troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
If I won the biggest lottery in history I would start the most advanced treatment center for Lymies ever known...we would run proper trials and have care for the indigent and those that truly are in need.
I would travel across the US helping those in need...speaking at gatherings...changing the atmosphere that enthralls us today.
That would be my gist to you.
To my family I would give them there father and husband back.
Trout
------------------ Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! Iowa Lyme Disease Assoc. www.ildf.info
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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I to have such a dream,a part of every day. Much like yours, and people stop living the pain and sufering like so many of you and my wife.
Maby someday we will meet you and I.
A sparkle in your eye, a smile on your face when looking across the water.
LYMENET MUST HEAL, good day.
STEVE
Posts: 81 | From Alpena, MI., USA | Registered: Mar 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Wow. It gives one hope just to think of such things.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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SentByHim
Frequent Contributor (1K+ posts)
Member # 3998
posted
But while the place was being built I would be in my motor home visiting all y'all as we criss crossed the US OK so maybe I've given this some thought too.
Sent
Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Oh, Trout. Your kids have a great dad, and your wife has a wonderful husband.
But I hope you win the lottery anyway.
And Lymenet needs you. Hang in there. Get to feeling better soon -- in all ways.
posted
Ahhhh, trout, such a sweet thought! You have me daydreaming of how GREAT that would be. We'd make pretty good millionares, wouldn't we? After all, most all of us are down to earth people who value life and have their priorities in order!
This is what I would do:
The first 500,000 dollars would go to my parents. It's the least I can do to thank them.
I would then open a trust fund for the education of my younger sisters $100,000 to each of them.
With the next five million, I would open up an office in Mexico to coordinate the following: Flying medical experts in from all over the world, so they can teach Latin American doctors the latest on treatments on several diseases. (Lyme disease, Parkinsons, MS, etc). Together with this, I would set up a scholarship for third world country students to study medical school in either the US, Western Europe or Israel - with the condition that they'd return to practice medicine in their home country.
I would also pay in full the creation of a website explaining the basics of Lyme in the 10 most spoken languages of the world -in order to be able to reach out to more people.
Next five to ten million dollars would be invested in real estate - in order to diversify assests and continue to have an income through the years.
At least $250,000 dollars would be sent to the church I grew up in, to pay for mission trips for young people.
And another $250,000 dollars would be sent to the military academy in Indiana that I spent so many wonderful summers at. Where young minds are shaped to become the leaders of the future.
With another million, I would probably buy and decorate a house for myself in Washington D.C.
I would then invest $100,000 dollars to go to graduate school.
And after all that I'd open a publishing company.
I have come to the conclusion that I don't need more than $40 million dollars. Anything more than that, would be plain greedy.
In the meantime, I'll be more than happy if I'm able to make my monthly car payments and keep healthy!
Posts: 712 | From Ottawa, ON, Canada | Registered: Sep 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
WOW Stella, I am impressed!
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Yep, I have my lottery winnings all allocated to Lyme causes. Just need the winning ticket now. There was a big lottery winner who said she had MS and planned to finance research on the disease. But did she really have Lyme?????
What I can't figure out: Lyme is in all those rich NE suburbs. Why don't the folks there get Lyme? Don't they ever set foot outdoors? Or do they all get treated at the early stage?
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Boy is that a good question, Lou!! I wonder that all the time.
I live in an area with its share of wealthy, and they seem to be teflon coated for tick diseases. But I think many people DO get lucky enough to get early treatment.
I have one good story on that very account. It took me 8yrs to find out I had lyme. Typical story for lymenet, but crazy in my neighborhood.
Towards the last few years, as I got much worse, I consented to work with the psychiatrist who had been recommended to me over and over (since there was nothing wrong with me.)
During the time I worked with him, he got acute lyme disease (rash,fever...the whole shebang) He got treated right away, and recovered, no relapse since. At the time, he said to me....
I thought of you immediately, all that you described to me, and how you look when you walk, I finally have an idea of what you're going through....and I said, ya, too bad it's not lyme...then I'd have a name for all my misery and a way to get better. THE IRONY OF IT ALL!!!!
And then there is misdiagnosis. My thoughts go to a young man in our heavily tick infested area, who suddenly got sick in his early 20s. He was diagnosed with MS.
Since discovering I had lyme, my husband called the mother of the young man to share his experience with me and that many who had MS actually had lyme, and that maybe testing through a good lyme lab might belpful.
She was not responsive, and I believe hurt or indignant by the call. My husband felt terrible that he'd hurt her in any way, saying he was just hoping he'd help.
I think many are traumatized by the many mysteries of LD and the ensuing medical horror stories.
posted
Your husband did the right thing. Isn't it surprising that some people don't respond positively, though? This has happened to me. My feeling is that if they aren't already out looking for a second opinion, they might have closed minds. But I keep trying now and then.
My feeling about rich and powerful people is that they are more likely to be taken seriously than the rest of us. Where we get the brush off, they get a diagnosis (maybe the wrong one) and get treated promptly. That is sure not what happened to me.
Posts: 8430 | From Not available | Registered: Oct 2000
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I knew I must be doing poorly lately when I was having trouble using my imagination!
I am going to give it a try now.
If I won the lottery, I would pay back those who have helped me.
Pay the medical bills owed.
Use the funds to get well.
Get a dog.
Get a vehicle and camper and travel in the tic mobile spreading the word at campgrounds and in schools.
It would be more fun if I had a co teacher with me.
OK That is a start. Now I just need to buy a lottery ticket.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Lou, I got your point about the rich and powerful, just got sidetracked with my response. Sometimes I have a hard time getting toe THE POINT!!!! LOL!
But one has to think of Amy Tan, for example. Not that she's THAT rich or powerful, but she too spent years and much money getting to her diagnosis. Maybe not as long as some of us tho....
I was hoping when she came forward that her diagnosis would lend credibility to LD. It's just taking too much time.
posted
up for kam
Posts: 661 | From NY | Registered: May 2003
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
People get Lyme in the rich NE suburbs. I'm from Long Island, and my congressional district is one of the wealthiest in the country (I studied it for an elections class).
It took me 17 years to get diagnosed. That included going to the ER and a dermatologist with a bulls eye rash at age 12, and to a heck of a lot of doctors throughout high school.
As far as the lottery, I would give a heck of a lot of it to organizations and campaigns working to get people elected to office (from state legislators to the White House) who would make sure we continue to fund R&D around lyme and many other illnesses, and people that would work towards finding a way to get every American covered by a good health insurance system.
Who knows...maybe I'd run for the Senate...
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Lymewarrior, Now, I just need to remember to buy a lottery ticket!
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Just checking to see if anyone has remembered to purchase a lottery ticket this month. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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