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» LymeNet Flash » Questions and Discussion » General Support » "we do NOT want you (me) at the meeting (support group)

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Author Topic: "we do NOT want you (me) at the meeting (support group)
bettyg
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I don't think represents a "support" group but a dictatorship; how about you? True story happening to me last week....

FYI, I was recently invited to a lyme support meeting in another city by the speaker who thought I could get alot out of meeting. So I decided to go, but called asking if I could ride with him since I don't drive out of town at night; yes!

The next day, the co-chair of group I "used" to belong to called me after 1.5 yrs. where we ended up NOT talking, emailing, or visiting each other again due to a neuro lyme blowup on their part.

Here's a brief of what was said w/no names ok.

Betty, this is ___. How are you; "not good at all". I thought you weren't coming to any more meetings; are you aware this is a support group meeting. YES. Well, I called ___, and was going to ride with him to the meeting when he told me you were going too.

---"Betty, we do not want you at this meeting (meaning ALL meetings)!" Fine; then she hung up. Since I'd been so sick the last 2 days and was woken from a deep sleep, I had no comments nor was I up to going to the meeting. But had I been healthy & normal, she would have gotten a ear full!

I stopped yesterday at our local police dept. to see what harrassment charges were & protocol for them. Thought some of you might be interested in this....

He had me explain the incident. Has to be 2 occurrences; not one.

I could send her a certified letter WITH RETURN CARD SHOWING WHO SIGNED FOR THE LETTER requesting she not contact me any more by calls, email, mail, or stopping at my house.

If she did any one of them, then I could press charges with "fine could be up to $500 and PRISON up to 1 year!"

so don't mess with me anyone....LOL

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aklnwlf
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You go BettyG,

What a bunch of crap to exclude you from a support meeting. I see support is not what they have in mind.

Must be their own little dictatorship going on in there.

You hang in there! [Wink]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6918 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Linda LD
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I am so sorry this happened Betty.

Hang in there.

Linda

Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
hopeful123
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you don't deserve this treatment!!!!

shame on them [tsk]

--------------------
some days you're the bug, some days you're the windshield  -

Posts: 1160 | From NY | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
bettyg
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AK, Linda, & Hopeful,
Thanks for your responses. I just had to share this with other lymies.

Wouldn't you be "dumbfounded" to have had this happen to you?

That's why YOU WONDERFUL CARING LYMIES ONLINE are my closest and 24/7 "SUPPORT" group, the way it should be!

Love to you all and God bless you for your many kindnesses on this board.

Bettyg

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mlkeen
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doesn't sound like a support group to me. you don't need them.

We still want you!

Mel

Posts: 1572 | From Pa | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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That's so weird! Why would they do that?
Just awful.

They should be honored to bring you to the meeting and have you there.

She sounds like a nasty bug.

Parden the pun.

Heather

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Moose
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Jeez! That sounds rather immature.

It sounds like that co-chair person is still holding a grudge against you Betty, after 1 1/2 years.

It's not proper of this person to ban you from further meetings if you've decided to change your mind about going to a group meeting once in a while.

When you feel an urge to go, you NEED it! And no one should take away that right, not even for old personal issues.

People need to let go and move on. Life is too short!

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bettyg
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Mel, Heather, & Moose,

Thank you all for your comments as well.

Yes, I had left the past behind & didn't need them or their neuro nonsense & paranoia.

Mel, I need ALL of you too; thanks sweety.

Moose, you got it right....life is too short and we neuro lymies know this better than anyone else!

Betty

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MizMo
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Some folks just can't let things go. It's a shame, because all that petty bull**** just makes them all the more miserable.

Better off without that particular group - wish you hadn't had to deal with that at all!

--------------------
http://scottsbt.com/maureen/mo2.htm

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vitch
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Start another support group.

--------------------
[email protected]

www.lymediseaseassociation.org/Conflicts.doc

Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO.

Posts: 281 | From CT | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
just don
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Sounds to me like a kindergarten kiddy parade of one. IF you ever bump into her again, fat chance, tell her to GROW UP!!!!

Either that or ask her what seems to be the problem here. Maybe a petty problem, or misunderstanding that isnt even true. Cleaning the air has definite advantages.

Maybe have that mutual friend see if he can decipher the prob for you. Most of the time some little deal, BLOWN way out of porportion!!!

Thats my 2 cents(pretax)from --just don--!!!

--------------------
just don

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5dana8
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Like Don said I also think they are being childish and forget about them. I wouldn't want anything to do with people like that.

I would forget them if they don't appreciate you.
WE do appreciate you and we are here for you.

After all, how could I read all those long blocks of type the newbie's write, without you being so kind to break it up for us.

LOL [kiss]

--------------------
5dana8

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vitch
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How about an offer, a letter of friendship... to make things better... an offer to forget the past, forget differences and old anger.

--------------------
[email protected]

www.lymediseaseassociation.org/Conflicts.doc

Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO.

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bettyg
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Mizzmo, Vitch, Dana, & Just Don,

Thank you for your comments and words of wisdom.

