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» LymeNet Flash » Questions and Discussion » General Support » Hey; there may just be a miracle going on....

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Author Topic: Hey; there may just be a miracle going on....
neurochem1
LymeNet Contributor
Member # 576

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Four years...

We've been working on this one for 4 years now-could it really finally be our time?

Was it really that long ago that we started this phase of our journey in lymeland...

Is it just me, or does it seem like so much longer?

Those were the early days of my initiation into the world of Lyme Activism; the rally for Joe B. was my first, and I had just found out that my LLMD's were being attacked.

Get this: I came to that rally, and decided to join some online groups for Lyme to contact whomever it was that needed to know about the new charges against the other doctors. I came online to connect with whomever it was that "took care of it"..lol

I really had some stupid idea that all I needed to do was to let the leaders of this imaginary group know what was happening to one particular doctor, and they would "handle it."

OK, it is kinda funny now...but hey, I did find that group. I just didn't have a clue back then that I would also need to be part of it. It had several web sites and hundreds of people's names; lymenet, lyme-aid, actionlyme, sci med lyme; and hundreds of private emails, phone numbers, and snail mail addresses.

And together, we helped to defend several doctors. We raised money; held rallies, lobbies, got hearings, and no matter what our differences were, we were all in this together. We still are, no matter where any of us may be.

Many people are very tired from years of doing this work, and lots of us are sick, but look at what is happening right before our eyes...

We may, at this very moment, be the reason that someone will have a doctor to treat them tomorrow. We could be the reason that the next physician does not undergo the chilling effect of being notified that they are being "investigated." Can you even fathom what may be happening right now?

We are saving our doctors, saving our own lives, and preserving that salvation for the next person that will stand in our shoes. We are creating a shift in a system that will have an impact - not just for every patient with lyme, but for any patient or their doctor! We have helped create better method for evaluating physicians that will allow more fair process, and one that is far more worthy for ANY citizen of the United States of America.

So for everyone who is tired, or sick, or just plain sick of having to work so hard to get things done for those suffering with Lyme disease; please come.

Be there to own your reward - for all your hard work, your dedication, your endless hours of thankless discussions, your continuous cash infusions, your mailings, your phone calls, and all the hours that you had to feel that fire in your gut.

Lets all stand together again tomorrow, and with a little grace from the universe, this is one (of many) finish lines we may step across together.

I can't speak for any of you, but if we do cross it, I'm not looking back!

Come to the rally tomorrow, and once and for all, help to finally end the free reign of totalitarianism of the OPMC.

The details below are from Ellen - I'll see you there.

Sincerely,
Regina
[email protected]


For more info, read all of Ellen's posts

Dear Lyme community,
Please come to the rally tomorrow in Downing Park, Yorktown, NY, at
9:15am - no matter what state you live in.

Many very sick people have spent several years working to get
legislation to protect our medical care by stopping the OPMC from taking
the licenses from our doctors.

We are on the verge of passing this legislation. We finally got it out
of committee and hope it will come to a floor vote next week before the
legislature adjourns.

We have an opportunity to get press for this tomorrow in Downing Park.
That should help us get the bill passed next week. It should also give
us a good head start with the governor.

BUT a poor showing at a press conference could backfire pretty badly.

SO IN HONOR OF THE MANY PEOPLE WHO SPENT YEARS WORKING ON THIS AND ARE
NOW TOO SICK TO COME, PLEASE SHOW UP TOMORROW AT THE RALLY/PRESS
CONFERENCE.

DIRECTIONS:
Directions to Downing Park in Yorktown Heights, NY (Yorktown Heights
is part of the town of Yorktown)
1) FROM THE SOUTH OF YORKTOWN:
Take the Taconic Parkway North. Take the exit for Yorktown 202/35. (This
exit is after the exit for FDR State Park)
At the end of the exit make a right turn onto route 202/35.
Pass the bus entrance for FDR Park.
The entrance for Downing Park is next on the right and it is marked.
Parking is obvious.
2) FROM THE NORTH OF YORKTOWN::
Take the Taconic Parkway south
Take the exit for Yorktown 202/35
Make a left at the end of the exit.
Drive under the overpass for the Taconic Parkway
Pass the bus entrance for FDR State Park.
The entrance for Downing Park is on the right and it is marked. Parking
is obvious.
TRAIN INSTRUCTIONS.
Take Metro North train to Croton Harmon stop. Take a cab to Dowing
Park, 8-9 miles.


Posts: 520 | From New York | Registered: Jan 2001  |  IP: Logged | Report this post to a Moderator
neurochem1
LymeNet Contributor
Member # 576

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From Ellen:

The legislative session ends on Tuesday. The bills are still in committee. BUT,
they could come out and be voted on and pass before Tuesday - as
crazy as that might sound.. We need to go all out to let them know we
are not going to go away.
We have an EXCELLENT chance of getting one of the bills if we do.


