I met with my Representative Tom Petri (6th dist. WI) at the end of April, during a 15-minute face to face meeting at one of his citizen's days.
I provided him with the LDA's packet of info on the ALERT Act, sample stories from my www.LymeLeague.com web site where lyme patients tell their stories,
told him about my family's struggles...
AND HE SIGNED ON TO COSPONSOR. Right now, I think he is the only Rep. from WI to do so...hopefully the other groups are working on the others to do the same thing.
Thanks Rep. Petri!
-------------------- PJ
www.LymeLeague.com"Together We Grow Stronger" Posts: 139 | From A tiny little home office in the middle of Wisconsin | Registered: Feb 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Dear Mr. Renzi~
I recently read in the Flagstaff newspaper about T-Gen. That sounds wonderful to have a research facility in Flagstaff that would allow development of diagnostics methods so physcians can identify diseases.
I am going to ask you to consider co-sponsoring HR3427, the Lyme and Tick Borne Disease Prevention, Education and Research Act of 2005.
This, perhaps, could also be part of what T-Gen will do...work with the Lyme disease pathogen, Borrelia Burgdorferi.
I have lyme disease. I believe I contracted it in Northern Arizona. It took me over a year and a half to get a diagnosis, and I finally got one....at Columbia University Medical Center in NY. No doctor in Arizona had any idea what was going on with me.
My medical expenses last year were over $65,000. There is no definitive lab test for lyme disease, and the treatment is also elusive for chronic cases (which mine became because no one could diagnose me).
Please consider co-sponsoring that bill.
Sincerely,
Tina Caskey Flagstaff, AZ
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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bettyg
Unregistered
posted
Tina, great letter...to the point and using $65,000 expenses to give him an idea about lyme costs! Well done! Thanks for posting.
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Yo, John Kerry...Hello...we need you on board!!
October 21, 2003
Dear *****
Thank you for contacting me regarding Lyme disease legislation. I appreciate hearing from you on this important matter.
In the United States, Lyme disease is the second fastest growing infectious disease after the HIV virus. In fact, the number of cases of Lyme disease reported annually in the United States has increased 25-fold since national surveillance began in 1982. Between 1993 and 1997, an average of 12,500 cases were reported annually by states to the Centers for Disease Control. Each year, thousands of Americans are bitten by ticks. While most individuals may never experience symptoms, many will suffer damage to the nervous system, skin, and joints. Unfortunately, with Lyme disease, significant health complications are often undetected or untreated.
Legislation introduced by Senator Rick Santorum (S. 1905) would establish a five-year, $125 million agenda for attacking Lyme disease by bolstering funding for prevention, early detection, and public and physician education. Additionally, the legislation would require the primary federal agencies involved in Lyme disease research and education to substantially improve the coordination of their work in an effort to minimize duplication and enhance federal leadership. Senator Santorum's legislation would bring needed attention to a growing public health concern. I support this legislation and I hope that the Senate will move quickly to enact it.
Thank you again for contacting me regarding this issue. Please feel free to do so in the future regarding this or any other matter of importance to you.
Sincerely,
John F. Kerry United States Senator
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Is this what we're working with now:
H.R.3427 Title: To provide for the expansion of Federal efforts concerning the prevention, education, treatment, and research activities related to Lyme and other tick-borne diseases, including the establishment of a Tick-Borne Diseases Advisory Committee. Sponsor: Rep Smith, Christopher H. [NJ-4] (introduced 7/26/2005) Cosponsors (81) Related Bills: S.1479 Latest Major Action: 8/5/2005 Referred to House subcommittee. Status: Referred to the Subcommittee on Health. -------------------------------------------------------------------------------- COSPONSORS(81), BY DATE
Rep Kelly, Sue W. [NY-19] - 7/26/2005
Rep Gilchrest, Wayne T. [MD-1] - 9/7/2005
Rep Goode, Virgil H., Jr. [VA-5] - 9/7/2005
Rep LaHood, Ray [IL-18] - 10/3/2005
Rep Wolf, Frank R. [VA-10] - 10/7/2005
Rep McNulty, Michael R. [NY-21] - 10/7/2005
Rep Kuhl, John R. "Randy", Jr. [NY-29]-11/15/2005
Rep Woolsey, Lynn C. [CA-6] - 2/1/2006
Rep Frank, Barney [MA-4] - 2/1/2006
Rep McCarthy, Carolyn [NY-4] - 2/1/2006
Rep Saxton, Jim [NJ-3] - 2/28/2006
