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There is one more person that "I" (especially)/"We" as Lyme patients would benefit from if you would call. Her name is Diane Ryan. She is the case worker assembling/gathering info on my case from the Office of Edward Cotton, who is the Assistant Commissioner of Human Services/Director of DYFS for the entire state of NJ.
FOR ANY OF YOU WITH CHILDREN WHO HAVE AUTISTIC SYMPTOMS/ADHD ETC - WHICH IS MADE WORSE FROM LYME OR CAUSED FULLY BY LYME - PLEASE TELL HER THIS. DYFS WORKERS/DOCS ARE SAYING MY SON IS ONLY AUTISTIC - NO LYME. Please go into detail about the neuropsyhiatric and all other symptoms the Lyme causes these kids, the blackouts, seizures, and everything else.
If you have copies of the letters that you sent elsewhere, can you fax/email them to Diane Ryan (contact info below).
Although the governor's office receiving all the calls was great in that it "MADE SURE NJ GOVERNMENT RECOGNIZED "LYME" AND MY CASE IN PARTICULAR AS AN EMERGENCY" - Diane Ryan is the specific person right now pulling together everything on my case for the full investigation.
Can you please contact her with your stories about Lyme disease (length of treatment it takes, the entire variety of illnesses/problems it causes - the fact that you all know that the physicians I went to are really the best ( Dr J- CT/Dr. F - NYC/DR B - NJ), etc. The fact that Lyme cannot always be cured, but can go away and come back, but antibiotics is the best thing out there right now, etc.
DYFS IS THE AGENCY THAT REMOVES KIDS - SO HOPEFULLY NOONE ELSES KIDS WILL BE REMOVED OR WILL be threatened to BE REMOVED FOR LYME TREATMENT - AND THE "IGNORANCE OF DOCTORS REFUSING TO ACCEPT LYME" can be acknowledged.
If Dr. J in CT is your child's Doctor - can you talk about him.
Noone has gone to Court yet this week - I believe that is FULLY DUE TO ALL OF YOU. I have been given the answer that "the DYFS attorney was on vacation this week". I don't think they know what to do at this time.
I really think the next "Lyme Mom" in NJ will not go through this now - the way I have.
Thank you, Sandy
Diane Ryan ph: 609-292-4933 fax: 609-984-0507 email: [email protected] (you have to put "Sandy Mishky Lyme Case " in subject line) address: Diane Ryan Asst. Commissioner Ed Cotton's office 50 East State Street 7th Floor, CN717 Trenton, NJ 08625
Posts: 69 | From Highland Park, NJ USA | Registered: Jul 2004
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