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» LymeNet Flash » Questions and Discussion » General Support » **BurnBitter** & all -- Thank you!!

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Author Topic: **BurnBitter** & all -- Thank you!!
earthgirl
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Member # 7314

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I was recently diagnosed and had the good fortune of running into BurnBitter at the doc's office. She told me about this great site, and i've already learned SO much from you all. THANK YOU BurnBitter, and thanks to all of you as well.

I've been on Zithro for 2 weeks now and about to add Flagyl or Mepron or Tinidazole for the babesiosis... Any suggestions?

Thanks again.


Posts: 22 | From Bay Area, CA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
bg
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earth,

So glad you were able to get hooked up right away with this awesome site! I'm just going to copy/paste some basic info here especially how to view TREEPATROL & TINCUP's newbie links, etc.

Welcome to this 24/7 support group board!
Here's TREEPATROL's and tincup's combination newbie links. http://flash.lymenet.org/ubb/Forum1/HTML/029917.html
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! http://www.lymeinfo.net/lymediseasetreatment.html

The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 2 USA's Lyme testing labs:

IGENEX LAB:
797 San Antonio Road
Palo Alto, CA 94303
1.800.832.3200.

(If the early test, called IGM, is negative; the later test IGG is NOT done!)
Please see their web site: www.igenex.com for their current prices effective May 1, 2005 and

to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your FROZEN blood taken EARLY in the week so it doesn't sit in post offices!

Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!

NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers.
Medicare patients do NOT have to prepay!

OTHER LAB: MDL from NJ, www.mdl.net
see their site; they too require their own form. NO prices are listed; you must call their 800 no.

Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.

NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).

FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!

I came across this new web site of good info from Natl. Institute of Health's medline library....covering many other dx illnesses...Alzheimer's/dementia, Parkinson's, Bell's Palsy, MS, FMS, CFS, IBS, etc. and was posted on www.lymenet.org.

300 OTHER medical condtions mimicking lyme disease w/citations and author's
name, Art Dougherty, Calif., 2001, is at bottom of site page! http://www.geocities.com/HotSprings/Oasis/6455/misdiag-links.html

Hope you each find some good info there. Saw it's from Art Dougherty, Calif. in 2001. http://www.geocities.com/lymeart3/misdiag-links.html#disease

Also, see Cheryl's www.lymeinfo.net's extensive web sites on LD Diagnosis, Symptoms, and Treatment:
http://www.lymeinfo.net/lymediseasetreatment.html

=========================================
IF YOU ARE TRYING TO GET SS DISABILITY:

This message is sent upon subscription, and again monthly.
Please let the moderators know if any of the links have changed.

There are several links found by clicking on 'Links' on the
website or by going directly to http://groups.yahoo.com/group/Disinissues/links


There are many more links, as well as advice, in the "useful" messages
in the Files area of the website. Go to http://groups.yahoo.com/group/Disinissues
and click on Files.

BETTY NOTE: Look for the female MD's DETAILED BACKGROUND in the links. Print off her detailed responses as to why she could NOT do her job, and then apply that to YOUR own job as to why you no longer can do any type of sustainable work now nor in the foreseeable future!

These links are a compilation of several areas of interest which are
commonly requested and mentioned. They reflect the collected wisdom
of this group. Check them out - you just might find the information
you were looking for! Take a look at Files that are not specific to
your situation, because they might be helpful anyway - what works for
Social Security may work for LTD claims, what applies to CFS may apply
to your medical condition.

The Welcome Message and Group Guidelines are also in Files, if you
need a refresher on how this group works.

You must register with Yahoo to use the website, but note:
Be careful not to permit your address to be put into the directory
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You do not need a Yahoo address to use the website. Your email address
is what Yahoo calls your "alternate address."

Contact the moderators at
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or for AOL subscribers:
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Bettyg, Iowa


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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And take LOTS of acidolphilus!!! Welcome!

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ilads.org/

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

http://www.anapsid.org/lyme/matthewgoss/index.html


------------------
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
earthgirl
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Member # 7314

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I appreciate your tips. Just wanted to bump this up for Burnbitter... are you out there?

Posts: 22 | From Bay Area, CA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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