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» LymeNet Flash » Questions and Discussion » General Support » long term lymes??

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Author Topic: long term lymes??
jackr10
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hi,


i think i have lyme disease and the LLMD doc put me on diflucan for 2 weeks.

he said i should feel better in 2 weeks and all my symptoms will subside-

numbnesss in legs, muscle spasms etc. i have heard that these symptoms are

chronic and the nerve damage is permanent. is this true??..i have had these

symptoms for over 7 months.

Posts: 13 | From philadelphia | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
Moose
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Jackr:

You are only on Diflucan?? Have you taken any antibiotics??

Diflucan doesn't treat lyme. It's mostly for yeast infection or Candida that can result from taking a lot of antibiotics.

Are you seeing a real lyme literate doctor? Just wondering why you THINk you have lyme and how in the world did you end up with an LLMD?

To answer your other questions, yes the symptoms are often chronic until fully treated and it should cease. As for the nerve damage being permanent? I have never heard that and I surely hope not!

I have only been recently diagnosed with lyme last Dec and been on treatment since, where progress is very slow, as I've probably had lyme for a little more than 15 years. More or less, I expect my recovery to take awhile, possibly two years or more according to what I'm hearing from others.

I will supposely & finally see a lyme specialist at John's Hopkins tomorrow I don't trust anybody until I feel they know what they're doing and talking about. Been shuttled from doctors to specialists and so on for soooo long! May this finally be narrow down eventually.

Hopefully,others will be able to help answer some of your questions. You are in the right place.

Posts: 90 | From Maryland | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
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jack are you sure you saw an LLMD, most in your area have a very looong waiting list to get in. Did you see one in philadelphia?

If you have yeast diflucan will help with that.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
AZURE WISH
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I reiterate are you sure your doctor is lyme literate...

I am from NJ....

went to philly for treatment cuz i thought well the "experts" would be in the big city...

boy was I wrong.... no help from philly for me.

You are on antibotics too right?

Lyme is a bacteria... diflucan is not an antibotic.

now if you have yeast problems ...

diflucan is great.

Please realize I jave NO medical training and this post just reflects my opinions and experiences.

Best wishes [Smile]

--------------------
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http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Getting Better
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This does not sound right. Although I certainly am no expert, after having read all the research and political opinions, but mostly the experiences of people on this site, this advice does not fit.

My doctor told me I would be "back in the saddle" after 4 months of cat's claw. I think he was naive, or just trying to be hopeful. He is the kind of doctor who believesthat if you put a timeline on your recovery you will unconsciously follow that timeline. I wish he would be more realistic with me. Now when I tell him I realize this is going to take years, he shakes his head in agreement. But he doesn't offer this advice. He doesn't want to take away hope.

I am going to PM you the name of my LLMD in NJ with whom I have consulted. She was quite good and I think would have a different opinion.

--------------------
Jeff

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Andie333
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I'm in the Philadelphia area and see an LLMD in NJ.

Andie

Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
minimonkey
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There are some LLMDs out there treating lyme itself with diflucan -- seems there is some preliminary (but by no means proven) evidence that it may actually work against Bb, not just fungi. Most use diflucan along with abx, though -- and I can't imagine a legit, lyme literate doc promising you'd be symptom free that quickly. It takes a while for most folks.

--------------------
"Looks like freedom but it feels like death..
It's something in between, I guess"

Leonard Cohen, from the song "Closing Time"

Posts: 822 | From California | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
mlkeen
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Our llmd is treating lyme with diflucan alone. The treatment is for much longer than 2 weeks and the dose is 200mg a day.

My son and I have improved greatly on this therapy. It is very new for lyme and cos, and a work in progress determining the protocol and why it works.

My husband has lyme and babs. He is much better taking diflucan rather than mepron.

There is very little data out there about this protocol, so it is premature for folks to state definitively what diflucan can and cannot do. If it cleares our bodies of yeast allowing our immune systems to kick lyme butt, then fine.

I'm glad to be better and don't have to know how or why it works.

Mel

Posts: 1572 | From Pa | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
   

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