posted
Im supprised im still breathing, well barely. Ive been so confused i dont feel safe to care for my 5 kids. I am so weak and in such a zone so confused, Ive even written letters to my kids n husband because it truely feels im dying n im so scared. No dr. in my area WA State will treat past 4 weeks, and i am too weak to travel, not to mention the cost of paying for treatment n travel would put my family out on the streets n ide die myself before ide let that happen. So whats a person like me to do, but rot away i guess. Im so scared. Im so weak n out of my mind. Im so scared. Barelybreathin
Posts: 158 | From Vancouver,WA 98682 | Registered: Aug 2004
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Hang in there, my dear. I just found out about an LLMD in Tacoma that my wonderful LLMD in CA is referring people to. I have to get his name and address (wrote it down, then lost it, duh) but I'll email it to you as soon as I get the info, probably tomorrow.
We WILL be able to find an LLMD that you can get to -- I'm already formulating some backup plans -- so don't despair.
The dreadful depression and fear you describe is part of the disease -- as well as a perfectly natural reaction to a very difficult situation. It will go away with treatment, and you will get treatment.
posted
Those are great words by mino and those feelings are part of the disease.I can relate,Ive felt like that many times.Hang in,your not alone.There is hope.Joe
Posts: 225 | From mass. | Registered: Mar 2004
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi,Main thing is to hang in there ,things allways have a way of changing.Sometimes when I am the lowest in the evening ,I am shocked in the morning to find everything looks so different and better. I find ways to treat myself, even taking farm store tetracyclene,and now animal benzathine Pennicilan shots. So there is allways a way to improve ,sometimes it is hard but has to be done. MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
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once bitten
Unregistered
posted
also to travel check out www.angleflight for free flights for doc appts. not too much paper work and usually small planes. good luck. drink lots of water, salty drinks too when you feel woozy. thats a drop in BP. Pepsi or coke, and rest a lot. I call this the disease of a thousand deaths,and felt there many times at death's door but I got a lot better. You will too. call in all the reinforcements you have, and keep posting. ask for help, and talk to us.
[This message has been edited by once bitten (edited 16 August 2004).]
posted
I'm sorry to hear your horrible experience. If I was in such a situation, I'd consider a slf-treatment course, lookin for ways I coud wrangle the right drugs. If you do this, though, you've got to put some effort into it, when it's not so easy, and you'd need at least one trustworthy "support person" I hope you manage to find a good doc there- did you try posting a request on "seeking a doctor" section of this board? In any case, good luck! DS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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posted
Sometimes we do have to hit bottom before we can head for the top. Sounds like you are there. Know that it is now time to start up!
I have been fighting this disease for quite some time and it does get so discouraging.
Yesterday was my first day of total disability. My living and medical expenses far exceed my income. I came to the realization that I must trust God to take me through this valley. I have fought hard and I can not do it alone.
I encourage you to seek comfort from God. He has promised to never leave us or forsake us. I will pray that He will touch you in a special way and meet all your needs; mental, physical, and financial. I pray for a LLMD near you that can walk with you down the road to recovery. I pray that someone will help you with your children.
I pray the prayer of Jabez on a daily basis: OH THAT THOU WOULDEST BLESS ME INDEED, AND ENLARGE MY COAST, AND THAT THINE HAND MIGHT BE WITH ME, AND THAT THOU WOULDEST KEEP FROM EVIL, THAT IT MAY NOT GREIVE ME! I Chronicles 4:10
That pretty much says it all. We must ask in earnest and expect to receive. May you feel His presence and comfort.
Posts: 111 | From Tick Country | Registered: Jun 2004
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I live in Washington too. I went through the Ducks one by one so I would have a doctor close by to do the tests and prescribe what I needed so it was covered by what my out of state LLMD needed to have me do. My LLMD is in NY and saved me by knowing what to do and the Washington doctors were horrible, it was like they didn't care. and I gave them the best education I could. They just are deceived. It is a political problem.....BUT There are answers and you will find one. JUST BE PERSISTENT and go where there is the most hope.
I think the Doctor that MINOUCAT has come across may be very helpful for you. A few years ago, there were NO Lyme doctors here. I knew more than them about the subject, some of them really were sincere and wanted me to tell them how I was getting better. It was enlightening And it was frustrating.
We are all fortunate in some ways though. My LLMD is in New York and he has helped me from there. He saved my life. And still is working with me. Believe me you just need the right one. It's like the adage "when the right one comes along, you will know it."
I am better, but I did some radical things too like testing for all the layers of the diseases (Babesiosis, Bartonella etc) from a reputable lab...getting treated for them ...getting the proper amount of sleep...getting on the proper amount and type of antibiotics, getting the mercury out and taking products to bring the levels way down. It is a process and DON'T EVER GIVE UP FIVE MINUTES BEFORE THE MIRACLE. Alot of us didn't get antibiotics before the 4 weeks. What these doctors are really saying is that they don't have the guts to help you because God forbid they may have to prescribe more than the Board of Medicine may want them to. (It is for this reason, that you need a LLMD)
EMAIL ME TOO, IF YOU'D LIKE...I CAN ALSO GIVE YOU MY PHONE NUMBER.
PAINTEDRABBIT
[This message has been edited by nancys (edited 17 August 2004).]
