i had been infected w/lyme and babesia in '91 and '93 (just before getting pregnant with my son) on nantucket island - found vacation photos of me with the rash. '96 in yardaly at brookside swimclub, still get recurring rash on foot where bitten, and '98 at home - mice get into a cheaply added on sunroom at our house. took photos of the '96 recuring rash and schwartz's nurse noted sarcastically the '98 bite as a "bite" in my records.

when i insisted what ever the throat infection was that i had ignored the previous winter, it's still in my system and i can't go on any more. they told me to come in and another dr in the practice told me it was a mere sinus infection (no sign of congestion) and prescribed two weeks amoxil. i could turn my head again, except to the right (this was musculo-skeletal due to a neck injury the yr before in an auto accident i did not know i had due to untreated lyme.) the accident was not my fault, was not looking to sue the little guy that hit me, but now have lots of pain from it and had to pay for most of the physical threrapy as a result of drs ignoring my complaints.

when i told shcwartz that after the amoxil i could partially turn my head again, but now my arms only moved in spastic jerks, he looked frightened and immeadiatly told me in an angry voice that i should not have had abx as they would only make me sicker! i had an autoimmune disorder and the fact that me arms were now giving me trouble was proof they had made me sicker.

"best of philly" upenn neuro opt grant t. (leaping liu liu) liu thouhgt all my serious symptoms very funny. he and his resident dr? victoria palek had such fun flirting with each other and laughing at me. since when is severe pain , insomnia, hair loss funny? i couldn't speak fluiently, which they thought amusing, tons of neuro symptoms, eyes were out of alignment (puny petie did note that in my records, but grant t liu missed it- on purpose? or is he just an idiot? i'd like to hear his excuse. my skin burned, was weak, so so many symptoms that i have posted before. my arms only moved in spastic jerks, but grant tt. liu said in my records that i could touch my finger to my nose. i could? he said he had me touch my finger to my nose when he did no such thing. all i remember is victoria palek laughing instead of doing the eye exam for real. months later , it was done for real at dr robert sergotts office at wills eye hospital and it was determined that i did not have control of my eye muscles and further treatment for chronic lyme was reccomended. a clue i had babesia too. grantiliuliu is not an expert - by his own admission. so why is he pretending to be?

grant just pretended to see "pebbles on the lenses" than theatrically lept to the empty exam room next store to compare lenses sinse grant had expresses he was not an expert in lenses. than theatrically leaping back exclaiming "oops, wrong call"! silly funny grant! i asked him "OK, when other people have this, what is it ?" he just said "but you don't have this" well, i did. i kept asking in a direct tone of voice until he finnally told me when other people have the symptoms i say i have, it is either a problem with the optic nerve, or brain stem. and when he wrote in my records that i had nothering neuro to explain my symptoms, i did not seem to be satisfied. figure that!

gee, pa drs think that they are paying too much in malpractice insurence and want reforms! and he put things in my medical records that got in the way of me getting care after i left upenns (we're the best!) "care". made it impossible for me to sue him because despite dr gri. in newtown ordering the LUAT for real (which came back robustly pos. and dx me with lyme, i was later un-dx and no one was doing the tests the should have such as the brain spect scan that "best of philly" grant t liu said in my records, i shouldn't have as well as others, because he could find nothing neuro to explain my symtoms. was told by a chirpy sandee in guest services that i should call grant's office directly and query him as to why he abused me instead of providing med care. i did call. his husky voiced receptionist tracy told me to hold and she would put grant on the phone. but then she returned and laughing told me that h could not come to the phone and would not return my call as he had "real" patients to attend too. the invisible patient for whom he recieives such valuble medical information from?

you see, it turns out i have photos dating back to '91 of me with a text book bullseye rash on my leg that i did not know i had until 3 yrs ago when my daughter was doing a class project for school and i noticed it for the first time. how i got her dx ( we were sending her to a small private quaker school , even though we couldn't afford it, because she needed to be in a small school because of problems from her then un dx lyme. i got infected again

her ped. did an article on lyme disease but did not dx her or her brother who was born with lyme symtoms. she said she sees lots of babies like my son. she also told me to throw out the tick when my daughter got bittten , less than 2% carry the bacteria and it wasn't attached long enough. how did she know how long it had been attached? i didn't even know.when the bullseye appeared, i was told over the phone it was too small to really be a bullseye rash. also, when she later developed circular rashes after playing in the leaf strewn washington crossing prescool playground where she has social conections,"just give her bendril, we don't need to see her"

