I am not diagnosised yet with anything... still trying to find out what is wrong with me. After reading the above link I was angered because (many reasons) but I have had such a awful time with doctors. Why do they think people with unexplained illness go online to research?
My life has spiraled downward and the doctors don't seem to think it is such a big deal. I tell them my symptoms and they shrug - don't say much. I feel like I am talking to someone in a check out line when I am suppose to be talking with the "expert".
I have been accused of a drinking problem because of my hand tremor by one doctor.
One doctor ignored my compliants of chest pains and shortness of breath... He asked what meds i was on so I told him synthroid and he felt my thyroid and was generally surprised that it was in fact a goiter. As if I was lying about this stuff.
I felt that I had no choice but to turn to the interenet to research my symptoms and other peoples experiences to help myself because they sure as hell were not jumping up and down to aid me in my recovery.
I find I am most like CFS and Lymies in my symptoms. Mine come and go.. never know when the fatigue and neuro problems will hit me.
Thanks - just wanted to vent.... after reading and researching online I least know what questions to ask the "experts".
Posts: 8 | From Pittsburgh, PA, USA | Registered: Feb 2005
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1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
I have read and read and read about not only Lyme's diesease but all thyriod and parathyroid related problems, Chronic fatigue, early althimers ( won't try to spell that correctly), all neuro problems... Thus far I match the symptom list of Lyme the most, specifically the neuro Lyme.
I have just come off a long and bad spell of extreme fatigue and extreme mental confusion. It has gotten better over the last week but I kind of feel myself slipping in out somewhat good to bad.
Perhaps I will write a post in medical, as suggested. I want to know about the off and on again symptoms.
I am interested in reading the link above about Camp A and Camp B. I have read the opposing views but I like the sounds of that title. Sounds more specific then others.
Jodi, I avoid the phone like the plague! lol I seem to only answer for my immediate family or few close friends. On bad days I only answer for my mother. If I feel strong in spirit then I will reach out to you. Thank you for the offer . Makes me feel good.
I have found some local doctors who are LLMD - both are MD's. But they are 30 to 60 minutes away. I have appointment with one and the other has not returned my calls.
In addition, I have appointments with neuro, cleav clinic, and digestive people. I must keep these appointments because my dad is going with me. Mind you I am 37 years old but I can not longer see a doctor and communicate clearly. He is going to be my strength and words.
Thank you all,
ToriT
Posts: 8 | From Pittsburgh, PA, USA | Registered: Feb 2005
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I am coming off a period of "good days" and feel my self slipping as I try to read and write. This sucks.
The above link describes what I feel and go through. When this all started for me (over the last three years), I have been told that i am acholic (due to hand tremors), told I was bi-polar (happy when well vrs. slowed down when ill), and that I had post tramtic stress disorder... just like the article in above link describes.
Hate this.
ToriT
Posts: 8 | From Pittsburgh, PA, USA | Registered: Feb 2005
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oops! 
. Makes me feel good.
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