First, he got 3 personal phone calls on his cell phone while I was in the room. One of which was 10 minutes.
He examined me, found nothing wrong and told me he did not think I had a serious condition.
I asked him then why do I burn, tingle, have numbness and leg weakness.
His answer was FIBROMYALGIA!!!!
I asked him about lyme and his response was that lyme is difficult to test for because the test is so SENSITIVE and there are so many false POSITIVES. He said many people get treated who don't really have it do to the false positive tests results.
I called him on this one and told him it was just the opposite. He had no answer to this.
He did offer me a spinal tap or evoked potentials though. He said he thinks the results will be normal.
NO MORE DUCKS!!!
Posts: 340 | From Ohio | Registered: Oct 2005
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posted
MMM... Spinal tap. I let them do one once, and now when they see me they prep the needles for more.... Why is it that once is not enough with these guys??? Don't they know that the headache that follows is enough to make some one jump off a roof?
I hope you can find some one that'll listen to you and help get you on the track to recovery.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
My neurologist was as goofy as can be. I presented him with a list of symptoms and dates and everything "weird" that was happening to me.
He said to me "wow, you have a lot going on here".
First, he said that my headache and really stiff neck was due to my long hair and suggested that I cut it.
Second, after passing his neurological exam, he told me that I was over stressed and depressed, especially when he found out that I had separated from my husband two months before. He gave me Zoloft. I told him that I was not going to take it.
I asked him about the possibility of me having Lyme, and he said that since I didn't have the bullseye rash or joint pain and that the Elisa test was negative, I couldn't have Lyme. Besides, he said that neuro problems with Lyme come much later in the disease and I was experiencing them too early.
I had the MRI of my brain, neck, and thoracic spine, plus the tests to rule out MS. Everything was negative or normal. He still told me that I was stressed out and that I needed to lessen my load everyday.
I didn't listen to him. I went back to my PCP, demanded a Western Blot and to be put on Doxy until my appointment with an LLMD in February. Luckily, she agreed.
I get so angry when doctors dismiss you when they don't know what's wrong with you. No one knows their body better than themselves. Something was definitely wrong and it came out of nowhere. I was stressed and depressed because something weird was happening to my body and I thought that I was going to die.
I do not take what is said at face value. I do my own research and reading and question a lot of things.
After reading these boards for months, numerous people have had similar experiences with neurologists. They just don't want to accept the fact that it could be Lyme. I think it scares them.
First, I was (what was happening to me) Second, I was (my body was not normal) Third, I was (no one would believe me that I thought I had Lyme) Now I'm because I'm on the right track to recovery.
So, I agree with you about neurologists
Cinder
Posts: 60 | From USA | Registered: Nov 2005
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![[Smile]](smile.gif)
![[confused]](graemlins/confused.gif)
(what was happening to me)![[Frown]](frown.gif)
(my body was not normal)![[Mad]](mad.gif)
(no one would believe me that I thought I had Lyme)![[Big Grin]](biggrin.gif)
because I'm on the right track to recovery.![[bonk]](graemlins/bonk.gif)
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