So glad I found this place, makes me feel like less of a nut since I've seen Dr.'s who are trying to make me out to be one...arghhh! Wanted to share my story, if that's okay...I look forward to learning about yours too.
Took two ticks off of my legs w. in a week of one another back in June. 3 weeks later got classic flu-like symptoms, no rash. My family MD gave me amox. (am nursing my son) and I had hives from it after a week. She then gave me 3 weeks of Doxy, which I waited 8 days to take to temporarily wean the babe. Felt a little better after this, but a couple weeks later, neuro symptoms set in. They wax/wane all the time, but are mostly always there. I'm seeing an infec. dis. spec. now and he's not much help as I'm learning he's not LL and doesn't want to listen to me. He's done a battery of tests CT Scan, blood, spinal, and found nothing and based on this, won't treat.
This has all been soooo frustrating for me, especially as the Mommy of a great 18 mo. old son. DH and I were looking forward to growing our family and now, based on what I'm reading, I'm not sure we ever will:( Is lyme really curable?
Thanks if you've made it this far,I know my post got a little long. Look forward to joining the fight with you all and gaining/offering support along the way!
Jen
Posts: 38 | From PA | Registered: Dec 2005
| IP: Logged |
posted
Supposedly if you catch it within the first year and get adequate treatment, it can be cured. But, if not, then you might be on the horrible track for chronic lyme. Also, sometimes the tick gives you more than one kind of germ.
So, it would be important for you to find someone else very soon who will give you adequate treatment, because you might still be in the window of opportunity. This is not a cut and dried thing. People vary a lot in symptoms and response.
Sorry to say it is going to be very difficult to find someone who is LL. You might want to contact the support groups in your state and see what they recommend. Unfortunately there may be a waiting period to see LLMDs because there are only a few and they are swamped with patients.
Find support groups on this website by clicking on that line in green menu box left side of this page.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
Has your little one been checked? It is unknown wether little ones get it from breast milk or invitro.
Both my children 4 and 8 have Lyme.
Linda
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
| IP: Logged |
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
It is best to contact someone in your area who knows the docs near you. The Lymenet Support Groups site lists 14 (!) in Maryland.
I do hope you get some decent treatment and help soon.
my name's dan. you're wondering whether lyme is curable, and i've had some real success/luck over the years, getting my brain back in order. i don't post here much anymore, but like i'm 22 now, and in 98 and 99, i was sick, being in high school having finished my freshman year, i just got too incapacitated to go for two years after that, and i wasn't in a condition to be tutored either. neuro symptoms...reading, writing, talking, walking, eating on my own, all were completely gone for at least part of the two years.
i found a good LLMD in north jersey (feel free to email me if you're looking in that area), and she helped. i have a really supportive family too. they're troopers. i hope yours are too.
i ended up back in high school, on a partial schedule for the first year, i was 17 years old, a sophomore, shaky health, really shaky social and emotional state. ahh...shaky doesn't come close actually. i was a complete wreck.
now i'm in college, doing well, driving, no more lyme symptoms per se, although it's hard to say how it really changed me physically and emotionally. i get stressed real easily in certain situations, that's been the thing that's lingered the most.
i guess the short answer is, i got better. i don't know how common or uncommon it is to have that happen.
-------------------- "It comes as no surprise, just leave the light on." Posts: 134 | From western PA | Registered: Sep 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic