I only have a few minutes...gotta get to bed so I can get up tomorrow early and go visit her again.

She's in neurology ICU. She's had pneumonia since last Monday. She yelled out and then collapsed at her Assisted Living facility this pm.

She was unresponsive after that. They THINK she may "only" have had a seizure. She's had 3 major strokes, so that was the first concern.

They had to intubate her, so she is knocked out. She seems to be coming around, but they have her sedated. Hope that makes sense.

Anyway, please pray for her. Thanks!

I love you all!

Gayle

Consider it done...prayers for your Mom (and you)!!

Hope all goes well,

We'll pray for you and her both! So sorry to hear about your mom.

Keep us posted!

Lots of prayers from the east moving westward towards you and your mom.

get enough rest

Glad you had enough time to post your note so many more prayers can be heard for your beloved Mother.

Later, please post as you feel up to it after this major crisis is over.

Love, Bettyg, Iowa

I am just getting to lymenet, I am praying your mom will be ok and you have the support you need.

She has responded to me with head nods and the squeezing of my hand. So, time will tell.

Thanks for the prayers. We're going to need it. I have one brother in Florida and one in Texas, so I'm the chosen one.

------------------
oops!
Lymetutu

My prayers are with you. Hang in there....

Hugs
Sherry

I just saw this.

So sorry this happened. Both your mom and you will be in my prayers for strength and recovery.

Yes, Gayle/tutu, is the chosen one for her family as well as this wonderful lyme board.

Gayle, thanks for the update on your Mom. Glad she is still able to communicate and knows you.

Prayers, lots of prayers, are on their way for you and your Mom.

Healthy wishes,

Mom struggled all night to move and to talk, and was exhausted today. I didn't get alot out of her today.

One of her caretakers from the assisted living came by to see her. She's known Mom for 6 1/2 yrs and has come to love her. [of course!]

She said after physical therapy at the hospital and rehab, she would still have 45 days to improve and try to become independent enough to stay in assisted living.

She can also have home health at the assisted living to help her adjust.

Her neuro said she may not be able to get back to where she was before, especially since she's already had 3 bad strokes and those were significant.

So keep the prayers coming. I'm doing the best I can with what I've got!

Keeping you and your mom in my thoughts and prayers!!!!

Today, I spoke with her dr and he said "She's not doing very well." So I asked him if we could try giving her some mangosteen juice. [which of course, he had never heard of]

I gave him research abstracts from Pub Med and told him a little about it. He said sure, give it a try.

So they put in straight into her feeding tube. Her temperature was around 100...high since her normal is 97.

She has been on the juice since last June and even with the pneumonia last week, had very little fever and was not even in bed with it.

SOOO....30 minutes later, I felt her forehead and it felt cooler to me. Twenty minutes later they came in and took her temperature. It was 97!

Even I was amazed! She then became more alert .. opening her eyes at the slightest thing. Before, she only opened them [or one] if we begged, shook, and called out her name.

When I left around 6pm, the fever seemed to be coming back. The mangosteen has a half-life of about 6 hrs. So I'm hoping tomorrow, we can give her several ounces in the a.m. and more in the afternoon.

We can't make much progress until this pneumonia is cleared. It's not going to be easy.

Won't bore you with more details....just praying for more HOPE tomorrow.

Thanks to all for the prayers.

So glad the dr was willing to try something he was not familiar with.
Good thinking on your part!!

So very sorry to know what you are going through...

Keeping you and your family close in my thoughts and prayers.

Much love,
Melanie

i hope that you have enough support around you.

blessings to you and your mum

Hang in there, take care of YOU, and all our prayers continue flowing both your ways.

I now have to work on getting her things out of her place at assisted living and finding a good nursing home.

Thanks for all the prayers. They're working!

So glad the juice is working and the Dr listened.

ya'll are in our prayers.

Anything you need shoot me an email.

Hope the best works out for your mom!

I know without a doubt that if I hadn't pushed the drs to allow the mangosteen, she would not have made the progress she's made.

I found an acceptable nursing home 10 miles from us. The one that was closer smelled terrible. I was NOT IMPRESSED! And can you believe it cost $500 a month MORE than the other one?!

I think the only reason they get away with the higher cost is that it's in town. It's 8 miles from us, so no big deal that I have to drive 2 miles more to get better care.

They put the "permanent" feeding tube in today and that was causing some pain, but she should be fine in another day or so. I think they will take her to the nursing home Wednesday.

We hope to have her progress enough with therapy over the next few months so that she can still go back to assisted living. I really hope she can. Time will tell.

Thanks to all for your prayers. I know the prayers have done alot for her. She's on alot of prayer lists across the country. God is good.

Also glad that you found a suitable nursing home. To me, a 10 mile drive sounds close.
We had to drive 25 miles (one way) to the only nursing home that was suitable for my father. Since he would walk off, we had to have a secure unit for his safety.
He had been mis-diagnosed with Alzheimer's, but we learned very late in the disease that he had Lyme.

I hope that your Mom has been more comfortable today.
Will continue to pray that she improves & that both of you receive the strength you need at such a difficult time.

And to you, Miss TuTu -
I'm sending the Award for Kindness and Thoughtfulness!!!
With all the responsibility you have on you at this time, how did you find time to think about me?

Sending love & a very sincere Thank You!!!

And mom hasn't been doing as well physically these past two days. I hope she isn't having more strokes. They will move her to the nursing home tomorrow.

With all my family out of state, I'm really struggling. I broke down and cried for hours today. I needed to do that. Can't say I felt any better though.

Thanks for continued prayers. It breaks my heart to see my mom this way.

Her speech is coming back. At least she can say a few words. I won't find out until Monday about rehab and what they will do for her.....cost, etc.

I'm watching the home like a hawk, but wish I was closer to her. I have quite a few questions for them Monday.

She also has cellulitis because she's been retaining alot of fluid. Anyway, I'm rambling now!

Thanks to everyone for their prayers. They are really helping!

Thanks for the update; glad you/hubby got her things moved to nursing home. Yes, it's really hard especially when I moved Dad to hospice the afternoon before his death the next night.

Glad you had a good cry; do it as needed; take time for yourself, and quiet time just for you.

How old is your Mom, Gayle? Best wishes she continues making progress each day, and that you got her into a fresh-smelling home!