posted
I don't know whether I should scream or cry. Over the past 5 years I've been dx'd with both Lyme and Fibromyalgia...different docs dx'd me differently.
Just went to a doctor who "specializes in Lyme Disease" and was told that I have Fibromyalgia...definately not Lyme...most likely never had it.
I've had positive Elisa, Western Blot and PCR test but "most likely" never had Lyme.
I had a high fever which lasted over a week and might have had Babesia, but my immune system would have gotten rid of it on it's own and does not need to be treated for it now. I was told Lyme disease does not cause high fever.
My head is spinning...thanks everyone, for just listening....I really need to vent!!!!!
Posts: 56 | From Belvidere,NJ USA | Registered: May 2004
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posted
what specific LYME blood test did you have?
elisa you said but what about western blot IGM & IGG?
more important, WHAT LAB did this? Igenex or MDL? If they didn't test all 16 protein bands, you were screwed by them.
We do have FM with our lyme; that's why we have so much pain. Betty G.
Posts: 1 | From US | Registered: Aug 2015
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I was just scanning this article today. It is called lyme wars. It mentions fibromalgia. I think it will help you. [URL=http://www.wildernetwork.org/Lyme_Wars.html]
The second thing that popped in my mind is who is this lyme specialist? Is he a member of ILADS? Was he referred by the Lyme Disease Association or by someone here on lymenet or ILADS?
I, too, saw so called lyme specialist only to have to tell them how to read the Igenex Lab results. He also said I only needed a few weeks of abx. HE knew because he was an ivy league doctor! I wondered about that doc and didn't go back.
I also was given a dx of fibro then not fibro, then fibro.
The bottom line for me is not what it is labeled, but what is going to be done to help me regain my health.
Scott Taylor, DVM has written excellent report/summary of his research regarding his dx of fibromalgia and traveling out of state for help from a lyme doc.
It is called Lyme Disease: the disease of ignorance. I think his web site is myremedi.com
[This message has been edited by kam (edited 07 February 2005).]
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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quote:Originally posted by mrdsmom: Just went to a doctor who "specializes in Lyme Disease" and was told that I have Fibromyalgia...definately not Lyme...most likely never had it.
I've had positive Elisa, Western Blot and PCR test but "most likely" never had Lyme.
Where did you find this bird brain of a duck? Good gosh!
Do you have an LLMD??? Guess not?!
Forget what this duck said, and move on. Find a dr with a brain and get proper treatment.
Sure, you probably have fibromyalgia....from Lyme and babs.
posted
Thanks everyone, like I said, I just need to vent. With positive tests on and off during the last 5 or so years, I know it's Lyme and probably Babesia (never treated for Babs. This doc doesn't even understand why I felt better during treatment (since it's not Lyme, you know).
I haven't seen my regular LLMD in a couple of months due to $$$ issues and hoped this other doc was a doctor and not a duck...guess I was wrong.
Lymetoo, thanks for the "Wacky Dux"...I needed the laugh.
Tonight I have a sleep study scheduled and Thursday I see an attorney to help me with disablity. After that, I'll start my search for a LLMD.
Thanks Again!
Carol
Posts: 56 | From Belvidere,NJ USA | Registered: May 2004
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