Am relatively new to Lymenet. Started looking around on the net after reading a chapter of one of Amy Tan's novels in which she stated that she had a test called a Western Blot. I was tested with just a standard ELISA back in Feb. 2003 after I had severe hypertension, double vision and headaches. Have declined pretty rapidly then my sister told me about this Western Blot. I thought Lyme was ruled out for me but I kept having these episodes of mass confusion and getting waaaayyyyy lost!!! Ms. Tan mentions this in her book.

This website and an acquaintance led me to Dr. J which I'm grateful for. Now I know I'm not crazy and all this crap that's been going on for 3-4 years is not just in my head.

Which book of Amy Tan's talks about the Lyme? She's a member here too! So you're "home" for sure!

Here's that hug you've been needing all day!

------------------
oops!
Lymetutu

Welcome to Lyme Net!

I am warm and fuzzy... just what you are looking for!

Or did you say you were looking warm and for "friendly"?

I am happy to see you post here and hope you will join in any old time.

Dr. Jones... bless his heart.. is a magnificent piece of work... isn't he?

And, no... you aren't crazy.

Well... maybe kinda crazy... but you also have an infectious disease that makes you feel crazy sometimes.

I am sooooo glad to hear you read Amy Tan's book.

When you get time.. please let me know what it is about! I told her I was going to read it.. but alas.. I have not taken time to get down to it yet.

And don't be telling her I haven't read it! OK?

I wouldn't want her to think I don't appreciate all she does to help us... not at all. But if you could slip in a line or two on what it is about... maybe I won't sound so confounded stupid if I run into her again...

hehehe

OK.. another thing I must mention...

Some of the folks here.. well.. they are kinda weird.

We've got a girl who lives in a Cave.

And a fellow who thinks he is a dog.

And a guy who thinks he is a tree... and another one who thinks he is a fish (trout).

And worst of all.. we have a girl who runs around here dropping her drawers for the whole world to see!!!

There are some other strange ones.. but you will see we still love them all.. and we care about each other.

Let us know how we can help you.. and also feel free to help out the others with their questions.

I hope you are feeling better soon! Little baboon!

PS-

No, I am NOT crazy...

Well... maybe a little! HA!

I can't remember the name of Amy's book....what else is new?? But what I do remember is that it was about her life and her relationship with her mother. I'll get that title from my sister Lymetoo.

Tincup, thanks for making me laugh. Needed it!!

If somehow it can go thru the grapevine to Ms. Tan let her know that she helped me to find out that I have Lyme too. My sister was very persuasive about pursuing the issue.
Of course that might have something to do with her unfortunate experience of being a passenger in the car with me while I was driving in Jacksonville FL and got lost. She being the directional challenged individual that she is barely managed to handle the situation. My memory loss from that is astounding so I can only relate bits and pieces and she fills in the rest for me, which could be a bad thing........

glad you found this site. this is the greatest group of sick people you will ever find.

never to sick to share a kind word to another sickie.

i see two of my favorite lymies have already greeted you, they are especially great.
shhh, don;t let them know i said that though.

believe me, we all understand the range of emotions you are feeling at this moment, so anytime you have questions, and there will be many, just ask.

you will be pleasantly surprised at just how many people can honestly relate, and actually share GOOD advise, or just a GREAT shoulder to lean on.

again, welcome!

You have aligned your self with a group of people who in one word are WONDERFUL!!!

They have been so helpful to me and my son in law who has this disease. They directed us to the best doctor (I think ) who COULD help my son in law if my son in law wanted to help him self. He is so angry that his health was taken from him..

So my advice to you is to stay positive and research and learn as much about this disease as possible and do exactly what your doctor tells you to do and MORE!!

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

How to Search Courtesy of Danq
LymeNet Links for New Members
Newbie's Lingo

Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs

Western Blot Info
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help
GreatSite

No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease

Canlyme MAG

Help with Meds

Vitamins you should Know

I'm really sorry that you're going through this right now, but at least you have some people to go through it with!

Everyone here on Lymenet is SUPER helpful and sweet. So . . . you never really feel alone if you remember they're here!