posted
Hi, I am looking for a LYME doc and wanted to know if any of you have seen him? Has he helped you? Looking for others opinions...Trying to find doc that my insurance will pay for and he's the only one so far.
Thanks Kim
[ 20. February 2006, 12:11 AM: Message edited by: Lou B ]
Posts: 33 | From OH | Registered: Feb 2006
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bettyg
Unregistered
posted
Welcome Kim to our site. You didn't mention if you have been diagnosed by western blot igm/igg or any co-infections, so I'm copying info below for you.
Please edit/PENCIL icon your post and show Dr. H. NO LAST NAMES are permitted by the board moderators.
Copy/paste to the SEEKING DR. section. making sure Ohio shows in title plus Dr. H. ok.
Check the support group site, left hand column for Ohio; perhaps there is one located near city where he is at.
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's 2005 info first; you will come back to this often.
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT .. wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
TESTING FOR LYME DISEASE ... 3 main LYME TICK BORNE LABS IN USA!
The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 3 USA's Lyme testing labs:
IGENEX LAB: 797 San Antonio Road Palo Alto, CA 94303 1.800.832.3200.
(If the early test, called IGM, is negative; the later test IGG is NOT done!) Please see their web site: www.igenex.com CALL for their current prices effective OCT. , 2005 and
to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your blood taken EARLY in the week so it doesn't sit in post offices! Example, have it taken Mon. - Wed. Afternoon tests show more positive lyme results!
Here is the site to PRINT THEIR REQUIRED FORM to send with blood sample. For me, I printed the FIRST option available on the forms.
Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!
NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers. Medicare patients do NOT have to prepay!
2. MDLabs from NJ, www.mdl.net see their site; they too require their own form. NO prices are listed; you must call their 800 no.
3. BOWEN labs from Florida, www.bowen.net 727.937.9077 You pay $250 tax-deductible payment for testing, and they send you a picture of what shows up in your blood. You also get the results within 24 hours after the blood is received at Bowen. They are also a 501(c)(3) lab and you can take the donation of $250 off of your taxes if you live in the US. They fax the results and then about a week later send the actual pictures. Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.
NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).
FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!
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posted
Topic titles can't be edited by the poster. I reported the thread to the moderators.
Kim, as far as I know, there are no LLMD's in OH. And few LLMd's take insurance per se. Quite often you will be able to get your insurance to reimburse you for the visit if you have a PPO, or something other than an HMO.
If you find an LLMD, be sure to find one who has been recommended to you by SEVERAL happy satisfied Lyme patients!!!!! VERY important!
WELCOME!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
Tutu, yes, the poster can edit topic line as long as they are EDITING the 1st post they originated.
If they respond later to others, that post won't allow topic line changes, but the 1st post of yours will. I use this all the time for seeking drs. & then show the states folks want. Bettyg
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
LymeToo, for (I hope) the last time:
There are some doctors in Ohio who are knowledgeable and experienced in treating Lyme disease. I have stated that so repeatedly here, that I am tired of myself saying it.
Please do not tell people there are no doctors treating people in Ohio. Just tell them to e-mail me at [email protected].
Yikes has been in touch with me and I have sent information - actually lives within 10 miles of me.
I know the doctors in Ohio as I was a support group leader for 11 years and have a website and an E-list. I know their patients and am in contact with patients who see the doctors.
I know how dedicated you are to Dr. C. I too admire him emensely and I recommend him to people who can travel that far.
It is easier - and the only option for some people - to get to a doctor nearer home. Some can't afford long trips and or have insurance limitations.
I thought I sent you a list of the doctors I know treat in Ohio. If not, please e-mail me.
Just don't say there is no hope for people who can't travel outside Ohio. Please.
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