Rep Gerlach, Jim [PA-6] - 5/2/2006
Rep Jefferson, William J. [LA-2] - 5/2/2006
Rep Engel, Eliot L. [NY-17] - 5/2/2006
Rep Maloney, Carolyn B. [NY-14] - 5/2/2006
Rep Ackerman, Gary L. [NY-5] - 5/2/2006
Rep Higgins, Brian [NY-27] - 5/2/2006
Rep Slaughter, Louise McIntosh [NY-28] - 5/3/2006
Rep Sweeney, John E. [NY-20] - 5/4/2006
Rep Holden, Tim [PA-17] - 5/9/2006
Rep Lowey, Nita M. [NY-18] - 5/11/2006
Rep Hinchey, Maurice D. [NY-22] - 5/16/2006
Rep Reynolds, Thomas M. [NY-26] - 5/17/2006
Rep Pascrell, Bill, Jr. [NJ-8] - 5/19/2006
Rep McKinney, Cynthia A. [GA-4] - 5/23/2006
Rep Velazquez, Nydia M. [NY-12] - 5/24/2006
Rep Israel, Steve [NY-2] - 6/6/2006
Rep Larson, John B. [CT-1] - 6/6/2006
Rep Blumenauer, Earl [OR-3] - 6/6/2006
Rep Towns, Edolphus [NY-10] - 6/6/2006
Rep Brady, Robert A. [PA-1] - 6/7/2006
Rep Meeks, Gregory W. [NY-6] - 6/7/2006
Rep Platts, Todd Russell [PA-19] - 6/9/2006
Rep Simmons, Rob [CT-2] - 6/15/2006
Rep Inslee, Jay [WA-1] - 6/21/2006
Rep Allen, Thomas H. [ME-1] - 7/11/2006
Rep Waxman, Henry A. [CA-30] - 7/18/2006
Rep Baldwin, Tammy [WI-2] - 7/28/2006
Rep Eshoo, Anna G. [CA-14] - 9/6/2006
Rep Shuster, Bill [PA-9] - 9/25/2006
Rep Lee, Barbara [CA-9] - 9/27/2006
Rep Owens, Major R. [NY-11] - 9/7/2005
Rep Moore, Dennis [KS-3] - 9/7/2005
Rep Boswell, Leonard L. [IA-3] - 9/7/2005
Rep Farr, Sam [CA-17] - 10/7/2005
Rep English, Phil [PA-3] - 10/7/2005
Rep Shays, Christopher [CT-4] - 10/20/2005
Rep Bishop, Timothy H. [NY-1] - 12/14/2005
Rep Kennedy, Patrick J. [RI-1] - 2/1/2006
Rep Hooley, Darlene [OR-5] - 2/1/2006
Rep Langevin, James R. [RI-2] - 2/7/2006
Rep Baird, Brian [WA-3] - 3/29/2006
Rep McHugh, John M. [NY-23] - 5/2/2006
Rep Thompson, Mike [CA-1] - 5/2/2006
Rep Hinojosa, Ruben [TX-15] - 5/2/2006
Rep King, Peter T. [NY-3] - 5/2/2006
Rep Lynch, Stephen F. [MA-9] - 5/2/2006
Rep Walsh, James T. [NY-25] - 5/3/2006
Rep Boehlert, Sherwood [NY-24] - 5/3/2006
Rep Petri, Thomas E. [WI-6] - 5/9/2006
Rep Fossella, Vito [NY-13] - 5/9/2006
Rep Nadler, Jerrold [NY-8] - 5/11/2006
Rep Johnson, Nancy L. [CT-5] - 5/17/2006
Rep Ferguson, Mike [NJ-7] - 5/19/2006
Rep Rothman, Steven R. [NJ-9] - 5/23/2006
Rep Dent, Charles W. [PA-15] - 5/24/2006
Rep Fitzpatrick, Michael G. [PA-8] - 6/6/2006
Rep Rangel, Charles B. [NY-15] - 6/6/2006
Rep Serrano, Jose E. [NY-16] - 6/6/2006
Rep Weiner, Anthony D. [NY-9] - 6/6/2006
Rep Payne, Donald M. [NJ-10] - 6/6/2006
Rep DeLauro, Rosa L. [CT-3] - 6/7/2006
Rep Fattah, Chaka [PA-2] - 6/9/2006
Rep Weldon, Curt [PA-7] - 6/9/2006
Rep Pitts, Joseph R. [PA-16] - 6/19/2006
Rep Hart, Melissa A. [PA-4] - 6/21/2006
Rep Kildee, Dale E. [MI-5] - 7/11/2006
Rep Drake, Thelma D. [VA-2] - 7/26/2006
Rep Wynn, Albert Russell [MD-4] - 9/6/2006
Rep Murphy, Tim [PA-18] - 9/12/2006
Rep Holt, Rush D. [NJ-12] - 9/27/2006
S.1479 Title: A bill to provide for the expansion of Federal efforts concerning the prevention, education, treatment, and research activities related to Lyme and other tick-borne diseases, including the establishment of a Tick-Borne Diseases Advisory Committee. Sponsor: Sen Dodd, Christopher J. [CT] (introduced 7/25/2005) Cosponsors (12) Related Bills: H.R.3427 Latest Major Action: 7/25/2005 Referred to Senate committee. Status: Read twice and referred to the Committee on Health, Education, Labor, and Pensions. -------------------------------------------------------------------------------- COSPONSORS(12), BY DATE
Sen Santorum, Rick [PA] - 7/25/2005
Sen Jeffords, James M. [VT] - 9/28/2005
Sen Reed, Jack [RI] - 12/14/2005
Sen Chafee, Lincoln [RI] - 2/7/2006
Sen Lautenberg, Frank R. [NJ] - 5/16/2006
Sen Lieberman, Joseph I. [CT] - 5/24/2006
Sen Schumer, Charles E. [NY] - 7/29/2005
Sen Collins, Susan M. [ME] - 10/4/2005
Sen Boxer, Barbara [CA] - 12/15/2005
Sen Clinton, Hillary Rodham [NY] - 2/17/2006
Sen Hagel, Chuck [NE] - 5/23/2006
Sen Menendez, Robert [NJ] - 5/26/2006
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
Ali, the answer is YES, on both being held up by HEALTH committtee on both, 1st one only HR is health alone.
2nd shows the ENTIRE committee for S bill.
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
This thread is about to become active again. We expect the new bill numbers to be published soon and we will be asking you to make sure the legislators who signed on before, sign on again, and to contact new legislators. We will supply a letter, or the last letter should suffice since the bills will be identical to the previous ones.
Some people have received letters from legislators saying, "Thank you for your letter, we will consider your bill favorably when it comes up for a vote," are NOT acceptable. We want our legislators to SIGN ON AS COSPONSORS. This requires them actually to DO something BEFORE it comes up for a vote.
More later.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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