posted
I was just wondering how many people know how they got lyme? My Dr.s continued to tell me that because I didn't have a rash I didn't have it. Even though a month after I shot my buck that was covered with ticks I got sick. I was told that Lyme was a " Garbage pail diagnosis." Hope everyone is doing well. Angie
Posts: 19 | From Washington | Registered: Oct 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
I have five heavily wooded acres in the mountains in northern California. One day I was outside and noticed an itch under right breast, inspected it, found a teensy, tiny speck of a tick attached. Pinched it off, forgot about it. Noticed a pale circle around the area after I got outta the shower the next day. And the next. And the next. And so on.
To my everlasting regret, I continued to ignore the circle, since no one knows anything about Lyme disease in northern California, including me at the time.
A year later I sat in the doctor's office with my head exploding with pain, depressed, jumpy, periods stopped at 46, thyroid screwed up.
Only to hear the famous words, "I think you have MS."
The entire tick-under-right-breast incident might never have been recalled had not a clever radiologist read my brain MRI and stated "multiple frontal lobe lesions consistent with Lyme disease."
Whereupon I went, "Oh YEAH, that musta been THAT..." And ditched the ducks, commenced the IGeneX testing and came up way positive, and found this Board and a great LLMD!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
April 16, 1999. Infected on Monte Sano Mountain in Huntsville, AL.
Fibro is the garbage pail.
-------------------- Kara Tyson Lyme Disease Support Group Of Alabama--MobileChapter Posts: 6022 | From Mobile, AL | Registered: Apr 2001
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
quote:Originally posted by allinyourhead: I was just wondering how many people know how they got lyme? My Dr.s continued to tell me that because I didn't have a rash I didn't have it. Even though a month after I shot my buck that was covered with ticks I got sick. I was told that Lyme was a " Garbage pail diagnosis." Hope everyone is doing well. Angie
I believe that MS, fibromyalgia, and Chronic Fatigue Syndrome (AKA "fibro) are the true garbage pail diagnosis's.
Uninformed (most) MD's have such limited true knowledge of Lyme, that I think in order to protect their ego's, they throw Lyme in the garbage pail diagnosis category too. Makes sense, doesn't it? Their heads are in the pail, why not throw whatever they don't recognize or learn about, into it as well?
I know that my tick bite in 1987 did not generate a bullseye rash. It bit me on the back of my neck, at the hairline, and was removed totally wrong-covered in vaseline, smothered with a bandaid for a half hour, and then yanked out by some ER doc (cuz I worked at this hosptial at the time, and came to work with a complete and total stiff neck, and feeling like crap), so I'm sure that's where my lyme originated from.
I have spent most of my time here in Northern CA (since 1982) hiking, biking, camping in the wilderness, so I could have easily been bitten before, or after, that 1987 tick bite. But it was the only bite I had, and could know it was a tick that bit me.
I think more people than most are bitten by ticks, and either don't ever see the tick, or see it, but dont' know what kind of insect it is. That is why I think that more people don't come up with finding out about lyme before they become very debilitated, or have symptoms that they see a doctor for, but the doctor can't pinpoint that symptom(s) on any recognizable disease process.
So, you go on the internet, come up with all this stuff, go see your regular doctor, have that doc tell you "it's all in your head" or no, there's no lyme here in (whatever state) XYZ state.
And on you go.
Sicker, or better, until you no longer can ignore what it is that you yourself know is probably Lyme.
I have about 4 docs I'd like to drop kick into the garbage pail, like most people here on this board would like to do. It's just ignorance, and ego, in my opinion. And until they themselves get bit, and go downhill, or their wife, or their kids do, they won't change.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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lymeloco
Unregistered
posted
I agree with Julie. Most people don't get bulls eye rash, and if they did, it probably was on their scalp, groin, armpit. If your not looking in those areas, then you wouldn't see one if there was.
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i never saw the tick. i think i was infected in may 2004 in the columbia river gorge (OR); but i had severe depression, anxiety, and IBS symptoms prior to that. so who knows, really.
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Well, I requested hubby's medical records over the last two months. Lots of tests done and didn't need to pay to have them done again if we need to go to another doctor.
By the way, with the new privacy laws, etc...it's tough getting your medical records now. So, I would encourage everyone to ask for records when you are there. They are YOUR records and you paid for them. Get them while you are there! Oops. didn't mean to get off on that.
You know what else? I read through it all tonight and it just amazes me. On some pages, it they list my hubby's allergies correctly, and on others with ER doc, they don't list any allergies. What the heck? He has three allergies, and they are wrong on some of the records.
Also, they listed two entirely different things on the records about what Vitamins, supplements, etc that hubby was taking. Just unbelievable to me how wrong some of these records were.
I just found it amazing to read thru all of this and see how inaccurate they were.
The last item on the records was that my hubby had "never been touched inapproiately". I kid you not.
The PC police and the medical community disgust me at this point.
Posts: 1366 | From Southeast | Registered: Sep 2005
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
A tick. Don't know which specific one though.
I wanted to say though that once upon a time people with MS and Parksinsons were considered 'hysterical', etc and told to 'pull themselves up by the bootstraps'. An ex-GP told me this. He could not figure out what was wrong with me, although he said he knew SOMETHING was wrong....anyway conversation led to his statement on the early days of MS and Parkinsons patients not being taken seriously.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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