Any suggestions other than taking him info (Dr. Burrascano's paper and When to Susspect Lyme) as well as a list of symptoms I'm having/have had that would indicate LD?

I'm nervous and don't want him to blow me off. I don't think he will as he actually tested me for Lyme of his own choosing a few years ago and really does believe I have something going on that is not "just in my head".

Anyway, I'd love a little pep talking. Thanks

i think taking all the info is a good thing

None of the LLMD ( lymeliterate medical doctors ) that we see are hardly on any list of specialists in GP offices. Because, they keep a low key and devote their lives to this disease, because they actually know what they are doing. It SHOULD be opposite, it really should , we should all be able to go to our GP's

and say LOOK .. I think I have lyme, send me to a LLMD, but its not, hence all types of proposed legislation, etc.

The only way to find a proper doctor to care and treat your Lyme is to get one that IS a LLMD. Did you post in seeking a doctor yet?

No matter what the GP says, I am going to the LLMD but my mom (who is paying for all my medical) wants me to at least talk to the GP first and see what he says.

My mom finally read some of the stuff about Lyme and agrees that a lot of it sounds like me. So at least that is good. Thanks for the encouragement.

I saw over 35 doctors in California including doctors from UCSF Medical Center, UC Fresno Medical Center and Samsun clinic in Santa Barbara while trying to find out why I was able to work one week and not the next.

While in Southern CA, I needed a new PICC line installed. I went to 3 hospitals before finding one who could do a PICC line.

At least at Pomona Valley Hospital, they were interested in learning more about lyme disease and keep coming in while I was receiving an infusion while waiting for the PICC line installation.

I was in the emergency center two nights receving the infusion and both nights I had several docs coming in and out asking questions about my treatment for lyme.

They kept saying that all the knowledge they had for lyme was to give a few weeks of doxy.

I will be sending them information on lyme disease. I wished I had the info with me at the time.

Samsun Clinic in Santa Barbara did have an infectious disease doc that was open to lyme disease and called SAm Donta for consultation on the subject.

I also saw an IVY League Doc in San Luis Obispo County who said he was lyme literate.

But when I showed him the test results from Igenex Lab, he did not know how to read them.

He was more concerned that my LLMD was prescribing more abx for me than the norm of 22 to 6 weeks. He had no other suggestions on what to do to help me re gain my health.

Unfortunately, I am not the exception and the rule when it comes to lyme disease.

Unbelievable..isn't it!

If I can be of any help let me know.

I continue to work through my pediatrician because they are getting educated through this process. I would really like for them to know more about this disease, so when the next child comes along they aren't working with outdated information/opinions on Lyme.

My daughter just had her blood drawn for the Lyme and co-infections tests and I'm making sure her ped gets a copy of the reports.

It will be interesting to see what they think of the reports vs what Dr. J has to say about them.