posted
I've left several messages to Dr. L. in Maryland to get an appointment. Her office hasn't called me back. Are LLMD's that busy that they cannot return phone calls? Just wondering.
I need to be on abx. This started in August. I decided to go back to my PCP. This time I was armed and dangerous with facts, printouts from the links on this site, and numerous other articles regarding Lyme disease. I did this for the neurologist when I saw him in September, and he shook his head and said that it wasn't Lyme. Plus, he looked at me and treated me like I was a "dumb" blonde. That was not going to happen again.
Eventhough my Quest Western Blot said I was negative according to CDC standards, I was positive on bands 39 & 41. I showed my PCP studies from doctors who claim that one positive band is significant and that in their clinical studies, there is a high probability that the person has borrelias.
I had a printout of the Lyme disease symptoms, in which I highlighted all that I have had or still have.
I told my PCP that I've done extensive research on Lyme - spending at least 3 hrs. a night, every night for weeks, compiling information and data from the internet. I'm a research buff (I have a science background)and I'm a sponge for information.
The PCP actually listened to me. YES!!! She said that it was good that I was pursuing this further because doctors do not know everything and are constantly learning. I thought that was a fair and honest assessment.
She prescribed doxy for me and referred me to a specialist - not a LLMD, but a rheumatologist who deals with Lyme patients. At least I'm on abx for now until I get an appointment with Dr. L. (if her office calls me back). I probably will see the rheumatologist, too, just to see what he will say.
I will continue to study Lyme, spirochetes, the similarities between Lyme and syphillis, comparisons on Western Blot testing for Aids and Lyme, etc., etc., etc.
I say this often and will say it again: Knowledge is power!
Thanks Lymenet
Cinder Posts: 60 | From USA | Registered: Nov 2005
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posted
Aw Cinder, Sorry to hear you're not getting a return phone call.....Keep at it though, ya know you will eventually get a person to talk to!!!!
Your PCP visit was encouraging, but my experience going to a rheumy was bad......he seemed thorough examining me, but at the end of our visit, I casually mentioned "could it be Lyme"....and his response was ....."NO, YOU'D HAVE SWOLLEN JOINTS....so just start exercising and get back to work!!"..... yeah I would if I could
ONe week later I got results positive for lyme and Babesia...he was the first doctor who received a fax.
Hang in there and keep us posted o.k.??
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
My son and I have been seeing Dr. L. (monthly) outside of Baltimore since August. I think we just made it before more masses learned of this llmd. Now there is a training PA in the office who is helping.
I hope you get a call back. This practice was small in August with just one person at the desk. Now there are two new people training and the PA......all hired since mid September.
Good luck & keep calling.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
The title of this thread sounds like a bad porno.
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
Dr L and her assistant are training a new receptionist and nurse practioner in addition to all that is going on.
They are so busy that they have had to start seeing new patients on Saturdays.
I would call until you get someone on the phone. They have had a huge influx of new patients. I believe Dr S might even be sending his patients her way. I know when I was trying to get in to see Dr S, they refered Dr L to me. I ended up transfering to Dr L later on.
Posts: 1485 | From USA | Registered: Apr 2004
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