I am the mother of Andrea, a 16yo DD recently diagnosed with Lyme. She has never felt really well (since about age 10) and was told in the last couple of years that she has Fibro and CFS. The usual story I guess, but thank goodness we found out now and not 20 years from now.
Any other Lyme teens out there? We have begun homeschooling this year (grade 10). It is the best decision we ever made--we are now able to make her HEALTH the priority, and the academics will roll along at their own pace. It is difficult for Andi to accept this, as she was always a gifted student in honors classes, etc.
Thanks for listening--hope to learn and share with some of you!
Denise
Posts: 14 | From MD, USA | Registered: Feb 2005
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posted
Welcome, and yes there are other lyme teens. In fact, there is a forum specifically for them. Maybe some parents will come along soon and give you the details. So, your teen can get support there, and you can get support here. Not that she wouldn't be welcome here too.
Posts: 8430 | From Not available | Registered: Oct 2000
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Hi Denise-
I have been trying to get my son more involved as he is getting "well".
He too is home schooled and in 10th and was a great student and athlete before lyme. He seems to be interested in e-mailing girls, perhaps a good sign that he is healing.
Click on this and get some good info from people in the same boat.
The way to search is just click on that word (which is in blue very small under the "post reply" message at top side of webpage) and then fill in the search boxes.
I edited it because the tone sounded demanding and cranky which was not intended. Just didn't want her to think she was being ignored. Newbies frequently don't know how to search or even flip back thru previous pages.
Yay, it worked, thanks tutu.
[This message has been edited by lou (edited 06 February 2005).]
Posts: 8430 | From Not available | Registered: Oct 2000
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NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Hi Denise, Feel free to e-mail me [check my profile] as I have a 14 year old boy who's infected. He's IM'd some of the other children here, and they keep in touch. There are other girls your daughter's age as well that IM each other.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Hi Denise! Sorry to hear about Andrea, but glad she got the proper diagnosis. We also found that homeschooling was the route to go for us. My son is 17. He hasn't gone there yet, but I believe Yahoo has two lyme sites for teens. I think lymeteens is the one they all use.
posted
Welcome, Denise! I hope your daughter continues to do well now that she can get more rest!
lou....all you have to do to save the embarrassment of editing a hundred times is to erase "this message has been edited by..." each time you go back in. Then it will leave you with ONE edit! Do you like that!!??
Click on this and get some good info from people in the same boat.
The way to search is just click on that word (which is in blue very small under the "post reply" message at top side of webpage) and then fill in the search boxes.
I am trying to set a new record for the most edited post by a lymenet memeber. Actually, I edited it because the tone sounded demanding and cranky which was not intended. Just didn't want her to think she was being ignored. Newbies frequently don't know how to search or even flip back thru previous pages.
[This message has been edited by lou (edited 05 February 2005).]
[This message has been edited by lou (edited 05 February 2005).]
[This message has been edited by lou (edited 05 February 2005).]
[This message has been edited by lou (edited 05 February 2005).]
Posts: 14 | From MD, USA | Registered: Feb 2005
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posted
Okay, I tried to reply to LOU and all it did was copy her post!
Anyway,I thank you for your help! Actually I am not a newbie in general, just to this board. Andrea has had ongoing health problems even before this Lyme dx (she had bilateral hernia repair surgery in Nov. 2003 after years of severe pelvic pain with no diagnosis), and I've needed to do extensive internet reasearch in order to figure out what was wrong. I always thought it was the DOCTORS who were supposed to do that?!?
Anyway, it's nice to be here. I'll try to reply to everyone who has commented, and to those who have emailed me privately.
Where does everyone live? We are in MD--not everyone has their location in their profile.
Thanks guys/gals. Denise :-)
Posts: 14 | From MD, USA | Registered: Feb 2005
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To fibro/CFS members, I just came across this new web site of good info from Natl. Institute of Health's medline library....covering many other dx illnesses...FMS, CFS, IBS, etc.
Hope you each find some good info there. Saw it's from Art Dougherty, Calif. in 2001.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
oops! 
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