lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i could hardly walk because of my lyme pain when i went into surgery 11 days ago. when i woke up it was all gone. and it stayed gone for 10 days. yesterday i had hints of it caoming back. when i woke up today no question-same old body back. same paine-same dizziness-same fatigue. what an experience to be in a body that didn't hurt (except the incision).
i'm pretty sure it was just that the pain meds for the surgery covered up the lyme pain...but it just makes me wonder. do i really need my knees replaced? do i really need surgery on both thumbs? should i take the zoloft they want me to take for the dizziness?
the nsaid i took after surgery is only supposed to be taken for 5 days because it is hard on your liver. but the lyme drugs i take (took) are hard on my liver too. i wonder if i could keep taking this nsaid (ketorolac) if i kept getting m y liver tested and stuff. it just felt so wonderful to be a part of the human race-to just "be" and not be wracked with pain.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Did they use Iv abx's while you were in surgery?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
not this time-i begged for them since they used them two yrs ago when i had my gall bladder out...but since they didn't this time and the other thing that was the same is the ketorolac---i'm pretty sure it is that. it is a strong anti-inflammatory (pattilynn-on my post in medical- said it worked as well as morphine-i don't know if she is a doc or nurse or what but she works in an er)
so i have woken up a second day in my all too familiar lyme pain...and i am trying to make some sense of this---make lemonade so to speak...oh, man what a bummer. what a tease to feel no pain for 10 days.
well-i guess it confirms my pain is from inflammation which fits -esp with my having the bad gene etc-and i can be reasurred i am not imagining this or that zoloft will cure me...blah blah blah so sick of the regular docs. i see my llmd 2/28---he's so far away now and i love my visits with him...just being treated with respect and not made to feel stupid-i think i might write and say could i just do the ketorolac one time a week or something....and test my liver and kidneys regularly...i totally trust him...i will do what he says.
stupid things i did when i "felt no pain???"
-spent $200. on yarn cuz it didn't hurt to knit and i have been wanting to knit sooooooo much. it was one of the things i put off while working and raising my kids while i fought lyme...and of course when i finally retired my hands were too painful
-signed up for yoga and pilates and riding lessons...yeah...i was kinda high on not feeling pain...manic probably describes it better
thanks for writng tree-i'll be off my pity pot soon...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
lp..
you can take milk thistle for liver health. i take it almost everyday because my levels sometimes go up a bit.
i take it with my acidophius.
sorry you're not feeling well again.
going up and down really stinks
best,
hopeful123
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanks hopeful-i take milk thistle daily except for 4 three week periods a year when i do this other herbal cleanse. i am thinking of adding the peroxide baths...but will start slow after what i read on here-and i drink a lot of water and eat healthy. i wrote my llmd today to see if the ketorolac is really that bad...i will do what he says. we've been togethr a long time.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/