Dear, dear Lymie friends,I thought at one time that life was devoid of joy and promise. I was so sick with this disease, that I was physically and psychologically isolated in a bed or the couch most of the time. I couldn't think straight, sound and light were impossible to deal with and walking was nearly impossible.
I always promised myself that if I ever got better I would go back to Lymenet and let people know. I used to think I might never be well. But it's good news. I am better. Not just better, I am completely better!
Whenever I would try to get off the antibiotics in the past I would get sick again within three days of stopping antibiotics. Now, after ten months of intervenous (1 month IV Rocephin) and nine months on oral antibiotics (mostly Doxy 400 mgs), I am walking normally and with zero pain. I have no symptoms of Lyme. My knee and hip pain is gone. Miraculously my achilles tendonitis is gone!
I can dance, and do normal chores. My mind is back. I even remembered my Lymnet username and password without looking it up! That's saying something! LOL.
The point is, we can get better. Be patient. Stay on your meds. Don't give up. I was shuffling around in unbearable pain for five years, sometimes unable to reach the bathroom except by crawling on hands and knees. That's all over. I'm back. I can type. I can laugh. I can be a mom. I can be in charge. I can be respected again for being a contributing member of my family and community.
Get a good doctor. Don't let them give up on you. And join me. With persistance and will power, I think we can all get better.
Good luck to you all. This thing called Lyme is an invisable evil that is hard for anyone who doesn't have it to understand. When I felt I couldn't complain to anyone else, I always found Lymenet an incredible support. I always knew you all were fighting along with me. You gave me hope, and even when I didn't really believe it, it kept me going.
Thanks guys.
Meemer