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» LymeNet Flash » Questions and Discussion » General Support » Please help this girl!

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Author Topic: Please help this girl!
suki444
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Hi

I have been involved in setting up a website to help Wendy, a friend of mine that is suffering terribly from the effects of Lyme disease. See http://www.wendyslymefund.co.uk

Wendy urgently needs money for IV antibiotics etc. as the National Health Service here in the UK will not give her the treatment she is entitled to.

Please can you visit the website and make a donation, even a few pennies/pounds leftover in a Paypal account for example are much appreciated as it all adds up!

I wouldn't normally ask but this girl needs help so urgently - please can you also pass the email onto any friends or contacts who also may be sympathetic.

Many thanks,
Emma


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Tincup
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Hey hey Suki...

It is very kind and thoughtful for you to help this beautiful girl.

I wish her the best.

Quick question.. for us dummies...

How much is a "pound" in American dollars? Or whatever that funny looking "f" is before the number?

In other words.. can you tell me how much
20,000 "things" are?

Thanks!!!


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jolbell
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Hi Tincup,

I am also involved in raising funds for Wendy, and helped set up the web site. She really does DESERVE our help!! She helps advise and reassure other Lymies every day, even when she is so ill, through Eurolyme. She also tirelessly campaigns for better awareness and helps raise funds for UK Lymies. She is a wonderful friend and I am very lucky to know her!!

"How much is a "pound" in American dollars? Or whatever that funny looking "f" is before the number?"

A GBP or `�` is around $1.75.

"In other words.. can you tell me how much
20,000 "things" are?"

�20,000(GBP) is equal to $35,000.

Hope this helps!!

Thanks to anyone out there who would e prepared to donate even a couple of dollars/cents!! Every little bit will help!!

Jo.xx


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chainsaw joe
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Hey Emma,I am very sick with lyme and trying also to get on IV as you know.I will send a little something.Having to fight this disease is bad enough,having to fight for treatment is a crime.Joe
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suki444
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TINCUP :

Hi!
Jo is quite right in her currency conversion...I know it sounds a lot but the idea is to get as many people as possible to donate so it all adds up.

We have already raised $3400 from website donations, friends of Wendy doing sponsored walks & charity auctions etc!

Basically even a couple of dollars donated from a Paypal account is much appreciated!

JOE:

Many thanks!
I know it is a struggle for all of us to get the proper treatment and I know too that Wendy really appreciates that people who are ill themselves with Lyme take time out to help her.

thanks guys,
Emma


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lla2
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the way we've been trying to handle it on lymenet is to send it to physicians to pay their bills, or in this case, maybe directly to the drug company or pharmacy to pay for hte medication....in this way we could help out.

also , have you considered contacting the drug company themselves with your cause. many times they will help out, so there is not such an expense to pay. Also, why are we trying to 'eat the whole elephant' at one time here...why not take it a bite at a time...she may not need $35,000 worth of medication.... everyone is very different in how much she needs...it must seem very overwelming to try and collect that amount. why not start smaller and get her going and take it from there...HOw did this number of $35,000 come up, when we all don't know how much treatment we DO need? Smaller 'bites' might make the goal seem easier for you..

I would be willing to send some funds to a pharmacy where she gets the medication from , or to the drug company etc. if you could provide that information for us.

thanks,

Lisa

[This message has been edited by lla2 (edited 19 September 2004).]


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suki444
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Hi Lisa

Perhaps it would be possible for money to be directed to Wendy's doc - I will need to check that out. Please not also the money in Wendy's fund is handled by trustees too.

It is out of desperation that we have gone to these lengths...we do not have a 'Needy Meds' program here in the UK as treatment is supposed to be free from the State - but not if they say you do not have Lyme or have post Lyme syndrome (as in Wendy's case!).

We are trying to tackle it small bites - we have raised enough for 'some' Mepron so far but are aware that (according to an American LLMD's personalised treatment plan for Wendy) a years treatment adds up to $35,000.

It is an overwhelming amount but we are just trying to raise what we can - how else can Wendy afford it?

We do not have health insurance here that covers Lyme treatment and most of us cannot get any treatment on the NHS so to get I.V. privately it has to be paid to a private hospital up front.

Thank you for offering to help and I will consult others if money could be directed to Wendy's doctors.

