posted
How horrible am I that I feel good about reading everyone's posts about how miserable they are, or the discomfort they are in? After visiting doctors that don't think anything is wrong with me, I've started feeling like a hypocondriac. I feel terrible that we all have so many troubles, and I do not wish anything I have gone through on anyone, but, as horrible as this sounds, thanks everyone, for giving me what I need to stand up for myself and have a voice. How am I going to get better if I continue to hide symptoms, and keep going to doctors that don't understand the symptoms I describe??? I know, I am a horrible person... Sorry.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Hi AP, I don't think you are horrible at all. All our symptions are really hard to deal with. When I have a new weird symption and I can come on Lymenet or lymestrategies and see other people have the same symptions it helps me to not feel so crazy.
I think that is what support groups are about. Someone on lymestrategies had a post similar to yours the other day. Alot of people replied that they felt the same way, especially after being put down by ducks,friends and family.
Sooo,hang in there and speak your truth. Take care J
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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No, actually having some weird symptoms is what brought me to lymenet.
I typed in a search engine for buzzing sensations in the legs and the first website that came up was lymenet.
So, I started reading and was amazed at how many people had the same symptoms that I did. And I did not feel so crazy anymore.
I would tell people that I was vibrating/buzzing and they would feel me and say that they didn't feel anything. I definitely could feel it - it was all internal.
Reading how bad Lyme can be or get is what motivated me to pursue a LLMD and begin to seek treatment. All the other docs and neuros wanted to dismiss me as being stressed out.
Cinder Posts: 60 | From USA | Registered: Nov 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Why do you think your horrible theres no reason.
Your just learning whats going on.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Not only are you horrible but your sick on top of it. Sorry for my obtuse sense of humor but if I couldnt laugh at this crazy situation we all find ourselves in then I couldnt survive.
I use the phrase "Im the healthiest sick person you know" = meaning Im sick but all the labs say Im Sooo Fine. What does paper know.
Thank goodness I finally have docs who believe Im sick, now if I could just get better.
Posts: 561 | From connecticut | Registered: May 2004
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posted
AP, Ever hear the saying "Misery loves company"?
There's comfort in knowing you're not alone in your struggles. Sounds like that's what you're experiencing.
Posts: 40 | From Arizona | Registered: Dec 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
On a scale of 1-10?
I'd say 0 because you are smart enough to look for help and do good research and besides that, you have the grit to stand up for yourself and be honest about the way you feel.
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