There are hundreds of questions. Each persons reacts differntly both to lyme and meds.

Read all you can,
Here on lymenet, we all help each other.

Thee is a lyme support group meeting this Nov 17 at Our Lady of the Mountain Church,Schooleys Mountain Road, Long Valley. It's right up the road from you. Meeting runs from 7 to 9PM. There you can get answeres to your questions.

Alex

I have two neices who were diagnosed w/lyme at 8 and 10. They were not symptomatic but their brother at 17 had lost 60 lbs in 3 months and had horrid fatigue. Their mom understood families can have lyme so she had them all tested.

The treatment for the nephew was 200 mgs doxy and MAYBE added biaxin later? It took 3 months to see his appetite come back. Our doctor moniters all of us THOROUGHLY thru bloodwork. That would be a major thing to look for, how much bloodwork is being run??? I'm constantly re-tested for Epstein Barr to see if it's active again. All of us a tested for vitamin levels as detailed as selenium, lipoic acid, magnesiun, CoQ10, zinc, etc. Our natural killer cells are tested for how many and then for activity.

All three kids are thriving today. The nephew graduated college and spent the summer in Hawaii surfing. The younger girls had improvement in their vision and one lost the nasty tantrums she had.

I don't know your child's story but I hope you see some good soon. I do know that this bacteria takes about 18 months to turn the first big curve in recovery. Every 18 months I marvel at how well I am doing.

I eat no sugar or carbs unless it's something like shredded wheat. My energy tripled when I got off of sugar/carbs.

Young immune systems do much better than older ones. I hope your little one feels better soon.

Hi and Welcome to Lymenet.

My son Dominic is 8 too. He has been in treatment for Lyme since he was 6.

I am sending you a email in a few minutes.

Hope some of the info in will contain will help you.

Everyone is different..The disease affects everyone with varied individual symptoms, more or less severe than others.

You need to do as much research as possible. I personally know that is very hard as a care giver with a very ill child..You could try to search old posts with specific words.At the top of each forum, towards the right is a spot to click for searches..I have found it useful.

I also must tell you that it is very stressful for all mothers..Some here also are dealing with the horrors of the disease while trying to help their children and hold their lives together..There are some very tearful stories here..

I personally know we need to find or keep a good support system and to try to escape as much as possible..It takes a heavy toll on the caregiver..Do take care of yourself..

Keep asking questions and someone will always try to help you. Good luck, it is a bumpy trip.

I can't access the part with the mispelled word.Well, there may be more...sorry..think it was a ps..If it shows up , I meant tough not touch...sorry..