Many thanks
Emma


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rosesisland2000
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I'm truly sorry about your friend, but, one question I have is, why is she so urgently needing IV abx? Has she been on orals with treatment failure?

I didn't see any of the other treatment regimens that she has done being mentioned on the link you provided. Wouldn't orals be an option while waiting for the money to be raised?


Rosemary


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jolbell
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"I'm truly sorry about your friend, but, one question I have is, why is she so urgently needing IV abx? Has she been on orals with treatment failure?"

Dear Rosemary,

Wendy has received many treatments over the past 10 years, and for the past 3 years: they have been oral treatments of Doxy and Flagyl pulsed. If you have read the web site, and Wendy`s story, you would have seen that she has been told my LLMD`s that she will DIE if she does not receive the recommended treatment set out by one of those LLMD`s, (from the States). Wendy has life-threatening respiratory spasms daily, which is why she needs IV treatment ASAP!!

"I didn't see any of the other treatment regimens that she has done being mentioned on the link you provided. Wouldn't orals be an option while waiting for the money to be raised?"

We have currently raised enough money for her to start oral Mepron, and (Plaquenil and Azithromycin prescribed by the NHS). We need enough money up front to be able to pay a physician willing to insert the PICC line, and buy the drugs to be given IV. The LLMD I mentioned has said that it has to be ALL or NOTHING for Wendy, and we are fighting for "ALL". She can start with the orals, but will not improve without the IV.

We have looked at all the options available, and we understand there will be people asking questions, but we want to help Wendy to survive and if that means asking for donations - then so be it!!

PLEASE have a look at the web site and read Wendy`s story. Read the newspaper interview she gave. Wendy has not enjoyed doing any of this - in fact, she has found it all extremely difficult - her private life and history are on show for all to see, but she knows that there are currently no other options.

Best Wishes,

Jo.
www.wendyslymefund.co.uk


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weeza3
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Hello, Many are trying to get the word out about the urgent need her for medical assitance for Wendy. Please keep us updated on any changes in her situation for good or not.

Many are praying for a miracle of intervention for her care.

I will be in touch privately to follow up about donations and contributing.

Praying for that miracle


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jolbell
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Dear Weeza,

Thank you so much for your kind wishes!! I know Wendy appreciates it.

Wendy started Mepron, Azithromycin and Plaquenil recently, and is feeling pretty awful at the moment, but she was expecting it.

Please keep sending her your prayers - they mean a lot.

BW

Jo.


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rosesisland2000
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Sorry, but, I am not following this a closely as possibly I should be to offer this, but, has she applied for Roche's Needy Meds program?

Here's the Link for the application process. Many here have been on Roche's program, the only way that they could afford Rocephin.


http://www.needymeds.com/programs/roche.html

Rosemary


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dontlikeliver
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Hopefully, I can also help answer some questions in peoples minds, especially in the US where the system is very different. I am especially aware of this as an American now living in the UK, and a "hostage" of their health (dis-)service.

In the UK, there is NO needy meds program as there is in the US. I have called all the major drug companies in the UK and asked them myself. In fact, one cannot buy Mepron in the UK at all. (I dont know why that is, but I have called many many pharmacies, they don't know what it is).

I do not know for sure, but I think that it would be VERY hard indeed to send money to "her doctor" as it is not like that here. Her doctor is a "system", an insitution (nationwide), not an individual.

The system is funded by tax-money. Who holds the strings to the systems purse, I do not know. So, to send money into the system/purse, I think it would just vanish somewhere in beaurocracy land. It may be possible to have funds donated to a private physician, that I do not know and it is something that can perhaps be investigated.

The drugs used by the NHS are also obtained from within the institution (referring to IV treatment here). One cannot go and buy it from a pharmacy.

So, someone in Wendy's situation has to cough up the money, give it to the system (NHS) when she turns up at the door basically - I do not think there is any kind of pre-payment scheme.....then they will give her the IV.

The Mepron and orals she has to purchase herself. Mepron from the US or Canada, and orals can be bought here from a pharmacy with a private prescription.

So, there IS a possibility that donations COULD go to a pharmacy, but I am not sure how useful that would be to Wendy at this point. But, hopefully we can find that out for sure.

