How was your week? Were you able to do anything this week? Are you working? Making progress? Do any advocating and educating?

What treatment plan are you now on?

Anything put a smile on your face?

Slight improvement, but he still needs his pain meds, but at a lower dose.

Sleep is better, but the amytriptyline may be helping, as well as some of the 'keets" dying off.

Still uses his cane, which is a step up from the "walker" he was using. A 14 year old using a cane, and a walker !

Makes me want to torch the woods across the road.

2 pills twice a day. I believe it is 100 mg per pill, so I am taking 400 mg. It's kinda hard to make sense out of the label...

I am also glad that I usually don't have a problem with sleeping, but it would be nice to have something to help me when I do.

NP....torching the woods....hmm..now if we could only get the smoke to spell out Beware of de Infected Tick...

I took artmesin (sp?) until recently along with the mepron. This time my LLMD said to leave it out. I trust he knows what he is doing> I am sure he would have explained why if I had asked.

I was just in overload at the time and trying to keep it to the bottom line.

Hopefully, your son will be doing jumping jacks soon and all will be working fine.

Now he will be the perfect actor to play an old person. He has first hand experience.

quote:

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Originally posted by kam:
It's the weekend. Just checking in to see how everyone is doing.

I feel like roasted dog turds twice baked.

How was your week? Were you able to do anything this week?

Yes, I did alot. I did TOO Much and Im paying for it.

Are you working? Yep, I gotta feed the kids.

Making progress? Do any advocating and educating?
YEP!

What treatment plan are you now on?
Candida treatment only, may have to add babesia treatment back in.

Anything put a smile on your face?
Yeah- I gotta new man that "wuvs" me.

I know there are some that we have not heard from in a while. Miss you. Hope we have not heard from you because you are OK and living life.

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I went off the babs treatment for a while too and had to go back on. I did better the second time around. It was not as hard on me.

It also sounds like it is time to rest. Hope you are able to rest this weekend as much as one can.

I had a pretty good week. I'm still working and still going to school. A crazy schedule, but I'm hanging in. It doesn't give me time to think about Lyme.

I just saw my LLMD yesterday. I'm continuing Ketek, Artemisinin, Plaquenil, Acyclovir, Flexeril and Diflucan. We believe the Lyme may be under control. Took another blood test. Decided not to add Mepron for the babs until end of May, when I'm through with finals.

My myoclonus has really increased lately. I'm starting Baclofen, anoter muscle relaxer often used for MS. I'm also getting a cervical spine MRI to see if there is anything there causing the myoclonus. If not, we are doing a brain MRI.

I'm officially terrified now with the myoclonus. Scared there is some permanent damage causing it.

I just have to say that this post made me so happy. There aren't many times when we just check in with each other. We're all off in our own little worlds, post on here for specific questions, answers, problems, etc. But we never just check in. Thanks for asking how we're doing!

I'm not doing well right now. Been trying to get daily IV hydration with vitamins and minerals set up for three weeks (since I saw my LLMD on Feb. 10th and he ordered it). Been hitting wall after wall and just when I think it's figured out, either my insurance company or my doctor's office screws something else up. I have to say, what did I do wrong to be stuck with an incompetent insurance company and an unorgainzed doctor's office!?!? Just frustrating when my doctor's office tells me they'll do something and then I come to find out a week later that they haven't done it at all. Or that they did it but my insurance company misplaced it. GRR!

Other than that, I've had a pretty busy week. I'm in a dinner theater at my church this weekend (last night and tonight). It's called "A Night of Irish Love and Laughter...But Italian Food." I'm singing an Irish song (Whistling Gypsy) and I'm in a play ("In the Shadow of the Glen"). It's been fun, but a lot of work and I'll be really glad when it's over and I can crash and stay in bed for a week or two. We sold out both nights, though, and everyone last night seemed to really enjoy it! And we're talking about taking it on the road - we already have another performance in the making at another Unitarian Universalist church on Cape Cod. It's been fun, and it's so nice to get to have a little fun now and then.

I hope everyone else is doing well and enjoying their weekend!

Peace and healing,
Annie

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Click here to join Lyme Pals.

Click here to see my Lyme journal.

how people can come together and look out for my wellfare,amaze's me.have never seen most of you.don't know what your voice sound's like.

just want to thankyou,,gary

Your post made me happy just to read it. It is encouraging to read...going to school, working, getting the lyme under control.

Tres Bien.

You'll have to help me with the myoclonus. I know I have run across it before but am having trouble remembering what it is all about.

I did picture the kid becoming brave enough to face the monster and as he or she did the monster grew smaller and smaller.

I hope this is what it is like with you and the myoclonus monster.

Thanks for explaing about art. I, too, had symptoms increase big time with the art and mepron. I tried just taking one or the other and still had increased symptoms.

I now am doing fine with both of them. Took the last art yesterday.

I have noticed if I do not take two teaspoons a day of the mepron I have the heat waves in the evening.

Wow. We have a singer amongst us. I can hear the fun you are having in your words. This is good.

It is worth having to stay down for a while to recoup.

I wonder what happened to the tickler files whenever I find someone dropping the ball. Then, I too forget to use my tickler file and am reminded I need to start doing this again.

