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» LymeNet Flash » Questions and Discussion » General Support » Dr H of CA - need input?

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Author Topic: Dr H of CA - need input?
lkpod
LymeNet Contributor
Member # 6187

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I am going to see Dr. H of CA in a week and I would really like to have any input from any of his patients.

I got his packet of info and would like to hear any suggestions before seeing him.

What is his "treatment style", his "bedside manner", thoughts on herxing, etc?

Thanks for any info...It's probably better to email me than post it here. [email protected]


Posts: 134 | From So. California | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
kam
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HI,

I wonder what is in the packet. It seems someone else showed some concern after receiving the packet and it was discussed here on lymenet if I recall correctly.

I hope you don't mind me posting here but I thought I would give it a try.

I saw over 35 doctor's before seeing a LLMD, alias Dr. H.

I would usually bring a list of questions to the docs. I do not feel rushed when I bring the questions to Dr. H.

It seems he also makes sure I do not have anything else to discuss before the appointment is over. I like this.

And we also cover a lot during the appointment. I would like to take a recorder with me because I will pretend I am getting it and am normal while I am there and then have trouble recalling things afterwards.

I fake normal a lot now a days. HA!

I also found he is good at written communication and will let you know where he is and when by sending out a postcard with his schedule. I like this about him too and have not found any other doctor's who do this.

I feel that we both have the same goal....to get me well.

Another comparison that does not compare to other docs. I was amazed at how many docs just shook my hand when I had insurance and then billed the insurance company for $300 or more for the 10 minute or less office visit.

I had no idea how profitable a hand shake could be from me. HA!

I also feel that if he has a network of other professionals in the field he can trouble shoot with.

Another rarity among the medical profession.

Last but not least. He has battled lyme himself so this gives him clout in my book.

And he doesn't wear a white coat! I tend to want to run when I see a white coat now so this is good.

Treatment style is mixed with Western and alternative. I am limited as to what alternatives I can add to my program at this time. He works with me on this and doesn't come up with a lot of things I can not do financially at this time.

I appreciate the fact that he is traveling to other offices in order to help his lyme patients out.

I expect that this will not continue with time and we will need to travel to his main office in the future.

I also feel that getting well is a team effort and I am part of the team.

On my first visit, I met a lady who had lyme for a long time before being dx and treated by Dr. H.

She had been seeing him for 3 years. She said that she has 90% of her life back now. That was encouraging. I keep that in mind during times such as now when it seems I am not healing as fast as I would like.

On the other hand, finances have been a factor and I am limited in what I can do each month to add to the treatment program.

Dr. H goes by Dr. B's supplement guide and recommends you take these too.

I hope this helps. The negative I see is that he needs me well so I can help him out with the business end of it and clerical matters. HA!

It seems he is trying to do all of these things himself too at this time with the exception of a really nice person setting up the appointments over the phone.

I had no idea how much paper work was involved for doctor's until I came down with this. This is time consuming in itself and takes away from time he could be using to see patients.

I also feel that he would prefer I had a primary doc who was willing to learn about lyme and do what he or she could.

I feel that he would prefer to be the consulting doc. But, I have yet to find a primary doc who will do his or her homework.

I did find one who is at least willing to work with him if I come into the office with a prescription of what needs to be done and keep the visit within 7 minutes or less. HA!

He is one of those docs like so many around here that see over 70 patients a day. Not good. But, at least he was willing to acknowledge I have lyme and work with me.

Seven other primaries and several specialist I tried had duck fever even though I showed them the positive western blot, told them I had been dx by a lyme specialist and a bite with a ring around it right before I got really sick.

I started seeing Dr. H in February 2003.

I became to sick to work in Oct. 2001.

I have been on abx most of the time with a few months off due to pharmacies giving me the run around when it came to getting bicillin and the supplies needed for rocephin shots.

I now travel out of town to a pharmacy that has been great at follow through.



Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
kam
Honored Contributor (10K+ posts)
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I also wanted to add that we had several people at work come down sick at the same time with the same symptoms.

I continue to think there is something else going on besides lyme disease. I am the only one that recalls a bite with a ring around it and am the least functioning of the others.

At least 4 of us are off work and have been battling this for 3 years now. Another took a year off work and is just now trying to return.

We were all given different dx....valley fever, CFS, Fibromalgia, diabetes, stress, etc.

So, my situation is complicated by this. All of us have workmen's comp pending so it will be interesting to see how this all comes out in the long run.

WC docs have not been much help and do not seem to have our health in mind and getting us well at all.


Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
   

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