posted
I started flagyl 1500mg on Monday and although I was feeling ok-just a little tired and nautious I am now starting to I guess really understand the depth of this drug. I am so exhausted and yet I can't sleep, my head is pounding, I am on the verge of vommitting and trying SOOO hard to keep it down. I feel like I am relapsing to where I was a year ago-vommitting everything I ate including water-I don't know if I can go through this again. For 8 monthes I did that, worked through that, and I was finally starting to feel so much better. I knew that I would probably start to feel sick again but I guess I didn't expect to feel this horrible. How can I get through the next few monthes if I can't get through the first few days?
In need of some encouragement, Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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lyme_suz
Unregistered
posted
Lindsey,
ugh! Sorry that you are on the flagyl bed and bath of suffering.
I had similar problems just trying to pulse 3 days.
2nd time around I did 750mg a day and still threw up.
It does seem to have boosted my recovery when I recover from it
This month, yesterday actually I started Tinizadole, a substitute for flagyl.
Taking 250mg 2x day for 5 days. Intermittant minor fever, tiredness, and intermittant traveling muscle aches. Just enough to know its doing something.
I was sort of wanting to nuke myself again with the flagyl, but my 2 kids have lyme and need me to come out of the bedroom!
arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
I just wanted to offer my support. I don't have suggestions to give you except to hang in there. If it gets worse, by all means call your LLMD and find out if there's anything you can do to help and/or if you should back off a bit and ramp up on the flagyl slowly. In the mean time, just take it easy and know you have support here!
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I don't have anything to add to what you wrote, either. I just wanted to let you know how sorry I am you suddenly feel like you're going backwards.
I've also dealt with nausea as a result of my abx (not flagyl). I think acupuncture is helping that, as well as adjusting my diet a little.
I really do hope you're feeling better soon!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
Thank you for all your support! I am actually a nanny so I have a child whom I actually need to care for. My mom wants to help (I also live with her for the time being) but there's not really ne thing she can do.
How did u change your diet? I am on a low carb diet-and have been for a year now. I am curious why my doc is having me take such a high dosage of this med. I guess I just have to stick through it though. Hopefully these are only side effects of adjusting to the meds.
One of you mentioned that you vommited from ur meds-if I start to vomit then what is the point of taking these meds? Will they still work?
-Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Lindsay, definitely call your doctor.
I faxed my LLMD yesterday. I expected to be drawn and quartered for skipping my last Flagyl o'the day..only been on it about 10 days and have had to skip evening doses repeatedly... having really bad headaches.
However, they called today to tell me I could stop it for up to five days if I needed to, or if skipping my evening dose brought me relief from the headaches, it was OK to try that, and keep trying to build back up as able.
DON'T BE A HERO!! If you are really wretched, your LLMD will likely be very understanding and will permit you to adjust your dosage until enough Bb are killed off that your toxin load is tolerable and herxing is milder. I believe this WILL happen. But please do call him or her and let them know...you're on a really high amount.
Please take care and don't let yourself get so sick that you throw out the whole treatment. MUCH better to back down and go slow.
Hope you are feeling much better very soon..
Hugs,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
This is what I"m afraid of. I want to treat my Lymes more aggressively but that would mean putting my education is serious jeopardy. I feel like I have to choose between my health and my education. Your treatment sounds awful. I'm like you, just the thought of vomiting and going through previous herxing symptoms is enough scare me away. Stick with it! Lymes is like a never ending cycle of pain. Even when we're getting better we're in pain.
-------------------- Laura French Posts: 39 | From Bloomington, IN | Registered: Sep 2005
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posted
thanks for all the advice. I think I am going to try and make it through the week and see how i feel. If I can't handle it, I will call my doc for sure.
Laura-I have put my education on hold. I was planning to go back in the spring but after my last doc visit she said she didn't think school would be an option in the fall. I will be staying at home taking classes at a community college.
Best Wishes, Lindsay
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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WildCondor
Unregistered
posted
It will get better. It is very hard in the beginning to grasp it all. What else are you taking with the flagyl? It can bring on big herxing. The exhaustion I remember all to well, i was totally wiped out on Flagyl. It ended up helping me alot though, in time. Hang in there. You are doing what you are supposed to. Stay strong and dont give up! it will get better.
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posted
I started Flagyl recently. My LLMD suggests starting slowly. I started on 1/4 of a 250 mg tablet. He gave me a schedule for getting to the full dose.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
smiles,
So sorry you are having such a hard time with it. I was pretty lucky and didn't experience nausea and vomiting with flagyl (other combos, however) and wish I could take it, but too many side effects over time - like neuropathy (which can be very serious. By stopping (after trying Trini) those symptoms passed.
Anyway, if you can tolerate it using all of the suggestions above, then look forward to some real improvement in you cognitive problems.
Hope you feel better soon.
best, hopeful123
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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