The NHS likes to delude itself that tickborne illnesses, esp. Lyme is INCREDIBLY RARE in the UK. It isn't. It is institutional denial on a much bigger scale than the problems in the US.

Add in the fact that there are no Lyme experts on the NHS. Wendy is "lucky" enough that a well-respected US LLMD has evaluated her case and advised a treatment plan to save her life - the NHS is not agreeing to this as they say she must be cured by now - and of course, they do not want to cover the expense. She is far from cured and iller than ever.

The NHS is ALL about budgets, targets, etc and treatment is RATIONED. For Lyme it is just about non-existent. The UK is light-years behind (even behind US "ducks) when it comes to knowledge about Lyme Disease. And, co-infections,well they just laugh at those.

The NHS, although it is great for broken arms and legs (free treatment), it is VERY bad (well, you could say impossible) for other things and in particular - tickborne diseases.

Apart from the institutional ignorance on the subject, they even like to deny that is anything but extremely rare in this country.

It isn't rare, and people do travel, etc. etc. Even the fact that Wendy has had numerous tickbites when she worked as a zoologist, when she first got ill, doesn't seem to sway the NHS one bit.

As Jo said, Wendy has spent years on and off IV and orals previously, but done by the NHS and not LLMDs - so it was rather inadequate - and now she is suffering the consequences of that inadequate treatment.

However, she was never checked for any co-infections and so therefore her treatment has not worked as one would have liked. Lyme inadequately treated and co-infections not discovered until more than a decade into illness and of couse, unsuccessful Lyme treatment as co-infections never addressed.

NOW, she knows what co-infections she has, Babs/Bart and Erlichia/Rickettsia I believe, by now she is VERY gravely ill and paralysis spreading to her respiratory system having to rely on an oxygen tank now also. (she is already paraplegic from this).

So, in a way she's having to start over even though she has had treatment in the past. (because co-infections were missed and the treatment was not done by the best LLMD's becuase they did not exist here).

A miracle just about, is required for her.

I have personally had the pleasure of speaking with Wendy and emailing with her and tried to help her in my own small way -but it is not enough. She needs lots of people to help her in a small way, to make a big difference to the outcome (survival is the goal).

She is one of the kindest, most helpful and gentle and optimistic people you could come across. Always trying to help others, when it is she who needs help NOW to literally save her life.

Nobody likes asking for money, least of all Wendy, I am sure. It is her friends who have set this site up, not on Wendy's own request. There are times when we have to swallow our pride and reach out to strangers.

Each and every one of us here has some kind of struggle and many also have a financial struggle.

But, if there is a chance that you could help Wendy, however small the donation ($1/$2/$5), it will help her.

Hopefully, we can post more about information about if it is at all possible to donate directly to the NHS (although I doubt it) to specifically cover treatment for Wendy.

DLL


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jolbell
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Dear Friends,

Wendy recently posted her story on eurolyme in the hope of persuading others to tell their story, so she could collect them together and send them to our Minister for Health. She wants to raise awareness in the UK to be able to help other Lymies and their families.

Her story on eurolyme was a bit more in depth than the one we have included on the web site, so I have taken the liberty of posting it here in the hope that it answers more of your questions about how Wendy came to be at this point.

Please take the time to read it, and appreciate Wendy`s terrible situation.

Thanks,

Jo.

"Wendy Fox's Testimonial.

After working as a zoo keeper for several years, I came down with
the worst flu that I had ever had. I spent 3 weeks in bed & then got
on with my life although I felt greatly lethargic.
I was regularly bitten by ticks at the time. I was a smoker & would
burn the ticks off with my cigarette. I later found out that this
was one of the worst things I could have done as it causes the tick
to regurgitate the contents of its stomach.

As time went on I started to cough blood. The hospital I was
admitted to diagnosed me with a fungal lung infection & I was
treated with anti fungal inhalants. For a long time I improved a
little but would collapse into severe coughing fits if anything
aggravated my chest.
I began to lose feeling in the tips of my fingers & subsequently my
feet. I saw Doctor after Doctor that could find nothing wrong with
me.
After the premature birth of my son & the loss of his twin, I was
told that my symptoms were psychological & due to grief & stress.

