I think it's very possible alot of ALS cases are actually chronic neuroborreliosis, combined with multiple coinfections, that have gone untreated for years.In my experience, I first went to see a Neuro, before an LLMD, as i had bells palsy, slurred speech, respiratory problems, muscle cramping & twitching, muscle weakness, and a foot-drop.
The Neuro didn't acknowledge Lyme Disease or associated coinfections at all. The LLMD, did acknowledge ALL of my symptoms, and my past history of having & being treated for Lyme Disease 6 yrs. previous, and of course the positive test results, and therefore treated me accordingly.
With Bicillin LA, IM, i had dramatic improvement; my speech improved as well as my balance; when i was treated for coinfections, Babesia & Erlichiosis, i got my breath back and my energy.
Bicillin was the best drug for me, as was the treatment of the coinfections.
I only noticed a decline after my LLMD recommended I get flu shot, and then he increased my dosage of Rocephin & Augm. at the same time.
I have heard there is mercury in those flu shots, and I didn't experience improvements with Rocephin & Augm combo. I don't know why in the world this LLMD would recommend I get a flu shot at that time, when there was active infection and loads of abx in me!
I'm in the process now of finding a new LLMD, as well as heavy metal testing.
I'm very hopeful once I have a new LLMD, the right abx combo that I have great results with, coinfections & heavy metals addressed properly, that I will continue to improve.
I began my Neuro visit telling him i had lyme 5 yrs ago, and that now it's back, but worse. This Neuro never even tested me for lyme or coinfections, actually said "we don't do that here", but he did send me back out for an AIDS test, "so as to rule everything out & because there was 1 case in NY where someone showed the same symptoms as me, and was given an aids cocktail, which led to recovery". Go figure...
So my question is - How many of these ALS cases are untreated, advanced stages of Lyme Disease & coinfections to begin with?
I always knew Lyme was my demon. To me, A.L.S stands for Also Lyme Symptoms. Why is it now that all these studies are using abx treatment for ALS & MS, even Hopkins? Sure, they won't dare say it's to treat bacteria running rampant in your body, rather, they will claim they use abx to cause a "protein reaction". Oh, okay....
If they find that this spirochete can in fact cause ALS or MS symptoms, can you imagine how much grant and research money is at stake? My god, they have been receiving millions of dollars for so many years, yet they have no idea of the cause or any drugs to treat it.
Oh, i forgot they have one drug Rilutek, it costs about $1000/month and doesn't do anything. In fact, if you have the BB bacteria, it can actually make it progress faster. In my experience, i was on it 15 days, and it almost killed me by making my breathing and swallowing worse.
History has shown what the syphilis spirochete can do to the nervous system, brain, and the whole body for that matter. So why is it that they wont look closer at bb spirochete that is so very similar?
In the 80's so many people would come out of school and study aids, not that they necessarily wanted to, but they knew if they wanted research money that's where all the money was going.
We need more grant money for BB and tick born coinfections, & better testing protocol in place, then maybe we have a chance.
They will realize some day what a serious problem this is. Like i said above, i was treated years before and then relapsed, perhaps due to repeated infections.
Think about all the children that have it now and how fast its spreading, very scary thought.