posted
I've been out of work for 4 weeks now. Original blood work that was drawn at the hospital was not conclusive for lyme. I was diagnosed with lyme 15 yrs. ago and have suffered a relapse. Starting over with all the insurance issues. The doctor prescribed the IV therapy but the insurance wants the test results. I had to send blood to IGENEX and Medical Diagnostic labs in Hamilton NJ. I will have to wait 1 or 2 more weeks for the insurance to get the results. They want the results of the Western Blot. I am on FMLA leave but only have 8 weeks left. After that who knows. I am contemplating just going back to work but I feel like a freak because I have bells palsy in my face and it gets all twisted up. I am also afraid of making mistakes because of brain fog and fatigue.
Has anyone gone back to work before meds? I am on doxycycline 100 mg. 2 x per day.
Posts: 20 | From California | Registered: Mar 2006
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I've been out of work for 4 weeks now. Original blood work that was drawn at the hospital was not conclusive for lyme.
I was diagnosed with lyme 15 yrs. ago and have suffered a relapse.
Starting over with all the insurance issues. The doctor prescribed the IV therapy but the insurance wants the test results.
I had to send blood to IGENEX and Medical Diagnostic labs in Hamilton NJ.
I will have to wait 1 or 2 more weeks for the insurance to get the results.
They want the results of the Western Blot. I am on FMLA leave but only have 8 weeks left.
After that who knows.
I am contemplating just going back to work but I feel like a freak because I have bells palsy in my face and it gets all twisted up.
I am also afraid of making mistakes because of brain fog and fatigue.
Has anyone gone back to work before meds? I am on doxycycline 100 mg. 2 x per day.
Breaking this up for easier reading for those with neuro, eye and other issues
posted
I got the name of a Lyme doctor from this site. I only saw him once. He acknowledged the fact that I have lyme just by my history and symptoms. We are just waiting for the test results to start the IV abx.
Posts: 20 | From California | Registered: Mar 2006
| IP: Logged |
BostonLyme2005
Unregistered
posted
Hi Devon,
Have you asked if you could have some very light duty at work?
This would help you with having to do too much too soon....
Also, the thing about Lyme is, some LLMD's can also say you have CFS/FYBRO, so that may get you into short/long term disability as well....
This is what I have heard...No matter what the results are, you have to look at the certain lyme bands, and what they mean...
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
in many ways, i have been lucky since i was and am able to work. i scaled down working from a high stress/difficult to find job to a lowish stress job before the lyme set in.
i never had bells, however, my brain fog has been a struggle for years. much better now, but if i had a big job with higher expectations and lots of demands AND i had to travel long distances, i would not be able to work.
work is hard even if you are well. geeze, that's why it's called work. i have only walked in my own shoes, and that's hard enough.
good luck on whatever you decide, just remember stress is a factor in getting well.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Morning devon-
Have you been tested for co-infections? I was only recently tested for Rocky Montain Spotted fever, which is not treated with rocephin.
I had IV before anyone thought to test for this and probably accounts for my treatment failure. I ended up doing very well on orals, tetra for RMSF, bart, lyme and mycoplasma.
Also, now that you are out of work, you could qualify for free meds. My HMO refused to pay for the IV, for a lame reason. I forget who makes rocphin, but the LLMD filed the paper work. It took a couple of weeks to get to organized. I paid him $50 a week for the OVs and the HMO paid for all the lab work.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Wink]](wink.gif)
Printer-friendly view of this topic