I knew that something was very wrong & owing to my occupation I paid
privately to see an infectious diseases specialist. After talking to
me for a few minutes he told me that he suspected Lyme disease & I
was to be admitted straight away.
The next day I began treatment. The diagnosis was made official &
there begun an 11 year battle to get my life back.

As the drugs used in the treatment of Lyme are caustic, my vascular
system became scarred. I was told that I could no longer have IV
treatment & was handed over to the Neurology department.
I was treated symptomatically for joint pain, neurological pain &
sickness. My weight was down to just under 7 stone.
As time went on, the numbness in my hands & feet spread. I was
diagnosed as having glove & stocking anaesthesia but the tests
showed my nerve conduction was normal.
As the function in my legs lessened it became very difficult to
walk. I knew what I wanted my legs to do but they would not respond.
It was like trying to walk through thick treacle every day of my
life.
I started physiotherapy for the growing stiffness in my joints but
it aggravated the symptoms making my joints hot & swollen. I was
then transferred to the Hydrotherapy department where I continued
treatment for a year. My mobility deteriorated until I was only able
to shuffle in order to walk & I was supported by two crutches.

The joint problems persisted. My left shoulder would dislocate
easily & I my jaw would do the same. My memories became vague &
things that I once understood confused me. After my jaw dislocated &
got stuck, a maxillofacial surgeon told me that he would need to
operate.

I had the operation which involved the surgeon cutting round my ear
& moving it out of the way to get at the joint.
From the time I woke, I suffered terrible vertigo. It was so bad
that I could not raise my head above pillow level before vomiting or
fainting. I was told that it was swelling to the inner ear & it
would pass with time. It did not. After six weeks it had improved a
little bit & enough for me to resume Hydrotherapy. I attended a
session one day but felt very peculiar afterwards. The feeling
persisted throughout the day. My head felt heavy & tight & I had a
violent headache. I went to bed where I remained with the room in
darkness. The next morning I woke & when I tried to shuffle out of
bed as I normally did. Nothing happened.
That day was the beginning of my paralysis that has lasted until
present day.

I was scanned for spinal cord compression but there was none. I was
given a C.T scan but told there was no tumour. I was given lumbar
puncture after lumbar puncture but they ruled out M.S & Motor
Neurone disease. After scratching their heads, they left me to it
with only the involvement of my physio team, & an urologist. My
bladder & bowel failed & I was operated on again to fit a catheter
through my abdomen. My left kidney then failed.

Two years later, I was admitted to the London hospital for Neurology
& Neurosurgery. There I saw a very unsympathetic Professor who
repeated every unpleasant test I had ever had in order to see if
there was any change. Obviously the fact that I did not get up out
of my wheelchair was not enough to see there was no change.
After a detailed M.R.I. scan, I was told that my brain had suffered
damage after being swollen. This was an encephalopathy due to
infection in the brain. I was then told that my brain was no longer
swollen & therefore I was not actively infected.
The professor very coldly told me that I should go home, continue
rehabilitation & get on with what was left of my life. He walked
away & left me crying in my hospital bed. I had spent a month there
alone & away from my family.

I came home completely traumatised with just the instructions to
attend rehabilitation (which I had been doing for the last two
years) and to return in a while to look for any changes.
I shall not be returning!

As I became sicker. November 2003 I suffered a facial palsy. I had
several "funny turns" where i would want to perform a simple
everyday task such as closing the curtains but i would not know how
to do it. Neurological investigations showed that i was having
Transient Ischemic Attacks (mini strokes) & so i was put on blood
thinning medication. I approached some Lyme specialists in the U.S
who told me that I was most definitely still infected & was likely
to die without treatment.

With the testimony of the London Professor that said I had Post Lyme
Syndrome, my neurologist would not give me any more treatment. My
GP, however, thought differently & gave me two regularly used
antibiotics that the U.S doctors had suggested.
I paid privately for a Microscopy that showed a terrifying level of
infection & a blood test in the U.S that gave the same result, plus
the fact that I was carrying several other zoonotic infections
commonly associated with Lyme disease.
The doctor that I paid to see privately, consulted with a top
American Lyme specialist & worked out a treatment plan.

I have now been refused the treatment plan on the grounds of cost as
the drugs are not readily available in the UK and are very expensive.

