LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Response to my letter

 - UBBFriend: Email this page to someone!    
Author Topic: Response to my letter
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020

Icon 1 posted      Profile for Ann-OH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here is a response I got from a senator in Maryland. I have left the name off. Should I be happy or discouraged by this response?

(quote)
Dear friend,

I appreciate your email, and thank you for your interest in this issue.
I will forward this message to a member of my staff who will try and contact
you in regards to this issue.
Thank you again for your interest.

Sincerely,
Senator xxxx
(end quote)
Everyone should e-mail the senators. Here's how:
Refer to:
LYME DISEASE BILL SB596 http://mlis.state.md.us/2005rs/bills/sb/sb0596f.pdf
Please be sure that your letters reach the Senator's offices by March 8,
2005.

TIPS FOR LETTERS:

Briefly tell the politicians how Lyme disease has affected you and/or your
family. Tell the politicians we all need help! It does not have to be long
and detailed. To help them understand our situation, please include the
following information.
1. The difficulty getting a doctor to properly diagnose or treat you.
Approximately how many did you see? If you live in Maryland, did you have to
go out of state for treatment?

2. How long were you sick before getting a diagnosis? What were you
misdiagnosed with prior to a proper diagnosis?

3. Insurance problems you have had. The cost to you and your family in
dollars (estimate).

Email addresses for Maryland Senators:

[If you copy all the addresses, you can send them all at once. You can send them "blind copy." I have put parentheses before and after the list, so all you need do is copy the whole list - with the parentheses - and paste it into your "Copy to:" box on your mail form.
Your letter will arrive without the whole list of e-mails and look more personal for the individual legislator.]

([email protected]., [email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], ,[email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected],
[email protected],
[email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], ,[email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected], [email protected],
[email protected])

Ann - OH


Posts: 5705 | From Ohio | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020

Icon 1 posted      Profile for Ann-OH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here is another:
(quote)
Senator Gxxxxxxx. asked me to contact you on his behalf and thank you for taking the time to contact our office about your concerns as they pertain to SB 596, Licensed Physicians - Treatment of Lyme Disease - Discipline - Insurance Coverage. Your comments are helpful and the Senator will keep them in mind when addressing this issue.

Please let our office know when there are other issues you feel strongly about. Hearing from caring people from across the country is very important to Senator Gxxxxxx.

If our office may be of any assistance to you or your family in the future, please don't hesitate to call upon us.

xxxxxx xxxxxx

Administrative Assistant


Posts: 5705 | From Ohio | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
bg
Junior Member
Member # 46416

Icon 1 posted      Profile for bg     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ann, I saw 2 mistakes in your list of senators, so please edit OK so if they use your list, they will be sent promptly.

, can NOT proceed anyone's name ... won't send.

, John G

, Nancy J

So anyone using this list PRIOR to Ann's editing it, please just DELETE the preceding comma, and it will go smoothly.

Ann, 1st letter was a typical form letter since they don't have the staff.

2nd letter was WONDERFUL; was personalized for lyme disease topic! Way to go, you got their attention.

Betty G., Iowa


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
bg
Junior Member
Member # 46416

Icon 1 posted      Profile for bg     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ann, I lost my detailed one earlier...shucks.

Please edit your list of senators; there is an error.

, John G
, Nancy J

DELETE preceding comma; it won't go as is.


Your 2nd letter below was wonderful & progress since it mentioned the lyme bill; 1st standard form letter.

If any of you use Ann's list as is, when you block copy it to BCC, just DELETE the PRECEDING COMMA in front of the 2 names I showed above.

Betty G., Iowa


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
JillF
Frequent Contributor (1K+ posts)
Member # 5553

Icon 1 posted      Profile for JillF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ann - got same response
Posts: 1485 | From USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020

Icon 1 posted      Profile for Ann-OH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, Betty. Funny, though, the whole list went through without any glitches.
Probably best to remove those extra commas.
I just copied the list as I found it here. Probably should have checked it.

Here is part of an article that was published today:
http://www.newszap.com/articles/2005/03/06/dm/eastern_shore_of_maryland/banner03.txt
(quote)
(from NewsZap.Com)
Colburn: Slots support is up

..........................

"On Thursday, Senate Bill 596 (Licensed Physicians - Treatment of Lyme
Disease - Discipline - Insurance Coverage) will be heard. This bill has two
main provisions.

"It will protect physicians who use clinical symptoms in addition to or as
well as the surveillance criteria as set forth by the Centers for Disease
Control (CDC) to aid in the diagnosis of Lyme Disease. If professional
misconduct charges are levied against a physician based on a complaint from
an insurance company, pharmacy benefit manager, or health services plan, in
relation to that physician's clinical diagnosis, or treatment of Lyme
Disease, that physician will have access to the complaint and related
information prior to the hearing.

"The other aspect of the bill requires insurance companies to provide
coverage for long-term treatment of Lyme and other related tick-borne
illnesses with antibiotics or antimicrobials. The problem begins with
inadequate and inaccurate laboratory tests.
(end quote)

Ann - OH


Posts: 5705 | From Ohio | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
Linda LD
Frequent Contributor (1K+ posts)
Member # 6663

Icon 1 posted      Profile for Linda LD     Send New Private Message       Edit/Delete Post   Reply With Quote 
At least you got a response--I haven't heard from anyone yet...

Linda


Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
JillF
Frequent Contributor (1K+ posts)
Member # 5553

Icon 1 posted      Profile for JillF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just received this reply from one of the senators listed:

Thank you for your recent email regarding SB 596. I appreciate you sharing
your circumstances and views with me. As you may know the bill has been
coassigned to Senate Education, Health and Environmental Affairs and
Finance. I do plan to support the measure.

Thank you for sharing your views with me.

Very truly yours,

--------------
ALSO,

My aunt sent emails to all senators listed and she said that she received replys that it needed to be in the 7th district and they wanted her address (she lives in a different state).

??????????????????


Posts: 1485 | From USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
bel1268
LymeNet Contributor
Member # 4133

Icon 1 posted      Profile for bel1268     Send New Private Message       Edit/Delete Post   Reply With Quote 
I received these:

Ms. Estep

Thank you for your email sharing your personal experiences and views with me. I certainly plan to support the legislation.

Very truly yours,
XXXXXXXX

Dear friend,

I appreciate your email, and thank you for your interest in this issue. I will forward this message to a member of my staff who will try and contact you in regards to this issue. Thank you again for your interest.

Sincerely,
XXXXXXXX



Posts: 240 | From Southern Maryland | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
henson2
Frequent Contributor (1K+ posts)
Member # 463

Icon 1 posted      Profile for henson2     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

I got 3 responses to my letter to the senators. Two were as you mentioned above. The third one was very personalized, and said she was sorry about my having to deal with this illness and she wished me well.

Good wishes to everyone!
 -

[ 08. December 2005, 10:40 PM: Message edited by: henson2 ]

Posts: 1067 | From East Coast | Registered: Dec 2000  |  IP: Logged | Report this post to a Moderator
Linda LD
Frequent Contributor (1K+ posts)
Member # 6663

Icon 1 posted      Profile for Linda LD     Send New Private Message       Edit/Delete Post   Reply With Quote 
I haven't gotten any response from my letters.

I also wrote my senators. No response from them either.

sigh

L


Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.