PLEASE show up on Friday morning. I will send out driving
directions and train directions later today. Also, please keep trying
to generate as many calls to Pataki as possible. If there ever was a
time for us to go all out, this is it!!!
Ellen


Posts: 520 | From New York | Registered: Jan 2001  |  IP: Logged | Report this post to a Moderator
lymemomtooo
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Ellen,
Our prayers are with you. We all owe you and others a great debt of gratitude for your diligence and antivism. Lymemomtooo

[This message has been edited by lymemomtooo (edited 18 June 2004).]


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Ann-OH
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I sure wish I could be there! I will be in spirit honoring Betty Gross, the World's and New York State's Best Advocate for Justice for Lyme disease patients and their doctors who did her part to help and sadly, is no longer with us.

I think you will have good weather and wish you a great turnout.

Ann - OH


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Lymetoo
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quote:
Originally posted by lymemomtooo:
,
Our prayers are with you. We all owe you and others a great debt of gratitude for your diligence and activism.


AMEN!

------------------
oops!
Lymetutu


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3greatkids
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Yes,THANK YOU!! Wish I were closer and participate! We are in spirit down here.
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minoucat
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Thanks so much to all of you for all your work.

I've had family and friends write to Pataki from all over the US and from Europe.

Hoping for the best, for all of us.


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MammaLyme
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Thank you Regina for all the tiresome work that you do. None of us are well enough to come to NY but wish you great weather and success. Take care of yourself and you are great! Lovette continues to be in bed with such pain in her back from two back surgeries that left her helpless.

Way to go!


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Melanie Reber
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We are all so proud and inspired by all of your hard work in NY!!!

Please let us know how it went when you have time...

Much love to each of you,
Melanie

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


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neurochem1
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Hi there everyone,

I did get there and am very glad I did, though I have been down for the count since friday until this morning.

It was very good to see those who were able to attend; it is also wonderful to hear the passion and committment from legislators speaking on our behalf...that alone is a wonderful success.

mammalyme; I remember from a few years ago all that you did and the material you conveyed to me regarding this issue and others; thanks for your neverending dedication, and Lovette's as well. I was very disappointed that I could not come this June again, but I will keep trying and sooner or later I'll see you in person.

Mel; thanks for all your work; I even got your email action alerts .

Anne; I was fortunate to be able to meet by phone and be in contact with Betty for the very first lobby and when I did the legal defense fund advocating; I and 3 other people organized that very first lobby which included other states. Betty was a wonderful help, a lovely person, and a remarkable lyme advocate. She and many others were certainly instrumental in pulling such a large event off.

To all of you who are getting others to call, keeping up the threads, thanks so very much. Ellen is likely going to look like popcorn by tomorrow, so all your help is doing more than you know.

I've not been in any kind of real shape to do all that needs to be done; please get this out to all the boards; lovey, lymeaid, sci med; whatever.

Since there's been a few entries; I'm reposting the latest action alert as issued by Ellen on Saturday.

Please feel free to respost the below information everywhere you can:

Please regard the next 30 hours or so as a true Lyme emergency.

The OPMC Reform bill , now numbered S4148, is out of committee and can
be brought up for floor vote in the Senate before it adjourns tomorrow.

HOWEVER, there are many other bills waiting to be voted on , so getting
our bill brought up for a vote will be very difficult. Monica says it
will be like getting it through the eye of needle

That means is that every single Lyme patient and doctor across the
country . or world, needs to act NOW.

A) FOR ALL LYME PATIENTS IN ALL STATES:
Please call and email Governor George Pataki right away. Telephone
messages can be left on his answering machine.

Both telephone and email messages
can be as short as "Please pass S4148 to reform the OPMC". Leave your
name and address on the phone messages..

Telephone:
518-474-8390

To Email The Governor:
Click on http://161.11.3.75/
Scroll down on the page this brings you to, and there is a form on which
to submit your email.

B) FOR NEW YORKERS ONLY:
1) HANNON: Email Senator Kemp Hannon and call and leave a message on his
answering machine.

Messages should thank him for sponsoring S4148, the OPMC Reform bill,
AND urge him to have the bill brought up for a vote before the end of
session. GIve name and address.

Email:
[email protected]

Phone:
518-455-2200

2) BRUNO: Call (answering machine) and email Senator Joseph Bruno. Urge
him to bring S4148 , the OPMC Reform bill , to the floor for a vote.
Leave name and address.

Telephone:
518-455-3191

Email:
Go to www.senatorbruno.com/send_email.asp There is a form on which to
send an email.

3) PATAKI: Please call and email Governor Pataki. Give your name
and address.

Telephone:
518-474-8390

To Email The Governor:
Click on http://161.11.3.75/
Scroll down on the page and there is a form on which to submit your
email.

Thanks,
Ellen
For more information see www.healthlobby.com or www.lymeinfo.net

[This message has been edited by neurochem1 (edited 22 June 2004).]


Posts: 520 | From New York | Registered: Jan 2001  |  IP: Logged | Report this post to a Moderator
   

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