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» LymeNet Flash » Questions and Discussion » General Support » It's so unfair...just because I have Lyme!

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Author Topic: It's so unfair...just because I have Lyme!
ssaakk123
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I just got back from my family doctor. I'm in tears. I tried to share with him my Igenex results, and the talk my other dr had with Dr. Harris (who confirmed I have Lyme).

This dr didn't even want to look at the Igenex results or hear about what Dr. Harris had to say! He kept trying to convince me that I have MS. He wants me to see and speak to a neurologist who will convince me.

He also told me that Igenex is probably a quak lab, and that everything on the Internet about lyme is unture!! He even told me that the side effect of dizziness from the doxy is probably MS. (Another dr. prescribed doxy for me after he spoke with Dr. Harris).

I am so frustrated. This is just not fair. I haven't done anything wrong to anyone. I just want treatment to get better.

Why doesn't he talk with Dr. Harris to find out more? Why not do some research before he speaks?

Still waiting for the Lyme knowledgeable dr appointment...

Thanks for listening.


Posts: 29 | From Toronto, Canada | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
janet thomas
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Don't waste your precious energy trying to teach the unteachable. Move on. Don't give it a second thought.
Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
cootiegirl
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I agree - move on. When the docs protest that much and disregard the patient, they are not practicing medicine but dealing with ego. It's obvious this would require the doc to move into unknown territory and having him/her possibly know less than a patient - a very uncomfortable place for a doc to be....

I was in a similar situation with a health care provider that refused to treat me for babesia. So I left the practice, never to look back.

Unfortunately there are more physicians like this than not, so don't let it get to you. Once you find a llmd, you will get the proper care you deserve.

cootiegirl


Posts: 1728 | From New York State | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
Kara Tyson
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ss,

Unfor. what you are experiencing is very common. We have all through it.

The best thing that you can do is forget about your regular Dr. You will never convince them.


Posts: 6022 | From Mobile, AL | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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Bring up the gator pit! A new ducky.....
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Aniek
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This doctor has been told many times, by people he thinks are knowledgeable, that chronic Lyme does not exist and that there are "quacks" out there trying to take money away from us poor, suffering patients.

I know it's easy to demonize all the ducks. Some are worth demonizing. Others are honestly trying to do good, but they just don't know. I had a really caring doctor who even went on his own to meet with my LLMD to check her out for me. He had seen a lot of patients spend money on "cures" that didn't help, and didn't want me to go down that path.


Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
lemonhead
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I'm sorry this has happened to you and I will be honest i am suffering from a big bout of depression with this stupid disease so i may ramble a bit.

I live in south Texas, and my primary physicain said there was no Lyme in Texas, but i insisted on a test and he did a lyme titre even though i knew this was not going to show late stage lyme. He even told me to stay off the internet.

After him I went on to another doctor, an internist, he stated what the other one did, if the titres didnt come out positive then i dont have lyme. Then he continued to tell me to stop researching about lyme disease that He had much more money and many more resources than I to be able to research a disease. Needless to say, i never went back to the quack, Jack.

I now have no primary physician in my home town. I fly to see my LLMD who now is my primary physician as those here in my home town wont touch me.

My psychiatrist wont read the information that i supply him for Lyme disease patients. When i told him i was in the hospital-mental ward-7th floor, he laughed and said thank God you werent in the really bad part of the hospital with the real nuts. How glib and uncaring can a psychiatrist be? He just prescribed some more mind altering drugs. Oh well.

ssaakk123-Run, run as fast as you can to the nearest LLMD. What does "Still waiting for the Lyme knowledgeable dr appointment..." mean? A sourpuss in texas.

For a bit of humor because you need it, I just finished writing this.

If vaginal cream goes on your toothbrush you may have Lymes,
If you pass your street 3 times you may have Lymes,
If you call your dog your spouse, and can't recognize your house,
If you type your name backwards you may have Lymes.

If you lose 50 pounds for no reason, you may have Lymes,
or if you find 50 pounds for no reason, you may have Lymes,
If your taste buds are all but gone, and you keep smelling something wrong,
If your favorite food tastes like mud, you may have Lymes.

If your mind doesn't recognize your feet, you may Lymes,
If you're swaying to and fro, you may have Lymes,
If there's an electrical zap in your head, and you feel like you drank a keg,
If you walk into the walls, you may have Lymes.

[email protected]


Posts: 156 | From Corpus Christi, Texas USA | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
Tincup
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Not to feel bad oh Canada darling..

You can't help it if you doctor is an idiot.

I can't tell you what to do.. but I can tell you what I would do.

I would type up a quick letter to him ASAP. I would tell him that you reported his comments to Igenex and their lawyers will be contacting him directly.

I would also tell him I reported him to the medical board.. or whatever you call it in Canada... and the health department... and carbon copy the letter you send to him.. so he see's it.. to his local hospital administrator.

That ought to rattle his cage.. like he did yours.

Better yet... or in addition to the above..

I would write to the local newspaper in your town.. actually where he is located.. after you get properly diagnosed.. and tell folks that you (along with thousands of others) were misdiagnosed with MS and really had Lyme. If you care to mention his name.. it wouldn't hurt MY feelings one bit.

And if none of the above suits you... I would be pleased to call him myself and tell him a thing or two.

I am sick and tired of these IDIOTS not only harming people.. but then belittling them and purposely putting down sick patients when they try to think for themselves.

If you can rock his stupid little boat.. perhaps he will think twice before he hurts someone else.

He's a PIG. Don't let a pig ruin your day.

OK?

------------------
If you get the choice to sit it out or dance...



Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
bigmamma
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Hey ssaakk123,

Chin up. This has happened to most of us. I had to leave my family doctor that I loved very much because of the exact same thing. I was heartbroken that this man I had chosen to be trusted with my life would treat me as if he didn't believe I really have Lyme. (Classic symptoms with neuro involvement, hx EM rash documented, and CDC + Western Blot). By the way, I saw a total of 16 docs and specialists before my Lyme diagnosis.

You will just have to let him go and move on. Someday, unfortunately, someone in his family will finally come down with the disease or maybe the Doc himself, and THEN he will finally believe.

Until then, you must get on abx if you are not already. Keep trying to get an appt. with an LLMD. Remember, your health is in YOUR hands and you must continue to be persistent.


Posts: 199 | From here | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
ssaakk123
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You are all sooo wonderful! I can't thank you enough for your support.

You're right I need to move on without him. I've known him for some time and I actually thought he'd be happy to hear my news...

The Lyme dr closest to me is booked, so I have to wait longer for an appointment. That's all I meant.


Posts: 29 | From Toronto, Canada | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
dulcamara
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quote:
Originally posted by bigmamma: Someday, unfortunately, someone in his family will finally come down with the disease or maybe the Doc himself, and THEN he will finally believe.

Sadly, this doesn't always help. In my LLMD's office I met a woman who had traveled a long way to see him. She was there because she couldn't get any help in her area, and her brother, a doctor, thought her symptoms were psychosomatic. He was very contemptous of the idea that his sister has Lyme. She was devastated by his attitude.



Posts: 78 | From Northeastern USA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
Linda LD
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Lemonhead,

Find a shrink that is sympathetic and educate them. That is what I am doing...

I'll let you know how it goes. The one I have says she recognizes I don't have menchover by proxy and that I am ery concerned about son.

Have shrink call doctor and have llmd send his views on your lyme.

I'll let you know how it goes for me...

L


Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
   

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