I was wondering if anyone has any new updates on this. He is also starting Una Prima de Gato (cat's claw) with it.

Thanks.

I made sure to start very slowly and ramp her up to the full dose.

We have been pleased w/ her progress and Dr. Jones added in plaquenil during our March visit.

About day 5 she experienced a very barking cough that lasted about a week or so and one time when she hadn't been taking it (skipped about a week), the coughing started again when she resumed the dosage.

I feel that it is related. We also noticed her pupils seem more dilated since taking this medicine but, so far, vision and optic nerve are fine!!

We wish u luck! I'm about to start Ketek and Mepron for my never-ending Babs!!!

Sherry and Katie

Cat's claw is very powerful, and if it causes side effects, you won't know if it's the abx or the cat's claw.

I totally agree with you about starting one thing at a time. Why then did the Dr not recommend this - I don't know.

It is so frustrating when the Dr. tells your child one thing about taking meds and you feel differently. What is the child supposed to do.

I feel this totally confuses them and does not help in the treatment.
Sorry if I sound angry, but it is such a long struggle trying to get these guys well and this only makes it more difficult.

My son is on a total sleep reversal, so unfortunately I am not always awake when he is - so I have to trust what he tells me about taking his meds properly.
I hope to sit down with him tonight and go over this. I want him to trust the Dr., but this means telling him to do something other that what the Dr. said.