Now, the Lyme disease community that I am involved with via the
internet & my neuro support group are desperately trying to raise
funds for me to either go to the states for treatment or for me to
buy the drugs I need privately.

I now suffer diaphragmatic spasms that make it difficult to breath.
I choke when I eat & have been told that this could be prelude to
the spread of my paralysis. I have an oxygen cylinder in every room
& one on my wheelchair. There is no happy end to this story but I am
doing everything within my capabilities to raise Lyme awareness
because I would do anything to stop someone else suffering what I
have.

Wendy Fox."


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weeza3
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Hello Jo,
I'd just sent you a personal e-mail and then saw this post which has answered some of the questions. Looks like the social system there will make sending monies to a physician unlikely.

Tell those here and are interested, something about the trustee arrangement and if they are attorney's or a bank, perhaps their address or telephone # so that we may contact them about how to send donations safely.

We know the need is there and desire to do what we can to help save this remarkable woman's life. Thanks for your patience.







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jolbell
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Hi Weeza,

Thanks!!

Depends how you want to make a donation really!! You can donate through Paypal or Nochex via the web site, or if you want to pay by check or postal order - you can send that to me - I will email you my postal address.

Are you wondering whether you can pay directly into the bank account? Do you want to speak to one of the trustees about whether the account for Wendy is genuine? I`m not sure whether paying directly into the account is available, but I will check. I am sure the trustees would be happy to talk to anyone about Wendy`s Appeal if need be.

Please let me know exactly what you need, and I will be very happy to help!!

Jo.x


------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk
www.wendyslymefund.co.uk


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weeza3
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Yes Jo, Perhaps a name of a trustee and a phone number to contact. My main question was,
are Wendy'd funds being held in a bank, or by barristers (attorney's)? Who exactly are the trustees?


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jolbell
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Dear Weeza,

The appeal account is held in a bank. There are 2 trustees who are co-signatories for the account - they are both unrelated to Wendy, but know her through a Neuro-Group of which they are all members.

When they appeal started, the trustees consulted a solicitor. they were told that as the co-signatories are unrelated; the appeal account was above board and did not need legal control. The only thing that was required was for the Trustees to be satisfied that the appeal was for a genuine cause. As they have both known Wendy for several years and they have followed her deterioration, this was never questioned.

There as been no need since the initial advice, for a solicitor to be involved. Both trustees are keeping separate financial records of all transactions and these would be open to viewing by the public.

If you would like to speak with one of the trustees via email or phone Weeza - please contact me privately and I will give you the details.

Respectfully,

Jo.



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dontlikeliver
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It has been suggested, and it may be possible for those that would like to donate, but want to be able to check up on details first, can call the bank directly and verify that this appeal account exists, and that it's just that - an appeal account.

Would this help anyone? If so, please post on here and we'll try to either post this information, or by email be able to give it to those interested.

DLL



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weeza3
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Thank you Jo,
I'll contact you privately. I think the name of the bank and their tele.# so I might speak with one of her trustees would satisfy me and others interested in helping. Until then, tell Wendy our prayers are going her way and to hang in there.
Healing Blessings to all


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weeza3
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don'tlikeliver


yes, please to your message.

1. name of bank
2. phone number
3. a trustees name to be able to speak to them and receive instructions.

Slow and Steady it seems wins the race


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jolbell
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Weeza,

I have emailed you privately re this.

Jo.

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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jolbell
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Dear Weeza & members of Lymenet.

As DLL explained in her earlier post, things are done very differently in the UK.

The trustees to the appeal bank account for Wendy are just trustworthy people who hold trusted positions in a Charity run support group. They do not work for the bank where the account is held, nor are they any part of the legal system. They sought advice from a solicitor (attorney) who advised them how to set up this account so that it was legal and could not be accessed by any other person but themselves.

The bank where the account is held is a small branch of a large bank called ``The Royal Bank of Scotland''. This is a just a little branch in a small town where the trustees live. If you call the bank you will be speaking to a member of staff who works there just to confirm that there is an account held there called ``The Wendy Fox Appeal'' and we will give the account number via priavte email if anyone wants to confirm this.

One of the trustees is himself affected by a neurological condition and has poor speech. The other, who will happily take enquiries, is the Vice President and official fund raiser of the Neurological Support Group where Wendy is a member. These people have known Wendy since she became neurologically affected by her disease and they have watched her deteriorate. This is why they wished to do something to help.