my daughter went to quaker school with the daughter of anat fiengold. her best friend a psychologist, was also part of the social click as our pediatrition. NIcole Forte, a little girl whose story was posted here by SunRa so we could help her went to anat feingold's collegue at cooper hospital. wonder why i got so much animousity from her and why she elected not to tell me when i was gravely ill from this? her daughter was in the odessey of the mind program with my daughter. these were the moms that i was confiding in about my childrens health problems and my health problems and what the drs were doing to me. you wouldn't believe the things these "ladies" and "fellow moms" were doing and saying to me.

they would shut me up whenever i would say anything about the med abuse i was getting or severe, wierd symptoms i had. one mom had me cnvinced that she had more severe neck and back pain than i did from the air bag going off when she was hit head on while very pregnant with her son. her son did not have the health promblems my son had and was growing normally.

she thought it funny that my son had what our ped told me sinse he was a baby was nonspecific toddler diarhea. her son didn't have that! ha ha ha. after i got dx with lyme, her excuse for her flatulant, cross-eyed daughter not being able to atend my daughter's birthday party was that her mother had just found out that she had to have an internet nose job! the drs in the group really played on this unattractive, insecure geek of a woman.

anat never invited my daughter to her daughters birthday parties. they have a policy at the school that parents are to invite either all the children in the class, or all the boys, or all the girls. not leave a child out, because especially the younng children get hurt feellings.

her daughter was bragging about her sleep oever party for quite a while before the party. my daughter kept wanting ot go shopping for a present ffor her. i told her to wait til we got the invite. we never did. my daughter was crying the day of this girls sleep over party. she had wanted to have a sleep over party, but could not, because yrs earlier we had bought a "fixer upper" that needed lots of work, but we all got sick, i was not able to go back to work due to being disabled from lyme, so we could not qualify for a loan to do the renovations we had planned and i was to ill to do housework for yrs. maybe next lifetime my daughter can have a sleepover party.

my husband called anat to find out if we just accidently did not get the invite and anat explained that only some girls were invited and that my daughter was not one of them. she explained that she would never do anything to hurt a child. yes she would, because she did. my daughter's feelings were hurt because she ignored school policy,quite a few girls in her class and the other girls in OM were invited but my daughter and i know one other girl (a sloppy dressed girl with behaviour problems) were not invited. thre were only about 12 kids in the class including boys.

when i did get dx with lyme, the mother who was hit head on by a drunk driver while very pregnant ( or so she says) told me the dr i went to (dr g)was not a good dr. when he sent me to a local neuro that used to back up his dx, and he was mean to me and just wanted to get rid of me. she said "oh, he was nice to me!" with smiles and giggles from the other OM moms. when i asked her what she went to him for, she hesitated and then with great amusement said "i had a tiny numb spot on my gum". i asked her quite seriously if he found what caused it, and she said no, wiht amusemant and added "but he was really nice". i found out from my support group that many know and hate that man. apparently he used to know what lyme was,the newtown dr they said would sent his patients there for a backup dx so he could get them tratment, but now, for financial reasons doesn't know any more.get better aftr 6 wks i.v. abx, they would shut me up any time i brought it up. when i tested pos by pcr of my spinal fluid, but bc/bs would not deny i.v. abx treatment, (as i understood it by what a dr told me, it would be illeagal for them too - i could sue them) but instead, kept insisting they needed more info even though my neuro said he gave them 65 pages of me records. one (obese) mom in the group laughed at me and said "you don't have lyme anymore, you have early menopause. and they all laughed except the husband of a young irish mom who was the only one nice to me. her aunt (a nurse) who lived on staten island go it. despite knowing what the rash was, she still got very sick and needed months of tratment. he just had this look on his face that he could not believe how mean they were to me. his son did not return teh following yr to the school.

i know ebbyban on this board was told by a upenn dermalologist that her lyme rash was a lupus rash. i knw of someone else who sometimes posts here tht her daughter went to shapiro and was told her daughter did not have lyme. unfortunately \, the little girl went on to get very sick. my lyme support leaders son went to neimans partner and was told he had the rare whipples disease, and she ws crazy for thinking he has lyme. is very sick and has heart damage now. anyone else here go to any of these "experts"?