tells you you're "CURED" cuz I've been told that at least three or four times since 98 and I'm still sick after three rounds of IV abx's and a whole host of orals....if you get it on the run keep it on the run...and good luck. My prayers go out to you the zman
------------------
Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi Jorden,
I'm glad you have a proper diagnosis, it sounds like you found a great LLMD, hopefully soon you will be on your road to wellness.
I hope you don't end up herxing In New York. Some people never herx, and some midly, so maybe you will be on of them.
Doxy was the very first drug I took, and I was real scared to take it at first because I had a lot of reactions to abx in the past. But everything turned out fine, I actually did good on doxy.
Just be careful of the sun, eat with it cuz it can cause stomach upset, and take lots of acidophilus to replace the good bacteria that gets killed.
Let us know how everything is going for you and I hope you have fun in New York!
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good evening Jordan,
I'm so pleased that you have been diagnosed and have found a LLMD to work with.
I would just like to add a bit to what Beverly has already touched on re: Doxy...
There are several Doxy Do's (or Don'ts):
-avoid milk and all dairy products within 2 hours of your abx - including ant-acids, many dairy products are hidden, so check labels.
-avoid all iron supplements within 2 hours of your abx. Otherwise the potency of the abx could be reduced. This is true of all drugs in the tetracycline family.
-avoid the sun- including protecting eyes and hands even in the car. Burns can happen very quickly.
-avoid laying down for at least half an hour to avoid esophageal burning.
-be sure to take with food.
-do not ever crush your meds.
-do a thorough drug interaction check with any other meds.
-be sure you are doing pro-biotics to replace the `good' bacteria' being killed by your abx.
-be sure you are following the special low-carb/ low-sugar diet.
-be sure to drink tons of water with fresh lemon.
-and...be sure to go easy on yourself...doxy is known as a tuff med...so give yourself a little break when needed.
posted
I dln't want to make you worried, but I am on doxy and have been having a terrible time on it. I started at 400mg and they had to cut my dose in half cause it was making me soooo sick to my stomach, no matter what I did. so I am going to tell you what my llmd told me, It'll probably get worse before it gets better but doxy is a good medication. Be patient with it and let it do it's job.
Also listen to melanie, take care of yourself while you are taking it. -what I had to do, I have to take it at night about a hour before I go to bed, and after a full meal. It seems to help cause I sleep through alot of the side effects.
good luck, and I sure hope you feel better. Corinna
Posts: 22 | From Lodi, CA, USA | Registered: Apr 2004
| IP: Logged |
posted
I too have just started on doxy. I take 100mg twice a day and wow oh wow does it do a job on my tummy!! It's only been a week, but I can tell you... I am now glad that I decided to take some time off work! I NEVER would have been able to do my job!
Melanie... thanks for the info and the link!
Posts: 62 | From Middletown, Rhode Island | Registered: Feb 2004
| IP: Logged |
Good luck with the Doxy, and everything else. I've been on it for almost 4 months now. The others have pretty much summed things up, but I'll add this warning: you don't necessarily have to take the doxy just after eating (in fact, it is supposed to be better if you wait a couple of hours after eating) but don't EVER take it on an empty stomach, because you will hurl.
Also, sometimes with me, about an hour after I take it, I get a weird sensation, almost like I'm going to break out in a cold sweat. I think that might be related to taking it on an empty, or nearly empty stomach, too, but I'm not sure.
Posts: 139 | From Chico, CA | Registered: Mar 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic