What about you? Did a friend or co-worker point you in this direction? Or was it a search on Goggle? Or a newspaper article? Or some other Lyme organization? Or did you discover the folks here through their participation on some other medical forum?

Just curious.

I was frantic, going over all the test results, symptoms everything. In doing this I noticed his sed rate was the only thing consistantly high in all test.

I type "high sed rate" in search engine and got a list of possible sites. Low and behold Lymenet was one of the first on the list. Someone on Lymenet posted something about sed rates and it came up in the search.

Amazing how something so vague got me to where i really needed to go. I like to think a higher power hand a hand in it. I registerd that night and been on ever since.

Good question I can't wait for others to respond.

Starr

Love
Angela http://www.angelfire.com/nj/lorib/

I found the symptom list and recognized the majority. I started searching more as able when I came across Lori's story, the one Angela points out above.

I e-mailed Lou B.(not knowing Lou B. is Lou B.) explaining my situation, and soon after received a sincere, caring, genuine reply. Thanks Lou.

I was, at that point, invited to join the Lymenet family. That was March 2004. I read, read, and read some more. I registered as soon as I felt I might be able to post or reply once in a while.

This HAS been my family and saved my life.
Thanks Lymenet Family, ALL OF YOU

After that I spent even more hours on the net searching for answers.

I believe I found Lymenet in the spring thru WildCondor's site.

I don't know why it took so long.

Without Lymenet I would be lost and alone in the horror world of neuro Lyme. Thank you all.

Janet

It had alot of personal stories there, which convinced me I did indeed have Lyme. I was waiting results of the Igenex WB at the time.

I found another site called Sharing Stories or something like that. Katydid was on that site too and some others who also frequented Lymenet.

The sharing stories site was small, so when I found Lymenet [don't remember how I found it..I guess through Katydid or others on the site..] I found a whole new world!!

Been here since the fall of 2000, though my profile says Feb 2001. I think it's because Lymenet revamped during that time and we all began again with new dates.

I don't know what I would have done without Lymenet. Sometimes I was herxing so bad that I would drag myself out of bed to get online, so I could connect with others who were going thru the same thing.

There were times I could only post for a few minutes at a time....ask a question, or help another. I think I would have lost my mind if I'd had to go through treatment "all alone."

Sure, I have a supportive husband, but he really had no clue what I was going through. No one does unless they experience it for themselves.

I'm committed to helping Lymenet stay onboard for others. People need this place.

Finally came here last fall sometime. I've learned so much for all the personal expertise of everyone.

I share back with what I can so the Golden Rule will live on forever.

Angela & Lou B., looking forward to get to know you folks. Haven't read Lori's story yet but will in future.

I always knew I had something else. CFS/FMS never made sense to me. I was always looking for the true dx.

I started searching lyme and found Lymenet. I truly don't know what I would do without it. I found my wonderful dr through this site and have learned so much.

Since being here I learned that I could have given my kids lyme so had my daughter tested. She has it and do does my husband.

This site is truly my lifeline. I'm here everyday reading even though I don't post much. I appreciate this site so much and wonder what we would do without it. I now feel like I have hope and I had none before finding this site. Thanks to you all.

I was sceptical, having been through the mill with so many people suggesting so many things that would make me better. I took a good long six months of serious research before I convinced my doctor to test me.

Lymenet was an important part of that research. Here I found so many stories like mine. I found sympathy, support, encouragement, but also scholarship, advocacy, and the strength to fight the system that suppresses us all.

Lymenet continues to be a place to find new information, and to make contacts around the world.

That's when I found lymenet - Thank God! Because after the neg. test my doc did a complete turn-around, and left me "high and dry".

He said your tests are normal - (basically it's all in your head)

It was March of 2002. I had been sick since 1985, getting sicker all the time. I had called someone I barely knew from a music organization to which I belonged. She was looking for donations of goods to help a woman starting out on her own. I helped her, and she helped me!

Somehow, in passing, I referred to being disabled. She asked me questions. She suggested I might have Lyme. I was skeptical, but she told me that I didn't have to have a positive test. (I had had an ELISA in the past.) When she came for the goods, she gave me piles of information, and she said she'd eat her boot if I didn't have Lyme! She told me about LymeNet.

I will be eternally grateful for this site and for this "Lyme missionary" who guided me to the right diagnosis.

The second was after the worst doctor's expereince where I went in and told him I thought I had lyme and he basically told me that I didn't and refused to test me or even let me look at my previous labs. He was so condescending and couldn't get rid of me fast enough.

So I went home and in the back of my mind I had remembered people using the term "Lyme Literate Medical Doctor"

So I went on Google and did a search for LLMD (I was going to do a search for a Lyme IL-literate medical doctor, but I had just seen one of those lol).

What came up was a link for the East Bay Lyme Support Group, so since I live there I went to their site and poked around and found the link to this site.

And I'm sooooo glad I did!