Yes, it was BS, and her bavior reminded me of a 3-5 year old when it occurred.

starting another support group here locally is a possibility since the other one folded when I wouldnt take it over.

BUT I'd rather spend my time here with you all. I was a group leader for 5 yrs. for fibro.CFS; it takes so much out of me to plan meetings, etc. and no one shows or very few.

They moved Ames down to Des Moines, and now have 3-4 other branches in Iowa making it closer for members to attend their meetings.

Vitch, my writing a letter to her; I just can't do that. I was the person she offenced; NOT me offending her.

Thanks for your support, concern, & comments. I do get my support here where I don't locally except for my beloved hubby. Take care all.

Bettyg

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OptiMisTick
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[ 25. February 2008, 01:24 AM: Message edited by: OptiMisTick ]

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lymemomtooo
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Betty, anyone should be allowed to attend a support group meeting and you always seem to have a lot to offer..I think you would be an asset.

May I suggest some possibility..Perhaps because you are so knowledgeable you have come across as a know it all to them..

Maybe without knowing it you have offered advise or opinions when others were ready to do that and they have felt rejected. Just speculation here.

Often ones that know so much and help have their offers misinterpreted..Sometimes this gets one labeled as a yellow jacket without them even knowing it.

You came on pretty strong about just how you expected everyone to write once and I tried to counter it because I knew of someone that could not do as you damanded and things got pretty nasty..

NOt so much with you, but I do not think you realized I was NOT attacking in my response, so as then, this may just be a case of someone not properly interpreting your intentions.

And I could be very wrong and this is just some nut case that is jealous of you..It has happened with others with lyme due to the rages. Good luck..

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bettyg
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OMT and MOMTOO,

Thank you both for your comments on my true story.
You each raise interesting theories.

This woman had to be speaking for herself as she knew nothing of my coming to this meeting prior to calling the speaker to ride w/him to meeting. He told her, and I'm sure she flew into a rage right then & there.

I used to correspond w/2 others out of town who went to the meetings; both quite sick and 1 is working too; so I haven't heard from either of them in a long time.

Yes, I know a lot more now but have just touched the surface of things to know, which I've read about on here & books.

My behavior at the meetings has always been excellent. I always have questions I want to know about & wait my turn to speak. I give answers when I do know the subject matter.

I do have a strong personality having been the 2nd oldest of 5 kids growing up; I was in charge of caring for the younger kids.

Also, since I was a secretary for 26 years, I ran the office making sure critical paperwork was typed, signed, and mailed for state letting dates where the work MUST begin, etc.

Yes, I do have definite opinion/suggestions to newbes on posting shorter paragraphs and doublespacing.

Not using bold to " " someone's previous long post! Bold is like looking at the sun for me.

Plus those using the LONG web addresses causing the post to go super wide where you have to use the left/right arrow to toggle EACH line.

I'm a long time neuro lymie, I can't read or understand ONE long block of typing without breaking it up and having space in between.

My guess on her....another lyme rage!

Again ladies, thank you for your input; hope I was able to answer your comments.

Since I can't travel, LYMENET offers me the best...comfort of being home with all my needs: frozen ice packs, moistened heating pack, and good music to listen to while I'm reading/typing.
[group hug]

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tequeslady
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I guess I have a different question.

Why would you go see the Police when she had only called you once in 1.5 years and see if you could take action against her?

Seems like we're getting enough of a police state out there without encouraging it.

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OptiMisTick
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[ 09. March 2006, 02:16 PM: Message edited by: OptiMisTick ]

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bettyg
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quote:
Originally posted by tequeslady:
I guess I have a different question.

Why would you go see the Police when she had only called you once in 1.5 years and see if you could take action against her?

Seems like we're getting enough of a police state out there without encouraging it.

T, there is nothing wrong on finding out the correct procedures and what is entailed for this type of thing for my case but for other cases of family/friendds who have had this occurred.

T, I do not understand your last statement.
Bettyg

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bettyg
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quote:
Originally posted by OptiMisTick:
Betty, I am sure you would be an asset wherever you go, groups need strong people to help in general and share knowledge.

I don't mind your requests about spacing so I am sure no one else does (I just don't remember!!)

OMT, thank you so much for your kind compliment. Glad you are one of those who don't mind the spacing requests. Some do, and have PMd with their comments.

Bettyg

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tequeslady
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You asked about my comment about a "police state".

Nevermind; I was just reading the Patriot Act right before I got onto LymeNet. That's enough to make you sick. Talk about a herx....

quote:
Originally posted by bettyg:
quote:
Originally posted by tequeslady:
I guess I have a different question.

Why would you go see the Police when she had only called you once in 1.5 years and see if you could take action against her?

Seems like we're getting enough of a police state out there without encouraging it.

T, there is nothing wrong on finding out the correct procedures and what is entailed for this type of thing for my case but for other cases of family/friendds who have had this occurred.

T, I do not understand your last statement.
Bettyg


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