This Trustee is herself caring for her husband who is a stroke victim and chronic epileptic.

In view of all these facts and our wish to not cause the Bank staff of this small branch any inconvenience or the trustees to have to repeat the same facts to different people and be disturbed by lots of phone calls, would it be possible for the purposes of this thread, for someone of good standing such as Tin Cup, to make these enquiries and confirm on this thread that they have verified these details?

Please understand that this appeal is run by ordinary people who have been affected by Lyme disease, or other neurological conditions, and that they are doing their level best to help their friend who is desperately sick.

We wish to help you in any way that we can. Our main objective is to aid Wendy and so we want to cooperate in any way, but our concerns for the people involved are also genuine so perhaps some one would consider being spokesperson for the Lymenet community & verify these details?.....

For obvious reasons, I cannot post details of the trustee`s name and phone number or the phone number of the bank on a public forum. Whoever decides to verify all the details can email me and I will send all the required information by email.

I hope this will meet approval. I look forward to your response.

Thanks,

Jo.

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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weeza3
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Thank you Jo,

I think we now have a better understanding of how your donations are having to be handled.

I will try to reach Tin Cup and hopefully she'll be reading this too. I don't have her e-mail address, but will post a topic for her to see.

I agree she would be excellent to give confirmation to others by a phone call to the bank in Scotland.

Again thank you for your time to do all this explaining.


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Tincup
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Hey gang...

Alot of this is my fault, I feel.

I posted the other day in the Medical Section about being careful when asked for money for Lyme causes... and to make sure the cause is "legit" before donating.

I had NO idea this post about Wendy was going to be here.. and my reminder was NOT intended to reflect negatively in any way on this cause.

I just had bad timing...

Or better yet.. THEY did! HA! (Sorry)

Wendy's friends do have a hard row to hoe and I very much understand their situation about sharing details and having many folks call the banks, etc.

I recently was trying to set up an account at a bank for accepting $$ for folks to help pay for meds for adults and children.

I am still in the planning stages.. and having Lyme too.. well.. it is hard to do all this.. and much more complicated than I thought.

For Wendy's friends to have organized the stuff they have to this point is quite an accomplishment.

Since I am the cause for so many questions.. and it was suggested I do something to fix the situation..

I will be happy to try and check this cause out and report back my honest feelings... and the facts. (Confidential information about a person will NOT be shared.. so don't bother asking... I take that seriously, as you all know)

I feel I do owe it to those who posted for help and for their efforts... I should give it a shot.

For Wendy's friends...

Sometimes we get together here and try to help someone out who is in need.

To prevent problems, I normally set up something with the doctor.. or lab directly so that folks know their money is not being sent to an "internet" unknown "face" directly, to possibly be used for any other purpose.

We have found this works quite well for all involved and the giver feels much more comfortable. I do understand that this could be a problem over "there">>>... so I can see the delima you are facing.

If you would like... I will try to check out the information.. in my own "lay" way.

I am NOT trained to do this.. so it is just old country bumpkin here doing what she can.

If someone.. ONE person please.. can send me the info needed to thoroughly check it out... I will do so and report back my findings.

I am sorry if I indirectly "interfered" with your request.. and please know it was NOT my intention.

We often have "benefits" here locally... which I whole heartedly support... to raise $$ needed for folks in a pickle.

This fund raiser reminds me of the ones I see quite often.. and I do applaude the friends efforts to help Wendy.

OK..

Please email me.. and give me a bit of time to do my thing.. and we will see what we will see.

PS- Since I am totally stupid about how things are done in Europe... or where ever it is you are...

Please let me know the time differences. I am on the east coast..

And any prefixes or whatever needed to dial phone numbers.

Also... If you can let me know what LLMD here is helping Wendy.. that will be great. I would like to place a call to that office, with your permission. Their reply will most likely be the deciding factor for me.

And if possible.. please make sure my contacts over there speak English.

THANKS!!!

[email protected]


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lookin4answers
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I wish her the best!!!! I did read this several days ago and did my part.
Hope it all adds up!


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jolbell
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Hi TinCup,

Thanks for your post - I hope it will put everyone`s mind at rest once you have looked into this.

