posted
Yesterday, I called social services to see about getting childcare assistance while I'm so sick. They said I'd need a note from the doctor explaining that I'm sick. So, I called the doctors office, and asked if they could fax a note like that to social services. They said they were going to look into it, and see what info would be necessary. Well, early this morning I got a phone call from the nurse there (the one who had Lyme Disease). She said that she got the papers from my old doc's office this morning, and that I've been sick a long time, and that I seemed to think it was something else before clinging to this diagnosis of Lyme Disease. Uhhh... yeah, I thought I might have lupus because I had a positive ANA and my mother has lupus, and all my symptoms were like that of lupus. But, Lyme Disease can mimic lupus, and I got a positive western blot back in January that led me to giving a name to this illness that seemed to be crippling me while waiting for a diagnosis and treatment.
So, my old doctor f*&^%d me over with my new doctor, claiming that I'm a hypochondriac, and god knows what else. The woman at the doctor's office who had Lyme Disease was telling me I should go on with my life, instead of being sick, and get a job!!! WTF?! She didn't say it exactly like that, but that's the basic idea. There are mornings I literally can't move to get out of bed... and she thinks I can will myself up?! And not only that, but to work?!
Ahhh.... they all seem to think that depression is the root cause of all of this. They aren't taking into consideration I was REALLY happy when I got sick... I had everything going for me really well. The depression struck after years of being waved aside by doctors, going so long without a diagnosis or treatment, and when I finally did get a diagnosis, spending 9 months looking for a doctor willing to treat!!!
Posts: 37 | From Jamestown, NY | Registered: Oct 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
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Man Funky...if it was'nt from your docs mouth I would not take the people in his office's word for anything...
However I've been where you are myself and it's at the least frustrating....
If you're in new york how about seeing dr B...I know he has his own health issues right now but perhaps you need a good llmd to help you thru this crappy time....
All I can offer is some prayers that you hang in there and get the right help....zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
For future reference -- get copies of all your records from both doctors. It may cost you a few dollars but maybe you can keep the same thing from happening again.
What I do for hubby is copy whatever records we think are relevant and take those to a new doctor ourselves during the 1st appt. If they ask if such and such a test was done and we forgot to include that in the package we just say we will bring it to our next appt.
Most doctors won't take the time to contact previous doctors themselves if you tell them you already have copies of all your records.
Of course they still thought hubby was suffering from anxiety and depression because they couldn't explain his tremors etc. but at least they were somewhat openminded when we left out some of the more ridiculous office notes.
Mostly we just copied relevant test results. The only office notes we ever included were from specialists such as neurologists etc but even then we sometimes waited til late in the appt to give them those when they asked.
After a while it was easy to spot the doctors who would think for themselves and not be swayed by someone elses's opinion.
We always told the truth about hubby's medical history. I think in his case because he is such a complex patient -- as are most long-term lyme patients-- it would not have made any difference if we had lied and said you are the first doctor I have seen -- they would have still came to the same conclusions but it would have cost a lot more money because they would have wanted to repeat even more tests than they repeated even with prior test results.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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