Posts: 224 | From Seattle, Washington | Registered: Jan 2002
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posted
MINO, Any luck with finding the tacom dr.s name n number? I sure pray your right about me getting treatment, not always sure how to hang on, but to keep breathin n i usually dont want to. Thanks 4 your help.
JOE, Thanks 4 the encouragement.
MADDOG, I use to feel better in the morn too until recently. Now i wake feelin the same, barely walkin, thinkin, n breathin. I have to admit im terrified of taking meds that are for animals or from a pharmacy out of US. Im afraid of gettin the wrong thing n haven a bad trip or allergic reaction. Gosh imjust a ball of fear. Pathetic i know. Thanks for Your support.
ONCEBITTEN, Thanks 4 the info and support.
HAPYCARLESSDAVE, Thanks n yes ive posted 4 a doc in my state.. still waiting...Ill look into self medicating, but not sure where n how to get reliable n safe meds.Kinda scarey. Again thanks.
JESUSISLORD, Indeed he is Lord and is the main thing that keeps me hangin on if only by a thread. I have gone up spiritually, but not sure if ill ever get meds to pull up physically. Thank you 4 your prayer, I pray 4 you also n for the others on here also. Godbless.
NANCY, If i could travel out of state 4 a doc I surely would. Im glad to hear that you n so many here have access to LLMDs. I truely am,though i must admit a bit of envy lol sorry. Thank you for your support.
GOD BLESS YOU ALL IN HEALTH, LOVE, AND LIFE!
Posts: 158 | From Vancouver,WA 98682 | Registered: Aug 2004
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SentByHim
Frequent Contributor (1K+ posts)
Member # 3998
posted
There is a song from the 80's from a Girl called Kate Bush, the song is called Running Up That Hill, kind off the beaten path but here is the Chorus:
And if I only could, I'd make a deal with God, And I'd get him to swap our places, Be running up that road, Be running up that hill, Be running up that building. If I only could, oh...
But alas I can't swap places with you. I can only say I that I have been right there where you are, felt the utter dispair, both real and imagined. All you can do is take one day at a time and KNOW that there is an end even if you can't see it. Trust that you can make it through it, God will see you through it, surrender to trust in Him. It is easy when things are going good but now I KNOW it's SOOOO hard to do. I mean what good is an invisible God when the rent is do??? You will be supprised how in retrospect you will see Him more than you can now in the midst of it all. Remember you have this firm promise, I'll never leave you or forsake you.
So just as you are "BarelyBreathin" the air you can't see BarelyBelivin will do too
So "Be Bold, be strong, for the Lord you God is with you, wheresoever thou goest"
Sent
[This message has been edited by SentByHim (edited 20 August 2004).]
Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003
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I too can really relate to everything that you're going through and just wanted to let you know that you couldn't have come to a better group of people for support...
I have little ones at home too and I can't tell you how many times I've wondered how I'm going to make it through the day because I am so exhausted and consumed by this terrible disease. I, like many, don't have a positive test result and the constant fear of death is often overwhelming-to the point where I am struck with these panic attacts. You aren't alone and we're all here to listen and help.
It's terrible that there isn't a single LLMD in your area that can help you-but hopefully you will find a lead in the doctor search.
Please keep us posted and feel free to drop me a line!
Posts: 90 | From NJ USA | Registered: Jul 2004
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posted
I hear you. It is not easy, have always said this AIN`T for whimps. I many days since last yr. having either WNV or bout that caused another co-infect. Have been battling like yourself & many, feeling like we have tryed so hard. I have been in many test studies,too many doc`s & changes with ins.Only getting worse.
Feel inside many times like I am on a slow torturing death route.
I worked as long as could to help others at pain clinic. It helped me too. I do my best to laugh & keep others around me doing so when I have others around. I live alone, not sure which is worse. Was sick not knowing what was wrong trying to raise my kids,& dodge a stalking ex on top of it all.
I have made out my grateful list,laugh list, on days I feel down. This is not just depression, it is wondering how much longer can 1 keep fighting with very small amount of support. No 1 except us who have lived with chronic illness longer than anyone should. Used to have lots fighting spirit, that is even hard to muster when so ill & weak anymore.
I send you my blessing,support that maybe not tomorrow but there will be better days in our future. It is all we can work towards.
Try to watch happy stuff, think of the fun times, hope for the best.No magic words here. Just understanding.....Take Care, Loads of Huggggss
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Barely, try this instead:
British Columbia/Vancouver Area: Hyperbaric Care Center, Unit 112-250 Schoolhouse St., Coquitlam, British Columbia, Canada V3K 6V7 877-520-6867 (toll free), 604-520-6867 Cost: $100 Canadian ($65 U.S. dollars). Mulitplace chamber holds 16 people or 8 children with parents. Hood or mask purchased $135 Canadian ($88 U.S.) and HBO clothing $35 ($23 U.S.). Within walking distance of many restaurants. Housing available at reduced rates. Executive Inn offers free shuttles to clinic.
I've been to that clinic on vacation. If you can't afford full price I believe they will work with you. It'll help your lyme a lot. They also have other good modalities including hypothermia with peat baths, infrared saunas, vitamin/mineral therapy, etc.
Posts: 2276 | From united states | Registered: Jun 2004
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