I am sorry, but I haven`t got an email address for you, and can`t find one. Please email me:

[email protected]

I will be very happy to provide you with all the details you need.

We ALL speak English BTW, as we are in the UK. LOL

Rgds,

Jo.

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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jolbell
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BUMPING UP!!

Tin Cup - please send me an email.

Thanks,

Jo.


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weeza3
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Many Thanks Tin Cup!

We are well represented by this country bumpkin


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jolbell
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Dear "Chainsawjoe" and "Lookingforanswers",

THANK YOU SO MUCH FOR YOUR KIND DONATION!!!

Jo.x

[This message has been edited by jolbell (edited 24 September 2004).]


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dontlikeliver
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BUMP
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Tincup
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Hey, hey..

Sorry.. my computer works for a few minutes.. then quits for a few hours. Still trying to get it fixed.

Of course they keep telling me it's fixed.. but then it ain't!

And.. just so I don't look like the COMPLETE idiot here... (partial idiot is more my style)...

I did post my email on the last post I made.

HA!

You got me though.. thought I hadn't.. and did have to check to be sure.

It is..

[email protected]

Otay?

I will try to email you now.


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jolbell
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Hi Tin Cup,

Sorry I didn`t notice your email address on your last post!! Brain fog again!! lol

Anyway, I will be sending you an email soon outlining all the information you need.

Thanks for offering to be `spokeperson`.

Jo.

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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jolbell
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Dear Tin Cup,

Please check your emails - I sent you one earlier.

Thanks,

Jo.xx

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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jolbell
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Bumping up!!

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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dontlikeliver
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Bump.

Tincup, I hope that you will find the information you need to put your mind, and others minds, at rest, as soon as possible.

Hopefully then people will feel more comfortable knowing the money is going to where we say it is - and they can HOPEFULLY help Wendy in any way they can.

I am very very worried for Wendy and feel pretty powerless to help in a way that is going to change things for her QUICKLY.

Time is of the essence for her - it is literally now or never.

DLL


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jolbell
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Just to let everyone know that Tin Cup now has all the information she needs to do her Detective bit!! LOL.

Hopefully, now it won`t take long so that she will be able to reassure everyone, and people will feel more comfortable giving donations to help Wendy`s cause.

Take care,

Jo.xx

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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jolbell
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Bumping.........
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weeza3
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Good News, will check back later


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jolbell
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Thanks Weeza - hopefully Tin Cup will be back soon with the information!!

Take care,

Jo.x

------------------
Diagnosed with Lyme and Bartonella - June 2003.

www.wendyslymefund.co.uk


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Tincup
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Sorry for the delay!

I had some "technical problems."

Having never made a call across the big waters... I had trouble getting through. SORRY!

Then there was a time problem... 5 hours ahead... I thought that meant BEFORE.. not AFTER my local time!

Finally I contacted MY phone company and they helped me.

OK..

The news is...

In MY opinion this is a legitmate request and the funds ARE needed for Wendy's treatment.

Donations are being put into an account specially set up and documented for this situation.

I spoke directly with Wendy's doctor and.. he seems like a real nice fellow.

He is doing a good job helping folks over there and is VERY sincere about helping get Lyme disease the attention it deserves.

He was familiar with several of our LLMD's and even asked that I deliver a message to one of them next month when I see him.

He confirmed the fact this was a patient and a legitimate need... and he thanked us for helping.

I also contacted the bank directly.. verified account numbers, etc... and they did have an account set up for the Wendy Fox Appeal... and were very familiar with it.

The person I spoke with also suggested that folks could go to their own banks here in the USA and have them send donations directly to the bank to save the "fees" and dollars when converting the money to sterlings. (I am not sure what a sterling is.. but it sounded important)

So.... please do consider this a worthy fund and if you are able.. let's get Wendy some help.

Please follow the instructions for donating.

And know that I personally thank you for your caring and concern.

We CAN make a difference.


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suki444
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Many, many thanks Tincup for going to all this effort to verify the details!!!

Love Emma
xxx


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dontlikeliver
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BUMP
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jolbell
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BUMP


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jolbell
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Bumping again.


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lookin4answers
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Very welcome, wish I could do more!!

Amanda


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jolbell
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BUMP
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jolbell
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BUMPING UP


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jolbell
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UP



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