i have 4 tick bites that i can document, so can say for sure. from surveys i have take from lyme patients that got seriously ill, most felt that they had been bitten multiple times.sept '91, vacation to Nantucket Island. a woman named Betty Peiring (sp?) used to post here a few yrs ago. i met her at senate meetings in NYC and at Gettysburg. very sweet lady. she died a year or so ago. she had to go off the island for medical care.
she was our taxi driver who took us to our hotel when we first arrived. i found about 4 yrs ago, that i have a text-book bullseye rash on vacation photos from that trip. and photos of me comforting my obviously sick baby daughter who had the "summer flu" just after that trip.
none of us were ever the same. i had passed this to her thru my breastmilk.
we also took photos from our '93 trip to Nanucket of me with the text-book rash. we were plannig to try for another child and this would be our last vaction for a while. it turned out to be our last real vacation.
i wanted to return to Nantucket because i was too "alzhiemers" to think of any place else, and it was the last place i was ever happy. i got pregnant with my son just after this vacation and he was born with lyme. and lost of rashes. but i live in bucks co. drs here are HORRIBLE! i know quite a few personally . and have nothing nice to say.
'96 rash i got at brookside swimclub in Yardley, PA. i was too weak by then to push my son's stroller across the gravel parking lot, so i parked in the over-flow parking in this woodsy , grassy area where the jungle gym is and the crrek where some of the children liked to play and where some of the children have emerged with rashes according to a young life guard i talked to. after i alerted her ( but she did not seem to take me too seriously , she said she told the parents, but they were not concerned.
there was a narrow short trail that led to the back entrance that was lined with the tall grasses that area. i got bit on the top of my foot. my kids did not do to well at the drs office...
our then clueless pediatrition who wrote an article on lyme filled with mis-info and gave me mis-onfo when my daught got rebitten and reinfected, is often a guest of a member there. as was the close friend of the pediatric ifectious disease specialist mom at my daughter's small private school she went to because of her untreated and undiagnosed late stage lyme disease.
funny, even after she found out that not only was i gravely ill and still not able to get the care i needed , but even found out i passed it on to my children. does she not know what this is ? and if she didn't know, why was she not interested in learning? what was all the animousily i got from them about?
i did not go to a dr for the '96 rash because my kids did not do to well caged in drs offices and our pediatrition would, after i got very sick and "changed" and also asked her for help with the inappropriate way the first preschool was with my daughter that caused problems lasted years ....
....and she was reinfected - this masked my ability to realize something was very medically wrong with all of us. she had social connections there.
and the infectious disease specialist was a perennial "best" pediatric specialist in area magazines. and highly regarded. and had on her website that 10 days is sufficient treatment for lyme.
so why did she not tell us what we had and "treat" my children with 10 days abx if that was all they needed to get better and go on to "post lyme syndrome" which she claimed the outcome was "excellent". my kids aren't even worth 10 days of abx?
i also was rearended in a car accident in fall '96 and that is when my body totally ceased up. and guess who i was confiding in? did n't even know i was hurt. still need more physical therapy.
paid the hefty co-pays because i found out too late i was injured, and when the 12 wks the insurence co. alotted for treatment ran out, and i insisted i was still in extreme pain, the p.t. molested me.
one way to get rid of a patient they don't want. and not the first dr to resort to that. my word against theirs. especially since then i was a sero-neg lymepatient and didn't know i had photos and did not know what the reccurring rash from the '96 rash was . all i had pos was IgeneX "unscientific" L.U.A.T. at an F.D.A. unapproved lab.
'98 rash. in my own house. tues nite, we hit a deer on our own street that just darted out in front of us. my husband breaked right away and we were driving slow, and when my husband walked back, ( he did not want me to be too upset, so sent me inside ), it was no where to be see. we were driving very slow, it probably was not hurt. just suprised us.
but it is the mice that are the culprits. they get into our house. i could here them scampering at nite in the drop cieling in our basement, and found a dead mouse in front of the washer after going down there to do wash late at nite. strangely, it was white with black patches, like a pet mouse, rather than the usual grey field mouse.
i used to stay by myself and often fall asleep in this cheaply added sunroom in back of our garage. the mice had eaten the 'Sears' vinyl duct work and so no airconditioning back there and no heat. i kept my garden seeds ( only had a couple of gardens. ) my kids did not have the joy of planting marigolds and greenbeans.
my daughter did have the joy of shopping at "my mother-in-laws stores". she has about 50 tops that say 'aeropostle'. but sleeps on a matress on the floor. my in-laws have a house in the mountains neer ski slopes. and they have never been skiing. but i am sure the cousins have.
we had this cheap foam kind of thing that my sister in law was discarding, and so it came to us. the mice were leaving the ramains of the seeds they ate there we found. and so, summer of '98, when i also had the mask like rash across my face that they describe for Lupus, and my ANA came back abnormal ,
but Peter L. Schwartz failed to alert me to. and faked the L.U.A.T. test i had resquested when someone who had had lyme told me to request it. and lied and told me it came back neg, refused to even look at what i now know to be an E.M. lesion after area drs whom i know to be ignorant of lyme , ofter now sport on thier waiting room walls, schwartz made me feel nbad for even mentioning. and reiterated that abx are dangerous for me and will make me sicker.
my husband probably first got this from a mosquito bite and was told "viral" encephalitis. i have probably gotten this before also. just can't prove it one way or another, and also, had we never been bitten again, our immune systems were more or less handling it. the '91 rash on nantucket island was the infection that did us in. one nasty strain they have there!