For those who don't know, a tickler file is where you put some kind of reminder in the future that you need to do....usually in a file that is dated.

But, I have gone to just writing a note in my time manager on the date I need to follow through on something.

I completely dropped the ball the last two years on this and need to get back to it this year.

I, too, found out I had medication ready for me on the 28th, but wasn't told that it was ready until yesterday although I have been calling.

When I went to pick it up, they couldn't find it and asked me if I hadn't all ready picked it up. I am wondering who got my meds or if it was just a data entry error in the computer?

I had no what all was involved with getting sick until I was blindsided.

Glad you are doing better. I don't know why it helps to know others care and/or are also dealing with the same stuff...but it certainly does.

Thanks so much for the personal responses.

I really believe the school has helped tremendously with my health. I'm one of those people that thrives off of stress. It's good to be too busy to think about the Lyme.

Myoclonus is uncontrollable muscle movement or jerks. It's bigger than twitches.

If anybody, has a good time I am so glad for them. I just have four legged friends to talk to. And several more of them to care for each day, really amazing. Wont be so amazing next week when the nice weather ends and we are back to winter.

Next time I will think of mycolonus and be thankful that it is just an annoying twitch or little electric movement here and there and here and there.

JD...glad to hear you have more big brown eyes to look into and the little four legged friends are doing OK.

I just have to say that I sure do enjoy and admire the positive attitude that you so readily display here. It is a pleasure to have you around!

I'm approaching two years with a diagnosis and treatment, and I have to say that I am doing so much better these days.

Most times I feel incredibly fortunate to have walked down this road.
But, I always feel incredibly blessed to have taken this journey with all of you at my side...offering encouragement, advice, humor, and most importantly...love.

It has certainly been a ``group'' effort getting this far...
And I thank each one of you for your contributions.

Much love,
Melanie

When things go wrong...we talk and talk about it...point fingers, find blame, etc. etc.

I am thinking of the work place mostly.

But, your post Mel reminded me how much this site has helped me and how thankful I am for it.

Your post put a smile on my face.

NP40 I can relate to your son. I have a walker, and it just about put me over the edge to have to use it. I am relatively young, and I got one one with a seat and wheels. But on the flip side it enabled me to go places and do things, that I couldn't have otherwise. I had some lady ask me if the walker was a new type of exercise craze because she saw me tooling around in it and I guess because I looked relatively young there couldn't be a medical reason!

I am now doing better. I am using a cane . I might even be able to go back to work soon. Not in the same capacity, I am a nurse, worked in critical care, long hours, heavy lifting, critical thinking, but maybe a desk job. I really miss nursing and work and the social aspect of being out with people and feeling fulfilled.

It is so good to hear how others are doing.

I just got back from the grocery store. I walked there tonight. The whole trip took me 20 minutes. It felt great to be on my feet, but I was fading fast by the time I got home.

It is good to hear you can be on your feet with a cane. How long can you be on your feet?

For me it just depends on the day. I have been using the walker and cane for ataxia/balance/vertigo/leg weakness issues.
I actually havn't used my walker in about 4-5 weeks! Real progress!

Lucky for me I really don't have alot of pain, just some backaches that I chalk up to my nursing days and the pain goes away when I lay down.

She posted that she was taking her children to the doctor's on Friday, and she wondered if the news would be that they have Lyme Disease.

I watched all weekend for a post from her, and now I'm concerned.

Has anyone heard from her?

I thought about searching for an old post of hers to see if she has an email address.

But, not a skill I have right now.

I tried using a cane when I first came down with this, but have put it away.

It seemed I never knew when I would need it and I didn't need it all the time.

Mostly, I have learned that if I get down and allow my body to recharge....I can move about again.

I now usually put my hand on the shoulder of who ever I am with and have them walk me out of the store or to the car when the body starts to shut down on me.

Since I get cogs in the cognitive skills, it works well because I am not able to figure out where I am and where I need to go and how to do it when the body gets this way.

Just trying to help the body move itself seems to be all that the mind can handle at those times.

The only draw back is that I do not want to put my weight on the person. When I had the cane, I could lean on it to help.

It is tough for me to try and figure this thing out. Today my body felt fine for the most part. It was strong and I was able to sit up and stand, etc.

But, the mind went a few times today. I went to the ATM and didn't have what it took to draw out $20. Strange.

I couldn't get the mind and arm to communicate to each other. There was something else going on too with the processing.

I have learned that if I have help I can get through it....depending on the help.

For example: I didn't have what it took to make copies the other day. The person that was with me helped. I put what I wanted copied on the copier and she pushed the print button and took the copy off for the next one.

I was OK as long as I just had to put what I wanted copied on the copier. It seemed that most of focus went on just being able to stand up by the copier.

Strange. I also had a lot of things I wanted copied, but only was able to copy about 5 to 10 of the pages.

The copies were for my lyme doc. I didn't tell him how tough it was to make them and why I didn't get the copies of my medical records to him yet.

So, as with using a cane...the body and mind keep changing on me. Using a cane helped me sometimes, but not other times.

The mind works sometimes, but not other times. The body works sometimes and not other times.

It is great when the mind and body are both working at the same time.

Maybe they should call this the YoYo Disease.