There's also a discussion "Phorum" at the SarcInfo website, which is already up and running. Here's the link to their list of discussion topics.

http://sarcinfo.com/phorum/list.php?f=1

I know that some people don't like yahoo, 24bit. It's hard to get used to, but it's actually quite good as far as storing files, etc., once you get used to it.

The sarc forum itself is not designed for general discussion. It's specifically for doctors and patients involved with the Marshall Protocol. Since Trevor Marshall spends so much time answering people's questions personally, both there and on the phone, out of respect for his time, we need to try to minimize our participation on his board to questions we can't find answers to already on the site.

As far as another forum goes, that's perfectly fine with me. Anyone who wants to start one, go for it. I just wanted us to have some place where we can discuss this in a reasonable fashion, and someplace my doctor can refer patients to who might be a bit overwhelmed by the Sarc site and need support. Yahoo was the best I could come up with. I also own a delphi forum and could set one up there, but again, there's no ability to store files, and I think having files for the protocol and various studies would be very helpful. However, I'm completely open to any ideas or forums people would like to start, as long as we can discuss this topic and this illness without all the strife.

By the way, I am feeling so fantastic today, I almost want to cry.

Visited my friend and she can't believe the difference in me.

Not only are my pain levels way down, but I'm extremely relaxed and HAPPY! Driving home I was thinking what a big relief this must be for my stressed out adrenals.

Also, a few new things to report. My sugar, caffeine, and diet soda cravings have stopped. I also appear to be losing weight.

I feel like I'm 16. Actually better than when I was 16. The only thing I've got to deal with is the tiredness, but today is much better than yesterday in that department. I am so happy, and grateful, and just pray that this continues, and that everyone who tries the protocol gets the same benefit I have.

See you at yahoo!

I've joined Penny's group & I'm glad I'll be seeing you all there.

Just wanted to say that the yahoo group is really taking off. Even though I had no desire to start a group, apparently it was needed. We've had several doctors join, and already 92 members as of saturday a.m.!

Dr Wright is actively posting, and Scott has returned as well.

For everyone who has serious questions about the protocol, but don't want to receive information from us, or can't understand how to use the papers that are available to download for your doctor, I STRONGLY urge you to do two things.

One, have your doctor call Trevor Marshall himself. He's more than willing to discuss the research and protocol with any doctor, and his phone number's on his site. www.sarcinfo.com . Your doctor will understand the medical lingo better coming from him than from us trying to tranlate it or from others who are merely guessing at how the drug works.

Two. Regarding the many concerns about "risks" that have been raised, please go to sarcinfo.com where these concerns ARE addressed, and the scientific research which was accepted by the FDA, is cited. You can then check the research out for yourself, but first you have to find it, and what's been posted here is not a fair representation at all of the studies that have been done on Benicar.

Benicar has been tested in patients up to 320 mgs a day, with no report of side effects any greater than that caused by placebo (1%). This is much better than most common drugs, like aspirin, etc. And the mechanism behind Benicar is understood, how it blocks the angiotensin II receptors which cause inflammation, etc, whereas drugs like aspirin are not at all well understood.

Of course caution and prudence are wise. But believe me, if you do the research regarding your specific safety questions the answers are there. Instead of raising unwarranted concerns, you could be answering them, to allay people's fears.

Everyone is welcome to join the discussions. I just urge everyone to keep an open mind and not engage in inflammatory remarks. This could really help a lot of people, at very little expense.

penny

I'd like reference to those studies, as well..and was wondering if they were long term...and the medical condition of the patients studied.

Also (and I understand if this is too much to ask) is it possible you could disclose some of the fields the Docs who have joined the MP site are in? I am familiar with AW's work..but was interested in the specialy of other Docs participating.

Thanks so much,
Mo

With the utmost respect, I'm not looking for anyone to prove anything..it's just the first question posed by my own Docs, as something to simply consider.

Not to make or break any of the interesting ideas put forth.

Anyhow, I did want to point out that you have a minor, but rather important, error in a couple of your posts there -- #1 and #15. You gave the SarcInfo website, but it's a "dot-com", not a "dot-org" group:
www.sarcinfo.com

Folks won't be able to find it unless you fix that mistake. I'm not sure if editing is possible at Yahoo, though? That's why I've been afraid to dare to post there because if I can't edit my posts a ga-zillion times, then I don't dare post anything.

That's also why I'm using this topic here at LymeNet to point that mistake out to you in your Yahoo posts -- because I'm too afraid to try to post there. (I'm a real computer-klutz, no self-confidence at all about learning new things pertaining to the PC world.)