I posted my symptoms and such in the Doctors section. Thanks for the responses!!

I was just looking at the lyme symptoms list last night that a friend sent to me.

Out of 87 (?) symptoms I have 57 of them!!
And on the list it says that if you only have 3 of them, you should be checked!!

My symptoms have been going on now for 9 years!

Was dx'd with fibro in 96
dx'd with cmps in 04
dx'd with essential tremor in 04

Emg dr this year (emg normal) said that I do not have fibro, do not have chronic myofacial pain syndrome, do not have ET.

He was thinking stiff-persons syndrome (emg didn't support this and NM dr at OHSU says no)

Then he was thinking something with the enzymes.

Then he was thinking something with the CNS.

I've just been bouncing around from one dr to the next for 9 years!!

I remember having a rash when I was young. Mom said it was ringworm. I didn't go to the dr's about it.

Now, I'm wondering if it could have been lyme.

We vacationed in Canada every August when I was young. And went to SC a few times also.

I also spent lots of time in the woods when growing up here in Ohio.

So, I'm off to see my family dr this morning to see if I've even been tested at all for lyme!!

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

How to Search Courtesy of Danq
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Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
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Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
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Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

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Explaining Borreliosis (Lyme) Western Blot Tests
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++ Medium
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+/- Equivocal = indeterminate (there, but not as intense as Low)

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( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease

Canlyme MAG

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Lab Tests Looky

Just have a minute, but wanted to remind you that IF your dr decides to test you for Lyme this morning, try your best to get him to use IGeneX in Calif or Medical Diagnostic Lab in NJ. They specialize in Tick-Borne Diseases, so the test results would tend to be more reliable.
www.igenex.com www.mdlab.com

Also, you need to be checked for Co-infections, like Babesiosis, Bartonella, Ehrlichiosis.

You said you visited SC. If that is South Carolina, & not southern Calif, then wanted to let you know, we've had all 3 co-infections diagnosed here.
(I had Babesiosis & Bartonella with Lyme.)

I graduated from U of A in '94 (I was a late bloomer). We loved northeast Ohio.

Cathy, I'm not dx'd with lymes. Just searching for answers for the past 9 yrs!!

Dr's appt went good this morning.

Family dr is finally agreeing with me that I could possibly have pd (grandpa had pd, and grandma had progressive supranuclear palsy).

He offered me sinemet, but then said that he'd rather wait and see what MDS says at CC.

I asked him about me possibly having lyme. Told him about the rash that I had when younger (mom said it was ringworm).

He said that he didn't think it was lyme that I was dealing with. He said that if it were lyme that I would have been much sicker like with fever, headache, throwing up, etc.

I knew from reading on here that that is not always true. I didn't argue with him, the time will come for that if need be.

He tested my reflexes. I'm very hyperreflexic in the legs and I have several beats of clonus in right ankle.

He ordered more blood testing for me. Testing for myasthenia gravis again too.

Anyways, when I got home I called Igenex in Ca. and left a message for Nick.

He called me back and I told him my problems. I told him that this has been going on for 9 years with progressive symptoms and new symptoms.

Three yrs ago started the throat spasms (cramps) where my air supply get cut off until muscles relax again.

This year started constant floaters in both eyes. Tremor in right hand-wrist-thumb after physical use of arm-hand-or fingers.

This year started constant positional right thumb tremor. Also muscle twitches started this year.

Bladder leaking started this year. Have to wear a pad for protection.

Anyways, Nick was soooo nice!!! I told him that I have about 57 out of the 87 (?) symptoms on the list.

He said that I definetly need tested.

He gave me the name of a Dr in Pa to see and his number.

He said to tell this dr that he sent me.

This Nick will be sending me 2 kits. I will be tested for western blot IgG and wb IgM.
Also, Whole Blood pcr.

He asked if I had a dr to sign for the testing. I said that my family dr would. Even though family dr didn't think it was lyme, he would for sure sign it for me.

So, that's where I stand as of now.

Thanks for all the links to read!!

Take Care
Debbie

I grew up in Northwest Ohio. My folks still live on the farm where I grew up. I'm pretty sure I was exposed to lyme there. My dog also had it but we didn't know until after we had him put down. Bless his heart he suffered a long time. Wish I'd known.