LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Silly question about Western Blot

 - UBBFriend: Email this page to someone!    
Author Topic: Silly question about Western Blot
ssaakk123
Member
Member # 7278

Icon 1 posted      Profile for ssaakk123     Send New Private Message       Edit/Delete Post   Reply With Quote 
OK. Forgive me for sounding terribly ignorant, but I really don't know. I've read that tests like the Western Blot are not conclusive of Lyme if positive. Thing is, would it show up positive if nothing was there?? I'm just trying to understand...
Thanks!

Posts: 29 | From Toronto, Canada | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

Icon 1 posted      Profile for Kara Tyson         Edit/Delete Post   Reply With Quote 
The ELISA/ Western Blot are antibody tests only and are not accurate.

There are a number of reasons why these tests are not accurate.

Not only are they not conclusive if positive, they are not conclusive if negative.

You could have a false positive if you were making antibodies to a disease similiar to Lyme (such as syphilis).

You could have a false negative for many many reasons. But aprx. 36% of people do not make antibodies at all to Lyme. Some people used to make antibodies, but no longer do.


Posts: 6022 | From Mobile, AL | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 6 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
But Kara, if she has specific bands on the Western Blot, she has Lyme. I don't believe in false positives. Just my opinion.
Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

Icon 1 posted      Profile for Kara Tyson         Edit/Delete Post   Reply With Quote 
Some bands are specific for Bb, you are right. Some are not. Some are just specific for Borrelia in general.

But really the only disease I can see that might be confused lab wise would be syphilis...and it just is not a common disease any longer in the general population.


Posts: 6022 | From Mobile, AL | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
ssaakk123
Member
Member # 7278

Icon 1 posted      Profile for ssaakk123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for discussing this issue with me. I just want to know a little better if lyme is likely to be a part of me. Also, that would determine if I must find an llmd. As far as my little mind is concerned, I think that if something like lyme is not there, it shouldn't show up at all.

I don't know, maybe I'm wrong too...


Posts: 29 | From Toronto, Canada | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
bg
Junior Member
Member # 46416

Icon 1 posted      Profile for bg     Send New Private Message       Edit/Delete Post   Reply With Quote 
123, Welcome to this 24/7 support group board!

Listen to Kara, she is a RN; you can read about her background in the OFF TOPIC area. She shared it once with me and I made a special post I think called Kara Tyson's medical background.

Here's TREEPATROL's and tincup's combination newbie links. http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! http://www.lymeinfo.net/lymediseasetreatment.html

The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 2 USA's Lyme testing labs:
IGENEX LAB:
797 San Antonio Road
Palo Alto, CA 94303
1.800.832.3200.

(If the early test, called IGM, is negative; the later test IGG is NOT done!)
Please see their web site: www.igenex.com for their current prices and

to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your FROZEN blood taken EARLY in the week so it doesn't sit in post offices!

Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!

NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers.
Medicare patients do NOT have to prepay!

OTHER LAB: MDL from NJ, www.mdl.net
see their site; they too require their own form. NO prices are listed; you must call their 800 no.

Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.

NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).

FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!

I came across this new web site of good info from Natl. Institute of Health's medline library....covering many other dx illnesses...Alzheimer's/dementia, Parkinson's, Bell's Palsy, MS, FMS, CFS, IBS, etc. and was posted on www.lymenet.org.

300 OTHER medical condtions mimicking lyme disease w/citations and author's
name, Art Dougherty, Calif., 2001, is at bottom of site page! http://www.geocities.com/HotSprings/Oasis/6455/misdiag-links.html

Hope you each find some good info there. Saw it's from Art Dougherty, Calif. in 2001. http://www.geocities.com/lymeart3/misdiag-links.html#disease

Also, see Cheryl's www.lymeinfo.net's extensive web sites on LD Diagnosis, Symptoms, and Treatment:
http://www.lymeinfo.net/lymediseasetreatment.html

Bettyg, Iowa


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

Icon 1 posted      Profile for janet thomas     Send New Private Message       Edit/Delete Post   Reply With Quote 
123- The CDC has requirements for a positive western blot that are very stringent, these are for tracking the disease only to ensure they count only very definite positives. Most labs use the CDC requirements when reporting as positive or negative.

on the other hand many informed lyme docs and patients rely on lyme specific bands. for example, the 41 band is for the flagella of a spirochete and is commonly found. It is not specific to the Lyme bacteria. As far as I know these are the bands that are specific-18, 23, 30-31, 34, 37, 39, 83 and 93. The well known lype pediatric doctor, Dr Jones states that only one of these bands is needed to confirm Lyme.

You have several of these bands. If you have symptoms get yourself treated ASAP, tomorrow would be good. And get to see a LLMD.

I am a Medical Technologist (ASCP), that means medical lab tech, not currently working in the field.

Janet


Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by janet thomas:
The well known lype pediatric doctor, Dr Jones states that only one of these bands is needed to confirm Lyme.

You have several of these bands.


Exactly my point above. Any dr worth his weight would agree.

------------------
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.