posted
Hey all NH lymies....looking for your help to turn your frustration into action.
Yes, I know we're here cuz we have lymebrains, but with a little support of each other, I think we can reach out and make a necesssary difference.
I have begun contacting support for medical advisory, and a few other Lymies... If you think you could be involved in the grassroots (no tick in this grass!) efforts of getting a LD support started in NH, PLEASE email me with :
1.name 2.town 3.telephone number for voice contact 4.area in which you'd like to help... letter writing, publicity, know a good free location to meet, have informational videos, have supportive local Dr, know more than I do....anything!
Let's get out the word that LD lives in NH, and we want to to Live Free, not die!
Hello, I tried a while back to see if there would be any interest in having a support group here in NH and there was, problem being I was not well enough to be in charge of it.
I did it for one time just to get together with some others to share.
I for one would love to go if someone could organize one.
I know there are some FMS and CFS and other groups held at the local hospitals and maybe even local town halls might be a possiblity? I'm not sure if we could get permission to or not to use one of these places but we could start there.
Let me know what you think.
I am close to Concord or Manchester. Swiss My email is [email protected]
[This message has been edited by swissmoeka (edited 11 April 2005).]
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Will you have a web site ? Hope so when you do post it thanks Tree
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
| IP: Logged |
posted
oh, Tree, This is in the pre-birth stage...a website sounds way to big for me...I can barely type and search the web....but who know what kind of talent is resting in NH...
I still need more intersted and knowlegdable folks to help.
posted
Getting a LD support started in NH, PLEASE email me with :
1.name - Jo-Anne Hack 2.town Barrington, NH 3.telephone number for voice contact 603-664-5957 4.area in which you'd like to help... letter writing, publicity, know a good free location to meet, have informational videos, have supportive local Dr, know more than I do....anything! - I would like to help in any way I can. We could meet at my house or at a restaurant.
Do you know that Portsmouth Hospital is having a talk on "Living with Lyme" on June 27 from 7 - 8:30 PM at the Portsmouth Marriott - call 433-6976 to reserve a space. I will be there with my daughter because she has Lyme.
You can contact me directly for info about what doctors I have wasted my time on and what doctor we see now who is very knowledgeable.
I have been wishing for a Lyme Support Group in my area for a long time.
If you go to www.lymedisease.meetup.com and search on zip code 03801, you will see where I have tried to start a group but without any results!!! Please keep in touch!!!
Posts: 16 | From Barrington, NH, USA | Registered: Jun 2003
| IP: Logged |
posted
Oh, I couldn't wait to get home from work and see if I had any response to my message. Unfortunately I haven't heard from anyone! Please e-mail me at [email protected] or call me at 603-664-5957!!!!
Posts: 16 | From Barrington, NH, USA | Registered: Jun 2003
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/